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  • Melanie Reardon
    replied
    Hi buttercup,
    I know what you mean about finally knowing what is causing all of the crazy IC symptoms. I am going back to school in January and am scared because I am not well yet. I am almost finished my masters in Elem. Ed. but dealing with so many kids and having IC scare me. I hope that you get well soon! I think that you should do all the research you can on treatments! GGGGoood luck!!
    <img src="graemlins/grouphug.gif" border="0" alt="[grouphug]" /> <img src="graemlins/hi.gif" border="0" alt="[hi]" /> <img src="graemlins/kissing.gif" border="0" alt="[kissing]" />

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  • Kara
    replied
    Ali,

    There's a link on this board that I went to before and after I was diagnosed with IC. It's called the ICN patient handbook and it gives lots of advice on what IC is and how to treat it.

    http://www.ic-network.com/handbook/


    Best Wishes to you!


    Kara

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  • rnewman
    replied
    Hi Ali...
    Ive already introduced myself. My name is rachel, I just graduated from UMass with a nursing degree (and living in Amherst for 5 years...) Origionally from NJ now living in
    Philadelphia....

    If you have any questions, feel free to ask.
    I have followed the diet and am on attarax
    and urised. I dont want to try elmiron yet,
    I want to wait till im older. But, I still get
    in LOTS of hiking....in fact right after I was
    diagnosed I hiked killington in the snow..
    It was fun!!
    Sending healing thoughts
    Rachel

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  • Judith
    replied
    Hi, just curious as to what part of the state you are from. I hope you get some answers soon so that maybe they will be able to help you. I know how difficult it can be to have so much going on that it really affects how you want to live your life. Judith <img src="graemlins/bunny.gif" border="0" alt="[bunny]" />

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  • abbuttercup
    started a topic intro

    intro

    hi~ my name is alison and i am undergoing testing to see if IC is what i have. my GU seems to think that it is, and i agree. i am 21 and also have fibromyalgia, chronic fatigue syndrome and some gi problems. i am from vermont and have lived here all of my life. i was going to school for environmental education, but due to my illnesses have had to take some time off. i would be a senior this year. i have had kidney stones before and at first we thought that it was more of them. it wasn't. i like to hike, when i'm able to, and just be outside. i'm trying to learn how to deal with this illness too. how does everyone else deal with it? i thought that i was crazy, but i feel better now that we're putting a name to all of the symptoms that i get. i look foward to getting to know everyone else
    ali
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