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IC Patients in Huntsville, AL

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  • #16
    Re: IC Patients in Huntsville, AL

    I’m going to try to make an appointment with her. My IC was basically gone throughout my 2 pregnancies but has come back now I haven’t been following the diet but I guess I need to again. I feel silly but it is really depressing to me to go back on the diet. I feel like everything I like to eat is off limits. ... also, how are we supposed to know when we have a uti or it’s just ic? I haven’t had to deal with this for a while so now I feel new to it.

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    • #17
      Re: IC Patients in Huntsville, AL

      Originally posted by Acreynolds0801 View Post
      I’m going to try to make an appointment with her. My IC was basically gone throughout my 2 pregnancies but has come back now I haven’t been following the diet but I guess I need to again. I feel silly but it is really depressing to me to go back on the diet. I feel like everything I like to eat is off limits. ... also, how are we supposed to know when we have a uti or it’s just ic? I haven’t had to deal with this for a while so now I feel new to it.
      I don’t have to follow the diet scrictly with food but I only drink water. I use prelief when I eat. I have been seeing Dr Childs in Birmingham. He is a pelvic pain specialist. I am also on elmiron and it helps me. It took a while though. Also look into low dose naltrexone. It has been amazing.

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      • #18
        Re: IC Patients in Huntsville, AL

        Thanks for the info. Why did you switch from kubik to child’s?

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        • #19
          Re: IC Patients in Huntsville, AL

          Originally posted by Acreynolds0801 View Post
          Thanks for the info. Why did you switch from kubik to child’s?
          I will probably go back to her Sinai don’t have to drive so far. I saw Dr Childs because I had other issues endometriosis adenomyosis pelvic congestion syndrome etc.

          I did get bladder instills a long time ago at Kubik’s but they seem to make me worse from the trauma to urethra. I also feel like Kubik likes to prescribe just basic things like elmiron and amitriptyline not gabapentin etc. Her nurse also told me to drink cranberry juice which I thought was crazy. Kubik also didn’t evaluate me for pfd properly. She also corrected me harshly the first time I saw her for my pronunciation of Interstitial cystitis. So she has pros and cons like all of them I guess.

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          • #20
            Re: IC Patients in Huntsville, AL

            I’m sorry you have to deal with all of that. ... I might try kubik first . I wish she knew more about ic though

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            • #21
              Re: IC Patients in Huntsville, AL

              Acreynolds0801: I know the diet can seem overwhelming, but instead of looking at the list of things to avoid, concentrate on the bladder friendly items and look for favorites there. And --- when I was diagnosed back in 1975, I was my urologist's first IC patient. He researched and attended seminars to learn more about it and he treated my IC for thirty years until he retired.

              Jess123: I hope you let that nurse know what cranberry juice can do to an IC bladder --- and that you mentioned this poor advice to the doctor.

              I hope both of you are doing well.

              Warm hugs,
              Donna






              Acreynolds0801
              Stay safe


              Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
              Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

              Have you checked the ICN Shop?
              Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

              Patient Help: http://www.ic-network.com/patientlinks.html

              Sub-types https://www.ic-network.com/five-pote...markably-well/

              Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

              AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

              I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
              [3MG]

              Anyone who says something is foolproof hasn't met a determined fool

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              • #22
                Re: IC Patients in Huntsville, AL

                Thanks so much icndonna!

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