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IC Doctor in Alabama?

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  • #16
    Dr. Childs and his staff are amazing. They are the most kind and compassionate group I have ever seen. I had my surgery in January, and Dr. Childs found endo, scar tissue, adhesions, bladder irritation from IC, and--get this-- a staple IN my ovary. Apparently a previous doc left it during surgery. My ovary was stapled to my bowel and uterus--it was one big knot of scar tissue.

    I start bladder instills tomorrow, as my IC has flared up pretty bad following a trip to NOLA. I just can't say enough positive things about Dr. Childs and The C. Paul Perry Pelvic Pain Center. They are my lifesavers!
    Mommy to Dolores Anne, born 2 September 2012

    Current Meds: Zoloft, Premarin, Klonopin, Tramadol, UTA

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    • #17
      Originally posted by RollTideMama View Post
      I am bumping this old thread. I am in the Birmingham area and would like to know more about Dr. Alex Childs. I currently see a Urologist at the same hospital as Dr. Childs. I haven't always been satisfied with the level of treatment I've received. I had cysto with distention on Monday and my Urologist told me to drink cranberry juice. I drank it yesterday morning and was MISERABLE for the rest of the day. I don't think his practice strives to learn more about IC and treatments available. I would love to have a doctor that I can talk to. Thanks.
      Oh my your uro told you to drink cranberry juice! thats outragious get another uro soon.
      <center>
      <a href="http://s1086.photobucket.com/albums/j441/linda5552/?action=view&amp;current=Picture005.jpg" target="_blank"><img src="http://i1086.photobucket.com/albums/j441/linda5552/th_Picture005.jpg" border="0" alt="Photobucket" ></a>
      </center>

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      • #18
        Hi Linda, If you still live in Athens then you live in my dad's hometown. I live in Mathews, Al which is right outside of Montgomery,AL. I have an appointment to see Dr. Childs but I am probably going to cancel it because my doctor referred me to another urologist in B'ham. His name is Dr. Glenn Wells. I have an appointment with him this coming up Tuesday. I will let you know what I think of him. We should talk since we both have IC and live close. I have had IC now for 21 years. I am now 42. I have tried everything under the sun so if you want to ask me any questions I would be more than glad to answer them. I tried to send you a private message but it told me that you don't receive private messages. That is why I am sending you this message here. Cranberry juice is acidic so that is why you were probably miserable. I have had the cysto with distention also. I hope you are doing well!!!
        GO TO: IC-talkblogspot.com
        [B]CURRENT DIAGNOSES AND MEDICATIONS
        lumbar pain,depression,periphreal neuropathy,Insomnia,IBS
        for pain-tramadol ER 200 mgs (once a day),for break-thru pain-talwin(as needed),for periphreal nueropathy-Lyrica 150 mgs (3 times a day),for insomnia-ambien10mgs,for hot flashes- estradiol (estrogen),for IBS-Questran (one packet a day),for depression-paxil (80 mgs)=two 40 mgs a day

        SURGERIES-
        *Bladder and Urethra removed (Radical Cystectomy)-August 2012
        *Vaginal Prolapse surgery, ovaries removed and Interstim removed 2012June 2012
        *Cauterization of the bladder lining-1992-i don't know the technical term
        *Bladder distension and cauterization-1992
        *Cystocopy-1992
        *Gallbladder removal-1995-gall stones
        *Hysterectomy-1998-still have ovaries
        *Interstim trial-2002
        *Interstim implant-2002
        *Trial pain pump did not work
        *spinal injections-2009 (once with 1 injection and a second time with 6 injections)

        Comment


        • #19
          Are there any support groups in Alabama? I live in Hoover and am having a hard time dealing with this.

