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Louisville KY IC patient help!

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  • Louisville KY IC patient help!

    I have been going to my family for yrs and she has een helping me with pain meds. Today she told me that she is no longer treating people for chronic pain cause of the new laws that are being enforced now. She is semi retired and I believe she doesn't want to be bothered with all that now. But I feel so alone and scared now. I have noone to talk to about it. I have been crying all day and I am tired of fighting and tired of dealing with this stuff. I feel noone has my back. I don;t know who to go to. I really don't want to go to Pain managment but that is who she will be referring me to. I don't want to go there and get the run around cause they are not educated on IC. Does anyone know a good Dr for this in Louisville KY. I am afraid that I am not the only one in KY that is going through this right now due to the new laws. Doctors don't want to deal with it so they are sending patients away. This is scary for me I feel hopeless right now.
    Everyday is a struggle already.
    Sorry for being down but I really needed to talk and get some advice.

    Gosd Bless you all!

  • #2
    Hello Lisa

    I am so sorry for the pain and suffering you are going thru right now How can these doctors get away with not treating people with chronic pain it just makes me so mad. I am not sure of the laws there but I am in your same boat here in Okinawa Japan my family doctor has helped me for a while but now my uro stopped her from treating me since pain meds are not givin to IC paitients however she has yet to give me meds that an IC patient needs I would just go to the pain management doctors to see what happens from there, I truly hope it helps you.
    Proud USMC Wife:

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    • #3
      Lisa,
      I am from Lexington, KY and not familiar with any Louisville doctors. However if you use the IC doctor finder link (http://www.ic-network.com/md/listings/Kentucky.html), it looks like there's a Women's Center for Gyncology and Bladder Disorders and a Pelvic Pain Regional Specialty Center. It sounds like both of these would be great places to start if they're in your insurance network. It's always best to find a doctor who is familiar with IC over one who is not. Hope this helps a little and you'll have to let us know if you find a good doc
      Diagnosed with IC in 2002

      Current Treatments/Meds:
      Elavil
      Elmiron
      Ditropan
      Interstim
      Humira (Crohn's Disease/Ulcerative Colitis)
      Pristiq (Depression)
      Continuous Birth Control (for IC and ovarian cysts)
      IC Diet

      Comment


      • #4
        Hi Lisa, I'm Kathleen, I am from Louisville and I have a wonderful doctor who has been helping me though this whole thing. It was by chance I found him but his office is one of the best. It was actually him who discovered the IC after spending almost a year and half trying to find out what was wrong with me. Their office is great pretty much I can call if I am in a flair and get seen right away. My doctor is Dr. Robert McQuady and is wonderful. His info is at the bottom. I would try and give their office a call. Also feel free to message me if you want some support. I sometimes feel really lonley going though this because I hardly know anyone who deals with IC.
        Hope this information helps.
        K


        Pelvic Pain Regional Spclty Center
        3920 Dutchmans Ln Suite 303
        Louisville KY 40207
        (502) 899-3009

        http://www.pelvicpain.net/

        Comment


        • #5
          Dear rivergeek, I'm newly diagnosed (I say newly but have been going through the IC abyss for a year and a half. Your last statement struck me and I just wanted to write and tell you that someone is thinking of you today. I just joined the newwork and so am getting used to how it works. With this IC, I can be in a room full of people and STILL feel quite alone. Unusual for me because I'm pretty outgoing. I don't know if you're still using the newwork; I see that your post here is rather old, but if you DO log in, I hope you see this. I'm right across the river from you in Indiana. Take care of you today. AmandaM

          Comment


          • #6
            In fact, I'm thinking of all of you today...just finding this forum is like a balm on cracked skin. I've been reading all of your posts and think you are a wonderful, fabulous, strong, and inspiring group of women.

            Comment


            • #7
              It's unfortunate that doctors can get in trouble, even lose their licenses, for prescribing "too many" pain medications! I see a pain management specialist who is wonderful. I've been going there for almost a year now and I'm doing much better now.

              I think the idea is that pain management is a specialty and requires special training. Someone in that field is better able to determine which options will work for individual patients --- I encourage you to see one. And if you aren't comfortable with what you're being told, there's always the option of a second opinion.

              Warm hugs,
              Donna
              Stay safe


              Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
              Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

              Have you checked the ICN Shop?
              Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

              Patient Help: http://www.ic-network.com/patientlinks.html

              Sub-types https://www.ic-network.com/five-pote...markably-well/

              Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

              AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

              I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
              [3MG]

              Anyone who says something is foolproof hasn't met a determined fool

              Comment


              • #8
                Originally posted by rivergeek View Post
                Hi Lisa, I'm Kathleen, I am from Louisville and I have a wonderful doctor who has been helping me though this whole thing. It was by chance I found him but his office is one of the best. It was actually him who discovered the IC after spending almost a year and half trying to find out what was wrong with me. Their office is great pretty much I can call if I am in a flair and get seen right away. My doctor is Dr. Robert McQuady and is wonderful. His info is at the bottom. I would try and give their office a call. Also feel free to message me if you want some support. I sometimes feel really lonley going though this because I hardly know anyone who deals with IC.
                Hope this information helps.
                K


                Pelvic Pain Regional Spclty Center
                3920 Dutchmans Ln Suite 303
                Louisville KY 40207
                (502) 899-3009

                http://www.pelvicpain.net/
                I'm so glad that you have such great care and experiences with him because I am going through a literal nightmare right now as we speak. I've called twice to get in to see him (last Friday and today) because I am in severe pain and they cannot/will not see me until next Monday the 26th at the earliest. I have to work and cannot find someone to trade with me so I have to just keep my original appointment for the 30th. He did 4 nerve blocks last Wednesday and I have been in severe pain and felt ill ever since. I drive 2 1/2 hours to see him anyways and was hoping that this place was going to be the place that would help me start on the path to feeling good again. Instead I am in a worse pain trap than I was before coming there and I am really anxious, as you can imagine. I know he has helped so many people get better...I must be one of the unlucky ones

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                • #9
                  Re: Louisville KY IC patient help!

                  I am from Winchester, KY. My uro is Freddie Terrell and he is awesome! It's just about 15 mi outside of Lexington, KY. He is very helpful since I have been diagnosed and is much more patient than my famiy doctor was.

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                  • #10
                    Re: Louisville KY IC patient help!

                    Originally posted by tiffanirichards View Post
                    I am from Winchester, KY. My uro is Freddie Terrell and he is awesome! It's just about 15 mi outside of Lexington, KY. He is very helpful since I have been diagnosed and is much more patient than my famiy doctor was.
                    Thank you so much for reaching out ! I am in Southern Indiana and now have a wonderful NP that is my angel. I am in agony many days and of course IC comes with the relentless anxiety and depression, isolation too, but it's comforting and so important to,have a medical professional that at least understands the gauntlet of never ending approaches in TRYING to treat IC. Have a wonderful day and thank you again!

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