Tweet
Anyone in the metro Birmingham area (or surrounding areas) interested in meeting up? I have not found or heard of any support groups in this area and my doctor's office staff didn't know of any either when I asked. If anyone is interested in forming a support group or just meeting regularly/semi-regularly...please let me know. We are all in this together!
-
Sarah
Dx: IC, fibromyalgia, PFD, chronic pelvic pain, vulvodynia, endo, ovarian cysts, pelvic congestion syndrome, Vitamin B12 deficiency, hypothyroidism -
Hey Sarah,
I wish we live a litte closer. I live in Mathews, AL which is just 15 minutes outside of Montgomery. There is no support group here either. It is frustrating. I lived in B'ham for 2 years when I was younger. I have severe IC, PFD, urethritis, IBS, lower back pain, depression and I also deal with ovarian cysts. I just started 10mg of vaginal valium and it helps with the PFD. My gyno prescribed it. I found out about it on this website. Hope you are doing good.GO TO: IC-talkblogspot.com
[B]CURRENT DIAGNOSES AND MEDICATIONS
lumbar pain,depression,periphreal neuropathy,Insomnia,IBS
for pain-tramadol ER 200 mgs (once a day),for break-thru pain-talwin(as needed),for periphreal nueropathy-Lyrica 150 mgs (3 times a day),for insomnia-ambien10mgs,for hot flashes- estradiol (estrogen),for IBS-Questran (one packet a day),for depression-paxil (80 mgs)=two 40 mgs a day
SURGERIES-
*Bladder and Urethra removed (Radical Cystectomy)-August 2012
*Vaginal Prolapse surgery, ovaries removed and Interstim removed 2012June 2012
*Cauterization of the bladder lining-1992-i don't know the technical term
*Bladder distension and cauterization-1992
*Cystocopy-1992
*Gallbladder removal-1995-gall stones
*Hysterectomy-1998-still have ovaries
*Interstim trial-2002
*Interstim implant-2002
*Trial pain pump did not work
*spinal injections-2009 (once with 1 injection and a second time with 6 injections) -
How About Using a Call Center
I have some friends with friends all around the country. They use a call center with an access code.
Would either of you be interested in calling in as opposed to the face to face meeting?Comment
-
Sure, that sounds great. I would love to be able to call in since there is no support group where I live. ThanksGO TO: IC-talkblogspot.com
[B]CURRENT DIAGNOSES AND MEDICATIONS
lumbar pain,depression,periphreal neuropathy,Insomnia,IBS
for pain-tramadol ER 200 mgs (once a day),for break-thru pain-talwin(as needed),for periphreal nueropathy-Lyrica 150 mgs (3 times a day),for insomnia-ambien10mgs,for hot flashes- estradiol (estrogen),for IBS-Questran (one packet a day),for depression-paxil (80 mgs)=two 40 mgs a day
SURGERIES-
*Bladder and Urethra removed (Radical Cystectomy)-August 2012
*Vaginal Prolapse surgery, ovaries removed and Interstim removed 2012June 2012
*Cauterization of the bladder lining-1992-i don't know the technical term
*Bladder distension and cauterization-1992
*Cystocopy-1992
*Gallbladder removal-1995-gall stones
*Hysterectomy-1998-still have ovaries
*Interstim trial-2002
*Interstim implant-2002
*Trial pain pump did not work
*spinal injections-2009 (once with 1 injection and a second time with 6 injections)Comment
-
call center
Can you give all of us the call center phone number and tell us what we need to do. Thanks for telling me about this.GO TO: IC-talkblogspot.com
[B]CURRENT DIAGNOSES AND MEDICATIONS
lumbar pain,depression,periphreal neuropathy,Insomnia,IBS
for pain-tramadol ER 200 mgs (once a day),for break-thru pain-talwin(as needed),for periphreal nueropathy-Lyrica 150 mgs (3 times a day),for insomnia-ambien10mgs,for hot flashes- estradiol (estrogen),for IBS-Questran (one packet a day),for depression-paxil (80 mgs)=two 40 mgs a day
SURGERIES-
*Bladder and Urethra removed (Radical Cystectomy)-August 2012
*Vaginal Prolapse surgery, ovaries removed and Interstim removed 2012June 2012
*Cauterization of the bladder lining-1992-i don't know the technical term
*Bladder distension and cauterization-1992
*Cystocopy-1992
*Gallbladder removal-1995-gall stones
*Hysterectomy-1998-still have ovaries
*Interstim trial-2002
*Interstim implant-2002
*Trial pain pump did not work
*spinal injections-2009 (once with 1 injection and a second time with 6 injections)Comment
-
Conference Call Number
Sorry for the delay. The telephone number is 570-310-0120 access code
293-0047.
What days are good for you guys? I work Monday thru Friday from 7:00 to 3:30. After work I need a few minutes to decompress.
Any day/Any time works for me! Suggestions???? Please PM if you wish to discuss in greater detail. I am off the computer until Monday. Have a great weekendComment
Comment