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Need Recommendations for Pain Specialists Knowledgable of IC

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  • Need Recommendations for Pain Specialists Knowledgable of IC

    I could really use your help. I had been seeing a pelvic pain specialist who handled both my IC treatment and pain management. Over the summer he changed his practice and no longer accepts any health insurance so I was forced to find a new urologist. My new urologist is very knowledgeable about IC but doesn't prescribe narcotic pain meds for IC. I tried a local pain management doctor but as they are a spine specialist, they pushed me to schedule a series of spinal nerve blocks. I don't really want to do that, especially without sedation, so I'm in need of a good pain specialist who is understanding of the need for pain management for IC. I'm in central NJ but willing to travel if I need to. Thanks!

  • #2
    Re: Need Recommendations for Pain Specialists Knowledgable of IC

    I wish I could help you. I tried for a year to find a pain management doctor and the only ones I found wanted to do exactly what was recommended to you. The chances of finding any one that is willing to prescribe narcotics on a regular basis are pretty slim. How often to you take this pain medication? Narcotics are so highly addictive. I was on them once when I had hip replacement surgery and just 1 1/2 weeks of taking the medication and I was physically addicted. When I stopped taking them I actually had withdrawal symptoms and it was pretty awful. I was given a prescription for Percocet during one ER visit back in July of 2013 and I still have them. Every so often when I have a super-flare, I'll take half a pill so I can just sleep for a few hours. But I wouldn't take them on a regular basis (unless I was dying, literally).

    I hope someone here has had this spinal nerve block and has something positive to say about it. And I hope you can find a doctor who is sympathetic to the IC and the pain you're in. Unfortunately, it seems unless your pain is back related, no one cares.
    **************************************************************

    Experienced first symptoms in 2007
    Diagnosed with IC 6/13

    Diagnosed with PFD (Pelvic Floor Dysfunction) 8/13

    Medications: .5 mg. Ativan, occasionally for spasms

    Supplements: DH Aloe Vera capsules, 3 per day for maintenance and 6-12 per day during flares


    Following Strict IC Diet

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    • #3
      Re: Need Recommendations for Pain Specialists Knowledgable of IC

      I suspect the reason many pain management specialists try nerve blocks first is that they don't have an effect on how a patient is able to function. And they work for some patients. If the nerve block works, it's my understanding that they can do a longer lasting block. I hope you're able to find a specialist who will communicate well with you and hopefully help with your pain levels.


      Donna
      Stay safe


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