          Comment


          • #20
            Actually I think there may be one in B'ham. There is not one where I live. I will let you know what I find out.
            GO TO: IC-talkblogspot.com
            [B]CURRENT DIAGNOSES AND MEDICATIONS
            lumbar pain,depression,periphreal neuropathy,Insomnia,IBS
            for pain-tramadol ER 200 mgs (once a day),for break-thru pain-talwin(as needed),for periphreal nueropathy-Lyrica 150 mgs (3 times a day),for insomnia-ambien10mgs,for hot flashes- estradiol (estrogen),for IBS-Questran (one packet a day),for depression-paxil (80 mgs)=two 40 mgs a day

            SURGERIES-
            *Bladder and Urethra removed (Radical Cystectomy)-August 2012
            *Vaginal Prolapse surgery, ovaries removed and Interstim removed 2012June 2012
            *Cauterization of the bladder lining-1992-i don't know the technical term
            *Bladder distension and cauterization-1992
            *Cystocopy-1992
            *Gallbladder removal-1995-gall stones
            *Hysterectomy-1998-still have ovaries
            *Interstim trial-2002
            *Interstim implant-2002
            *Trial pain pump did not work
            *spinal injections-2009 (once with 1 injection and a second time with 6 injections)

            Comment


            • #21
              I found this online:

              http://living-emotionally-well-with-...al/birmingham/
              GO TO: IC-talkblogspot.com
              [B]CURRENT DIAGNOSES AND MEDICATIONS
              lumbar pain,depression,periphreal neuropathy,Insomnia,IBS
              for pain-tramadol ER 200 mgs (once a day),for break-thru pain-talwin(as needed),for periphreal nueropathy-Lyrica 150 mgs (3 times a day),for insomnia-ambien10mgs,for hot flashes- estradiol (estrogen),for IBS-Questran (one packet a day),for depression-paxil (80 mgs)=two 40 mgs a day

              SURGERIES-
              *Bladder and Urethra removed (Radical Cystectomy)-August 2012
              *Vaginal Prolapse surgery, ovaries removed and Interstim removed 2012June 2012
              *Cauterization of the bladder lining-1992-i don't know the technical term
              *Bladder distension and cauterization-1992
              *Cystocopy-1992
              *Gallbladder removal-1995-gall stones
              *Hysterectomy-1998-still have ovaries
              *Interstim trial-2002
              *Interstim implant-2002
              *Trial pain pump did not work
              *spinal injections-2009 (once with 1 injection and a second time with 6 injections)

              Comment


              • #22
                Thank you bama girl but that is really old How are you dealing with this? I am so depressed. I'm 40 and am planning to start nursing school in Jan but I wonder if I'll make it through with this horrible disease. Did you see Dr. Wells? I am seeing Dr. Rukas in the same urology group as Dr. Wells.

                Comment


                • #23
                  Originally posted by megalicious View Post
                  Dr. Childs and his staff are amazing. They are the most kind and compassionate group I have ever seen.
                  I looked him up and he is listed as an OB/GYN. I already have a good GYN, but I figured I needed a good Urologist.

                  Im confused.

                  Comment


                  • #24
                    How did doctor Wells turn out?

                    I need a good one. The one I've had for several years and who did my sling surgery said (when I asked him about IC): "That's just a label that they put people under. (???) Your body is just playing tricks on your brain."

                    He said my urine was clear and gave me enablix. A week later his nurse called and said I had an E-coli infection and called in antibiotics. (My second round.)

                    My primary says that he disagrees with the Uro. and that he still believes I have IC. But, he tested my urine again and it was clear but the culture showed e-coli again. After a third round of antibiotics my symptoms haven't improved. I think I need a really good urologist. I just dont know where to look.

                    Comment


                    • #25
                      Update, for those still looking for a good doc in central Alabama:

                      Someone let me know about a Dr. Lloyd, Urologist, at Kirklin Clinic in Birmingham. It took over 3 months to get in to see him, but it was worth the wait. He properly diagnosed me with a skenes abscess and surgically removed it. My pain is pretty much gone after over a year of torture. He did a hydrodistension and cyctoscopy and is sufficiently convinced I do not have IC. After he found the cyst I had an appmt with my GYN and she looked for the cyst and could not find it even though she knew it was there! She said I had "huge leukocytes" in my urine and was concerned about me going ahead with the surgery if I had infection in my bladder. She convinced me to let her catheterize me and the urine from inside the bladder was clear. I asked her if I should get a second opinion and she said, "No, Dr. Lloyed IS your second opinion!" Apparantly he is THE guy for difficult to diagnose urology patients. And even though she couldn't find the cyst, the fact that he said he found one and the abnormal urinalysis compared to a normal cath urinalysis convinced her it was there.

