Phiily Dr recomendations

[mich2604]

Hello,

Anyone see a dr that they really like, not an NP but a dr that treats IC and Vulvar vestibulitis? Im looking for a 2nd opinion. Other then the office at graduate.

thanks in advance

[DaniBelle]

Strep

Has your doctor told you how the Strep 'ties' in with I.C. and other related conditons? I had strep during my first pregnancy (didn't know it) and my son died in utero at 6 months. My rheumatologist who treats me for Fibro said that all these diseases and conditions are related. He said when the autoimmune system doesn't work properly, all these things can gang up on a person, causing sooo many problems. I've always wondered if the Strep B caused my son's death. Still don't really know to this day (his death was in 1988). I sure would like to know.

Have a good weekend.

[mich2604]

Hello Dani,

so sorry about the loss of your son. Have you done a search online about strep and pregnancy. I know of someone that got very ill after giving birth because of it.


I dont see a dr for IC, i see an NP , but i am looking to see a Dr.

My lyme dr does believe everything is related though, and infection caused and is causing my problems, my NP uro disagrees.


are you in the philly area?

[DaniBelle]

All related...I believe

I believe that for some reason, our bodies can't fight off certain viruses, etc.. which make all our organs very prone to develop whatever problems they can dish out. I'm still trying to get information regarding my having a gastrointestinal allergy to shellfish and nuts, and then of course an extreme sensitivity to certain foods which cause the I.C.. There has to be a connection. Since I have all this 'down time' lately....on the couch and recliner....I'm going to see what research has been done regarding all these related conditions and illnesses. They know that if a woman has endometriosis, cysts, etc..the chance of her developing I.C. is almost 90% likely...but they can't say why AND how to FIX IT!!! So frustrating.

I am in Lawrenceville, Georgia which is north of downtown Atlanta. My husband has a sister who lives in Sharon (or Sharpesville) PA. We will be headed there in August for my nephew's wedding. How much snow do you have now? I'm visiting my parents and grandmother in Alabama this weekend....it's supposed to snow. We don't get it much in ATL anymore or in Alabama, so it's a treat if we can even spot it flying through the air!

Have a nice evening!

[mich2604]

Philly dr

We only got about 4 inches of snow, enough to make a mess of driving!!!
I have heard of sharpsville, im not sure how far I am from there.

I former coworker of mine moved to Atlanta, her husband was from there. Ive always wanted to go there, maybe when i can get this IC under control, Im a braves fan...so would like to go to one of their games.

Anyway, where do you plan on researching? I comb the web daily trying to peice things together. Ive noticed whenever i eat carbs like rice my crotch burns and i get discharge, either this is a yeast reaction or some kind of alergy of some sort.

I agree with you in that there is some reason our bodies can no longer handle bacterial infections we used to be able to handle.......something caused our immune system to fail ( i have blood work to prove mine is messed up, or part of it is) not autoimmune though.

Right now i have a sore throat with some post nasal stuff going on...but its like its in the backround, guess my IC pain just overwhelms my body.


did you get to see any snow in Alabama? I hope it atleast fluried a little bit.

michelle

[DebbieR]

I'm new to all this. Distressed and depressed. I saw dr. at Penn. Wasn't thrilled and was thinking of going to Dr. Whitmore at Graduate. Is there a problem at Graduate that you want to go elsewhere. I think all the big city/university hospitals are going to be the same. Impersonal, hard to get an appt., and hard to speak with someone. Who did you see at Graduate? Where in or near Philly do you live?

[Dezolt11]

Hello,

Anyone see a dr that they really like, not an NP but a dr that treats IC and Vulvar vestibulitis? Im looking for a 2nd opinion. Other then the office at graduate.

thanks in advatnce

i see a doctor now named dr. michael birnbaum
it's on 611 and township line rd his office is in the penns school of opemotry
his number is 215 886-9116 he's really great

Edited to remove negative comment about a specific physician.

[DebbieR]

Hi, I'm seeing Dr. Moy at Penn. New to all this so it's hard to make a determination. I'm not on any meds as yet; don't know what to do. Was thinking about seeing Dr. Whitmore. Why didn't you like her? Someone else told me she sees her, but never actually gets to see her; always sees the NP.

[Mary C]

Doctor in Philly

Hi, I live in philly, far northeast. I currently see Dr. Terrance Malloy at Pennsylvania Hospital, he is in a private practice called MCH Urology he is the chief urologist at Pennsylvania. I have been going to him for about a year now, he is older but knows the bladder, he does not handle all of the pelvic floor issues just the bladder. There is a Doctor at Pennsylvania: Doctor Guterette, he is a uro/gyn he was great and I just did not want to switch from Malloy as he took my interstim out when I was only his patient for a month. He knows the bladder and his associates are all Doctors. Dr Harryhill is up on IC too, they do see more men then women.

I went to Whitmore's office for two years. I rarely saw her for the most part she wants you to see the NP'S, I saw Amy and she was good but could not always answer my questions, I wanted to see a Doctor.

I had the interstim put in and could not even see her post opp. Graduate is closing and her practice is going to Hannaman sometime this spring.

I hope this helps, I miss some things about Graduate but I always get to see my doc when I need to.

Good Luck,

Mary

[smcclafferty]

I live about 50 miles from Philadelphia, but can someone give me a doctor that specializes in IC in or around Philadelphia? Also, can you give out their phone number? Thank you.

[DebbieR]

Hi, Dr. Philip Hanno is at the Univ. of Penn. He is co-chair of the IC Assoc. His telephone # is 215-662-2891. You would probably have to wait at least one month for an appt., but you can call daily and ask if there is a cancellation to get in earlier. I haven't seen him yet, though. Hope this helps. God Bless.

[smcclafferty]

Hi, Dr. Philip Hanno is at the Univ. of Penn. He is co-chair of the IC Assoc. His telephone # is 215-662-2891. You would probably have to wait at least one month for an appt., but you can call daily and ask if there is a cancellation to get in earlier. I haven't seen him yet, though. Hope this helps. God Bless.

Yes, I saw his name on a recommendation board somewhere, but it said Temple University School of Medicine. Is this the same thing? I guess it doesn't matter, I will call. Thank you.

[journalibra]

Philly dr

I go to Dr. Whitmore's office at Graduate in Philly. I don't see Dr. Whitmore but her associate Jennifer is EXCELLENT!!! They're moving to Hannaman in the Spring? I wonder when they'll let me know about the move. Hmm.... Jennifer better move there with her! Isn't Dr. Whitmore supposed to be the best? And seeing her associates is almost as good as seeing her, especially since Dr. Whitmore is in the office most of the times (at least when I'm in there).

I know who to tell you to NOT go to... I forget his name but his office is on Bryn Mawr Avenue in Bryn Mawr right near the hospital. Greenfield I think was his name... Absolutely the worst urologist appointment I've EVER been to in my life.