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Support Group in Ocala/Gainesville area?

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  • Support Group in Ocala/Gainesville area?

    I would love to find a support group locally. Anyone else in this area?
    Diagnosed Dec 2015 via cystoscopy

    Current treatments - Elmiron 100 mg. 3x daily (this is hard to manage on an empty stomach, but I'm trying), Amitryptiline 25mg, IC Diet

    Other medications - Imitrex (as needed for migraines), Levothyroxine (Hashimoto's)

  • #2
    Re: Support Group in Ocala/Gainesville area?

    Hi, I live in Volusia county, not too far from Ocala!

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    • #3
      Re: Support Group in Ocala/Gainesville area?

      Originally posted by Samantha Alexis View Post
      Hi, I live in Volusia county, not too far from Ocala!
      Hi Samantha,

      If you ever want to meet up, let me know.
      Diagnosed Dec 2015 via cystoscopy

      Current treatments - Elmiron 100 mg. 3x daily (this is hard to manage on an empty stomach, but I'm trying), Amitryptiline 25mg, IC Diet

      Other medications - Imitrex (as needed for migraines), Levothyroxine (Hashimoto's)

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      • #4
        Re: Support Group in Ocala/Gainesville area?

        Yes! I would like that. Sorry I haven't gotten back sooner, my grandma just died 2 days ago.

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        • #5
          Re: Support Group in Ocala/Gainesville area?

          Originally posted by Samantha Alexis View Post
          Yes! I would like that. Sorry I haven't gotten back sooner, my grandma just died 2 days ago.
          I'd just like let you know I'm so sorry about the loss of your grandma.

          Sending gentle hugs,
          Donna
          Stay safe


          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

          Have you checked the ICN Shop?
          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

          Patient Help: http://www.ic-network.com/patientlinks.html

          Sub-types https://www.ic-network.com/five-pote...markably-well/

          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
          [3MG]

          Anyone who says something is foolproof hasn't met a determined fool

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          • #6
            Re: Support Group in Ocala/Gainesville area?

            Thank you so much Donna. She was 96 and was on hospice for 5 days. I'm so glad she isn't suffering anymore and is in a better place. I miss her terribly though..

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