                      Dr. Lloyd is in his 70s and no one knows when he'll retire. My GP tells me if he had retired before I got to see him, it could have been years before I got properly diagnosed. That is a scary thought!

                      Long story short: I highly recommend Dr. Keith Lloyd as a diagnostician but get there before he retires! lol

                      Comment


                      • #26
                        dr. lloyd

                        I went to Dr. Lloyd years ago but he couldn't help me. He just said that he couldn't figure out what was wrong with me. Since then I have had my bladder removed by Dr. Wells in B'ham. I am still having some pain and am going to my gynocologist. Now that I have no female parts and no bladder the only place left for the remaining pain is in the Vjj itself.
                        I just want to get to feeling normal!! Whatever that is! lol!!
                        Kristi



                        Originally posted by Eeyore68 View Post
                        Update, for those still looking for a good doc in central Alabama:

                        Someone let me know about a Dr. Lloyd, Urologist, at Kirklin Clinic in Birmingham. It took over 3 months to get in to see him, but it was worth the wait. He properly diagnosed me with a skenes abscess and surgically removed it. My pain is pretty much gone after over a year of torture. He did a hydrodistension and cyctoscopy and is sufficiently convinced I do not have IC. After he found the cyst I had an appmt with my GYN and she looked for the cyst and could not find it even though she knew it was there! She said I had "huge leukocytes" in my urine and was concerned about me going ahead with the surgery if I had infection in my bladder. She convinced me to let her catheterize me and the urine from inside the bladder was clear. I asked her if I should get a second opinion and she said, "No, Dr. Lloyed IS your second opinion!" Apparantly he is THE guy for difficult to diagnose urology patients. And even though she couldn't find the cyst, the fact that he said he found one and the abnormal urinalysis compared to a normal cath urinalysis convinced her it was there.

                        Dr. Lloyd is in his 70s and no one knows when he'll retire. My GP tells me if he had retired before I got to see him, it could have been years before I got properly diagnosed. That is a scary thought!

                        Long story short: I highly recommend Dr. Keith Lloyd as a diagnostician but get there before he retires! lol
                        GO TO: IC-talkblogspot.com
                        [B]CURRENT DIAGNOSES AND MEDICATIONS
                        lumbar pain,depression,periphreal neuropathy,Insomnia,IBS
                        for pain-tramadol ER 200 mgs (once a day),for break-thru pain-talwin(as needed),for periphreal nueropathy-Lyrica 150 mgs (3 times a day),for insomnia-ambien10mgs,for hot flashes- estradiol (estrogen),for IBS-Questran (one packet a day),for depression-paxil (80 mgs)=two 40 mgs a day

                        SURGERIES-
                        *Bladder and Urethra removed (Radical Cystectomy)-August 2012
                        *Vaginal Prolapse surgery, ovaries removed and Interstim removed 2012June 2012
                        *Cauterization of the bladder lining-1992-i don't know the technical term
                        *Bladder distension and cauterization-1992
                        *Cystocopy-1992
                        *Gallbladder removal-1995-gall stones
                        *Hysterectomy-1998-still have ovaries
                        *Interstim trial-2002
                        *Interstim implant-2002
                        *Trial pain pump did not work
                        *spinal injections-2009 (once with 1 injection and a second time with 6 injections)

                        Comment


                        • #27
                          Re: IC Doctor in Alabama?

                          Originally posted by Linda May View Post
                          Oh it is so nice to find someone from Huntsville Al. I live in Athens not to far. I will send you a private message.
                          I am in Madison close to Athens

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