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Want to set up an IC support group for Santa Fe and the surrounding areas

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  • Want to set up an IC support group for Santa Fe and the surrounding areas

    Would anyone be interested in helping and advising? Ideas about getting the word out, where to meet, and how to manage time are greatly appreciated!

  • #2
    Re: Want to set up an IC support group for Santa Fe and the surrounding areas

    You could talk with the folks at your urologist's office. We tried to get a group started in our area, but it's a wide area and, sadly, we weren't successful. The doctor's office was very helpful --- they actually sent out notes to their IC patients to advise of the meetings.

    I also suggest you talk to Jill at the IC Network office for some advice.

    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

    Comment


    • #3
      Re: Want to set up an IC support group for Santa Fe and the surrounding areas

      Thanks for your advice! Hopefully I'll have the time; I'm sure it would be helpful for us all!

      Comment


      • #4
        Re: Want to set up an IC support group for Santa Fe and the surrounding areas

        Hello. My name is Sonja. I live in Taos, NM and I was diagnosed with IC in March. I would like to join a support group if you are still working on one. Thanks!

        Comment


        • #5
          Re: Want to set up an IC support group for Santa Fe and the surrounding areas

          Originally posted by Magdalena View Post
          Hello. My name is Sonja. I live in Taos, NM and I was diagnosed with IC in March. I would like to join a support group if you are still working on one. Thanks!
          I hope the group managed to get started. It can be very comforting to meet with a group of people who are all facing the same challenges. Your urologist's office might be able to tell you if there's a support group active in your area.

          Good luck!
          Donna
          Stay safe


          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

          Have you checked the ICN Shop?
          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

          Patient Help: http://www.ic-network.com/patientlinks.html

          Sub-types https://www.ic-network.com/five-pote...markably-well/

          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
          [3MG]

          Anyone who says something is foolproof hasn't met a determined fool

          Comment


          • #6
            Re: Want to set up an IC support group for Santa Fe and the surrounding areas

            I also live in Taos can you let me know if the support group was finally put together.

            Comment

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