I'm not 100% sure where to post this so I thought here would do as well as anywhere as it involves patient support albeit online

I am involved in moderating the icarecafe which is community of patients caregivers and their supporters

One of our members has set up a support group for interstitial cystitis. Due in part to the name it does not appear very active.

So it would be wonderful if you could have a look at the group and add links to useful infomation sites and support groups

Please go to


I have taken the liberty of linking to this site anyhow

Thanks for listening