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Need Recommendations for Pain Specialists Knowledgable of IC

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  • Need Recommendations for Pain Specialists Knowledgable of IC

    I could really use your help. I had been seeing a pelvic pain specialist who handled both my IC treatment and pain management. Over the summer he changed his practice and no longer accepts any health insurance so I was forced to find a new urologist. My new urologist is very knowledgeable about IC but doesn't prescribe narcotic pain meds for IC. I tried a local pain management doctor but as they are a spine specialist, they pushed me to schedule a series of spinal nerve blocks. I don't really want to do that, especially without sedation, so I'm in need of a good pain specialist who is understanding of the need for pain management for IC. I'm in central NJ but willing to travel if I need to. Thanks!

  • #2
    Re: Need Recommendations for Pain Specialists Knowledgable of IC

    I wish I could help you. I tried for a year to find a pain management doctor and the only ones I found wanted to do exactly what was recommended to you. The chances of finding any one that is willing to prescribe narcotics on a regular basis are pretty slim. How often to you take this pain medication? Narcotics are so highly addictive. I was on them once when I had hip replacement surgery and just 1 1/2 weeks of taking the medication and I was physically addicted. When I stopped taking them I actually had withdrawal symptoms and it was pretty awful. I was given a prescription for Percocet during one ER visit back in July of 2013 and I still have them. Every so often when I have a super-flare, I'll take half a pill so I can just sleep for a few hours. But I wouldn't take them on a regular basis (unless I was dying, literally).

    I hope someone here has had this spinal nerve block and has something positive to say about it. And I hope you can find a doctor who is sympathetic to the IC and the pain you're in. Unfortunately, it seems unless your pain is back related, no one cares.

    Experienced first symptoms in 2007
    Diagnosed with IC 6/13

    Diagnosed with PFD (Pelvic Floor Dysfunction) 8/13

    Medications: .5 mg. Ativan, occasionally for spasms

    Supplements: DH Aloe Vera capsules, 3 per day for maintenance and 6-12 per day during flares

    Following Strict IC Diet


    • #3
      Re: Need Recommendations for Pain Specialists Knowledgable of IC

      I suspect the reason many pain management specialists try nerve blocks first is that they don't have an effect on how a patient is able to function. And they work for some patients. If the nerve block works, it's my understanding that they can do a longer lasting block. I hope you're able to find a specialist who will communicate well with you and hopefully help with your pain levels.

      Stay safe

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      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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