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  • #1

    Ic

    I finally learned how to make a post I am very glad to have found this forum, it is so informative and others know what you are going through. My husband thinks I am to obsessed with this forum, it kind of hurt my feelings. He also said I was a hypochondria that was very hurtful to. I feel so all alone you guys are the only ones I can talk too. I have no close family they all live so far away, thanks for listening.
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  • #2
    We're always here to offer encouragement and support.

    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.     [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

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    • #3
      As Donna said, we are always here anytime you need us.
      Jolene

      "Life is what happens when you are making other plans" John Lennon

      IC diet cheat sheet....http://www.ic-network.com/diet/dietcheatsheet.html

      Information for Patients can be found here.
      http://www.ic-network.com/patientlinks.html


      Jen's tips for great IC sex..http://www.ic-network.com/forum/showthread.php?t=22522&highlight=jens+tips[/url]




      Newbie Angel...I will be happy to answer any questions or just listen. Email me at [email protected]

      "IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you."

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      • #4
        I hope this website helps you as much as it has helped me. Feel better soon!

        Comment

        • #5
          I've had some issues with people saying that its not good to spend so much time on these forums but for me..its very informative and I would never of asked my doctor about vaginal valium suppositories if I didn't get the idea from here. this has been a huge support network for me and I hope it is for you too. And the hypochondriac thing....well for me its hard not to think i have so many things because IC is so complicated. I hope your husband comes around. We are here for you!
          I am happy to say that I am off all pain medication and currently take Neurontin and Uribel for my IC. I went to the Cleveland Clinic Chronic Pain Rehabilitation program and it saved my life!! I still get bad flare ups but it turns out I was on so many narcotics it was making my pain worse.

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          • #6
            I think this forum is very empowering too. My boyfriend felt similarly about me being online alot in the beginning, when I was on the forum alot because I was in alot of pain. I was "supposed" to be studying for exams every waking minute but obviously pain often trumped that. But I never would have discovered the IC diet without this site, or glucosamine/MSM tablets, and I never would have pursued PT. Heck, I pretty much diagnosed myself so I might have still been writhing in pain diagnosed as some sort of psychosomatic mess if this site and forum didn't exist! It really does provide a wealth of information that even many specialist doctors aren't aware of.

            I also believe that most people just can't comprehend people in chronic pain. When you are in pain you want to find something to help you, anything, hence the obsession with the forums. It is 100% normal and you will definitely benefit from the research, so just be strong and ignore the naysayers.
            Symptoms began: January 2010
            Diagnosed with IC: May 2010

            Began with burning during/after urination, frequency, urgency, urethral spasms. Recurrent UTIs since 2002. Pelvic pain.

            Current Rx:
            Glucosamine/MSM tablets daily (1/2 a 1500 mg tablet Kirkland brand)
            IC diet
            stretches/relaxation/sitzbaths/heating pad

            Used in the Past:
            Gepan Instills (Chondroitin sulfate) 1x/mo until Sept 2010
            Loratidine (Antihistamine)
            Tilidin (opiate analgetic not commonly prescribed in U.S.) as needed
            Cystoscopy w/Hydrodistention: May 2010 (found this temporarily relieved my spasms and urgency)
            Reside in Germany

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            • #7
              Good Morning Linda,

              Your are loved by all your IC Sisters and Brothers. We all know what you are going through. My husband is supportive and knows I am suffering. I just found out in November last year that I have IC. At first he too said I was reading too much online about IC and stayed on the computer too much. He has stopped saying that. It helps so much to be able to communication with others who really understand. Those who don't have IC can't know. Being grounded in the love of our Lord and Savior Jesus helps me handle this monster IC better. Reading and sharing with my IC friends on this forum and with my IC friends on the Facebook page for the Interstitial Cystitis Association. Maybe it would help your husband to read online about IC on this website and the ICA website. May God be with you and your husband. Love in Christ.

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