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Great meeting coming up in Boston!!!

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  • Great meeting coming up in Boston!!!

    Hello Everyone,

    I hope you are doing well and for those of you that may be under the weather or in a flare, remember there ARE answers and things DO get better...Fo me, attending meetings has given me the tools to doing well. There is alway something new to learn.

    March 1st always brings with it, hope for a new season. We really can't complain about our long winter this year as the months have been mostly dry. Because of the lack of snow in the Boston and surrounding area, we've had the ability to get around. However I must say, I am looking forward to longer days, daffodils popping up from the ground and some vitamin D !!!


    We are excited to announce as speaker for our March 24th Meeting from 1:00 - 3:30;Dr. Jordan Dimitrakov, who is currently conducting research
    on the genetic causes of (IC/PBS/CPPS.)

    Dr Dimitrakov is presently doing research at Children's Hospital here in Boston at the Harvard Urological Diseases Research Center. We do know that previous studies have suggested that IC and painful bladder syndrome may be genetic and passed down (or inherited) from one generation to the next. Therefore, information gained from this study will help to improve the understanding of these conditions and lead to earlier diagnoses and better treatment.

    Some of you are familiar and may have enrolled in this study. We will all hear first hand about the study and it's progress in finding answers to a very debilitating condition such as IC.

    In just a few short weeks, Dr Dimitrakov will be discussing his latest research and will take questions from IC patients. Please bring your pen and paper for notes and any questions you may have.

    I'm very excited to meet Dr Dimitrakov and looking forward to any news
    that he will have to share with us!


    1) Please e-mail me back if you plan to attend our March Meeting?

    2) Could you e-mail me if you are able to help in any way?

    Looking forward to meeting one of our heroes; Dr Jordan Dimitrov Dimitrakov.REMEMBER TO E-MAIL ME BACK IF YOU WISH TO ATTEND.

    See you all soon,
    Molly Glidden
    Boston/Metrowest IC Support Group Leader
    Meetings/Katherine Kennedy Senior Center
    Natick, MA 01760
    Phone: 508-655-4726
    Fax: 508-650-5999
    [email protected]
    Interstitial Cystitis/ nonprofit support group

    "When it hurts to look back and your scared to look ahead, look beside you
    and your IC Friends will be there."

  • #2
    reminder - IC Meeting in Boston

    March 24th 1:00-3:30
    Boston Metrowest IC Support Group

    'IC & Genetics' with DR Jordan Dimitrakov

    more information;
    [email protected]


    • #3

      Where is the meeting....In boston?
      Minds are like parachutes-they ony function when they are open.
      -Thomas DeWar-

      ICN Newbie Volunteer

      *ICN Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.


      • #4
        meeting location

        Natick, MA -approximately 30 minutes west of Boston

        Katherine Kennedy Senior Center
        117 East Central St
        Natick MA 01760
        (Same building as our Natick District Court)

        Need any more directions, please e-mail me
        [email protected]