No announcement yet.

Chicago and/or Suburbs

  • Filter
  • Time
  • Show
Clear All
new posts

  • Chicago and/or Suburbs

    Hi All,

    I am recently diagnosed and looking for some help in Chicago. I am hoping to find a doctor that has knowledge in more alternative therapies that can help me manage supplements (alternative causes, diet, exercises, aloe, Cystoprotek, marshmallow tea, etc). If you know of anyone please let me know.

  • #2
    I would recommend Dr. Charles Lo, MD, a Traditional Chinese Medicine doctor who has forsaken western medicine for Chinese medicine. He helped me tremendously.
    He is located on Michigan Ave downtown. He is familiar in dealing with IC patients.


    • #3
      Thank you so much-- I will definitely look him up. Does he only do Chinese med or is he also knowledgeable about other treatments like aloe, marshmallow, etc? I tried the acupuncture route without any luck. Thanks again!


      • #4
        Read your post and that you are newly diagnosed.

        Hello Butterfly!
        I have been struggling with this disease for 20 years now and wish to God that I had someone to talk to when I finally received a diagnosis 2 years ago. I am new to the Chicago Northwestern Suburbs and don't have a doctor here yet, but have found some things that have worked for me outside of traditional meds (and all those horrible side-effects). I would love to talk to you and listen through all the frustrations that come with a new diagnosis (I cried for days). Please feel free to email me at [email protected] I would welcome the opportunity to be there for you. Best of luck, I know it can be so very hard...but it isn't the can learn to live with this and truly thrive!



        • #5
          Sorry I'm so late in responding!
          Yes, Dr. Lo is knowledgeable about many other alternatives - herbal, etc. - even "tapping" which I'm going to explore myself!
          Once again, sorry to be so late in answering your question!


          • #6
            If you scroll to the top of this page and click on "Professionals" you can find physicians who have been recommended by other IC patients.

            Stay safe

            Elmiron Eye Disease Information Center -
            Elmiron Eye Disease Fact Sheet (Downloadable) -

            Have you checked the ICN Shop?
            Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

            Patient Help:


            Diet list:

            AUA Guidelines:

            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

            Anyone who says something is foolproof hasn't met a determined fool


            • #7
              Support Group in Chicagoland

              Hi there,

              Just caught this post. You might also try to reach Barb Zarnikow, a support group leader in the greater Chicago area. She does a lot of work with IC patients. I actually spoke at her group in March! Nice group!

              Her email is: [email protected].

              Tell her I said hi.
              Julie Beyer, MA, RDN
              IC Dietitian, Patient Advocate, Speaker, & Author

              Did you know that up to 94% of interstitial cystitis patients find some symptom relief when they change their diet, and that dietary modification is recommended as a first line treatment for IC? Check out the IC Food List to get started!

              Do you need a little more help understanding the IC Diet? Schedule a phone or video coaching session through the ICN Store today.

              You can also learn more while supporting the ICN message boards by clicking on these book covers and buying the Confident Choices books from the ICN Store:

              ........ ........

              Other IC Diet Resources:

              IC Diet Webinar
              IC Diet Website
              For Health Professionals: Continuing Education About Interstitial Cystitis and Diet
              Free IC Diet Booklet: What Can I Eat?
              Confident Choices IC Diet Blog
              IC Diet Newsletter

              *Let's Connect!*


              • #8
                Re: Chicago and/or Suburbs

                Hi guys... I also live in Chicago and I feel very lonely and lost.. Can u guys please guide me to what got u guys better.. I am willing to do anything.. Thank u