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Any one still around from KY?

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  • Any one still around from KY?

    Just wondering if anyone is still around the icn from KY.
    Officially diagnosed January 2014 by cystoscopy. +Hunners. Hypothyroid, IBS?
    Tolreodine 2mg day, sometimes 4mg (causing retention & that aggravates symptoms)
    Claritin & Benadryl (worked great...for awhile...dried me out severely!)
    Cystex, azo orange, and 1/2 tsp baking soda as needed for rescue..d-Mannose too!
    Slippery elm and cayenne immediately after meals. (Helping...I was scared to take the cayenne but it actually helps & doesn't irritate my bladder)
    Aloe tabs(stopped-constipation)
    Lemon, tea tree, and frankincense essential oil.
    CBD oil (WORKS!)
    Most important of all AVOIDING my triggers: soy, msg and oxalates are known triggers. Also sugar & fatty foods.
    Seeking good physician. I moved away from the one who diagnosed me shortly after she did & have been hard pressed to find one who will listen & take me seriously.
    Just takes time. The glass is half full.

  • #2
    Re: Any one still around from KY?

    I live in Northern KY.
    Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow."
    Mary Anne Radmacher


    • #3
      Re: Any one still around from KY?

      I live in NKY