IC Patients in Huntsville, AL

[Acreynolds0801]

Re: IC Patients in Huntsville, AL

I’m going to try to make an appointment with her. My IC was basically gone throughout my 2 pregnancies but has come back now I haven’t been following the diet but I guess I need to again. I feel silly but it is really depressing to me to go back on the diet. I feel like everything I like to eat is off limits. ... also, how are we supposed to know when we have a uti or it’s just ic? I haven’t had to deal with this for a while so now I feel new to it.

[jess123]

Re: IC Patients in Huntsville, AL

I’m going to try to make an appointment with her. My IC was basically gone throughout my 2 pregnancies but has come back now I haven’t been following the diet but I guess I need to again. I feel silly but it is really depressing to me to go back on the diet. I feel like everything I like to eat is off limits. ... also, how are we supposed to know when we have a uti or it’s just ic? I haven’t had to deal with this for a while so now I feel new to it.

I don’t have to follow the diet scrictly with food but I only drink water. I use prelief when I eat. I have been seeing Dr Childs in Birmingham. He is a pelvic pain specialist. I am also on elmiron and it helps me. It took a while though. Also look into low dose naltrexone. It has been amazing.

[Acreynolds0801]

Re: IC Patients in Huntsville, AL

Thanks for the info. Why did you switch from kubik to child’s?

[jess123]

Re: IC Patients in Huntsville, AL

Thanks for the info. Why did you switch from kubik to child’s?

I will probably go back to her Sinai don’t have to drive so far. I saw Dr Childs because I had other issues endometriosis adenomyosis pelvic congestion syndrome etc.

I did get bladder instills a long time ago at Kubik’s but they seem to make me worse from the trauma to urethra. I also feel like Kubik likes to prescribe just basic things like elmiron and amitriptyline not gabapentin etc. Her nurse also told me to drink cranberry juice which I thought was crazy. Kubik also didn’t evaluate me for pfd properly. She also corrected me harshly the first time I saw her for my pronunciation of Interstitial cystitis. So she has pros and cons like all of them I guess.

[Acreynolds0801]

Re: IC Patients in Huntsville, AL

I’m sorry you have to deal with all of that. ... I might try kubik first . I wish she knew more about ic though

[ICNDonna]

Re: IC Patients in Huntsville, AL

Acreynolds0801: I know the diet can seem overwhelming, but instead of looking at the list of things to avoid, concentrate on the bladder friendly items and look for favorites there. And --- when I was diagnosed back in 1975, I was my urologist's first IC patient. He researched and attended seminars to learn more about it and he treated my IC for thirty years until he retired.

Jess123: I hope you let that nurse know what cranberry juice can do to an IC bladder --- and that you mentioned this poor advice to the doctor.

I hope both of you are doing well.

Warm hugs,
Donna






Acreynolds0801

[Acreynolds0801]

Re: IC Patients in Huntsville, AL

Thanks so much icndonna!