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IC Specialist on Long Island??

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  • IC Specialist on Long Island??

    Anyone have any info for an IC specialist on Long Island, New York?

    Thanks

  • #2
    Robert Moldwin , MD
    Director, Interstitial Cystitis Center
    Long Island Jewish Medical Center
    270-05 76th Ave., Oncology Building, 4th floor
    New Hyde Park, NY
    Phone: (718)470-7220

    Comment


    • #3
      Originally posted by HGC View Post
      Robert Moldwin , MD
      Director, Interstitial Cystitis Center
      Long Island Jewish Medical Center
      270-05 76th Ave., Oncology Building, 4th floor
      New Hyde Park, NY
      Phone: (718)470-7220
      I agree! He has given several lectures on the ICN, and is a world renouned IC expert. If I ever visit NY, Dr. Moldwin's office will be THE place I visit, (even before The Statue of Liberty or all the other typical tourist destinations!)

      Comment


      • #4
        Dr. Moldwin has been a great help to me.

        Kara
        Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

        "One hour at a time, this was NOT my American Dream but it has to work out somehow."

        I also have some journals of my journeys, past and some present at:
        http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

        Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.

        Comment


        • #5
          Long Island Dr

          You can't get a better doctor for IC then Dr. Moldwin! You are lucky you live in Long Island. Check for insurance coverage though.

          Ginny

          Comment


          • #6
            Dr.Moldwin is no longer taking regular insurance just medicare and I think hip.........

            Comment


            • #7
              Dr. Moldwin

              Dr. Moldwin has been great in my treatment of IC and very patient.
              sending lots of happy thoughts your way.

              Comment


              • #8
                I love Dr. Moldwin. He worked with my team of Doctors after my Indiana Pouch was made. He made the suggestion regarding who to see in Upstate NY that changed my life!

                Kara
                Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

                "One hour at a time, this was NOT my American Dream but it has to work out somehow."

                I also have some journals of my journeys, past and some present at:
                http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

                Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.

                Comment


                • #9
                  dr moldwin doesnt take most insurance only medicaid/medicare and hip. so i see his nurse prac Marina and Dr lee richstone, both great drs and dr moldwin reviews my case and i dont have to pay out of pocket for his advice. all the drs at the smith inst. for urology are great though.
                  Jenn


                  IC, endometriosis, vulvodynia, PFD, kidney stones, migraines, chronic uti's, ovarian cysts, seizures.

                  Meds:
                  Elmiron 300mg a day
                  a day)
                  Singulair 10mg a day
                  Seasonale

                  Prevacid OTC
                  Xanax-helps pain at times.

                  too many pills for my age!!!







                  "If it wasn't this it would be something else"

                  "There's a happiness to be gained from being able to accept that there are some things that cannot be changed."






                  Comment


                  • #10
                    Do you see them at LIJ?

                    Comment


                    • #11
                      i see them at the smith intstitute for urology on lakeville road in new hyde park. its considered a northshore medical office. if you want here is the number

                      516-734-8500
                      Jenn


                      IC, endometriosis, vulvodynia, PFD, kidney stones, migraines, chronic uti's, ovarian cysts, seizures.

                      Meds:
                      Elmiron 300mg a day
                      a day)
                      Singulair 10mg a day
                      Seasonale

                      Prevacid OTC
                      Xanax-helps pain at times.

                      too many pills for my age!!!







                      "If it wasn't this it would be something else"

                      "There's a happiness to be gained from being able to accept that there are some things that cannot be changed."






                      Comment


                      • #12
                        I've seen Dr.Moldwin at LIJ a few years ago,thanks for the #

                        Comment


                        • #13
                          no problem, good luck. if you have any questions feel free to ask. i have learned all the tricks of getting insurance to cover for that office.
                          Jenn


                          IC, endometriosis, vulvodynia, PFD, kidney stones, migraines, chronic uti's, ovarian cysts, seizures.

                          Meds:
                          Elmiron 300mg a day
                          a day)
                          Singulair 10mg a day
                          Seasonale

                          Prevacid OTC
                          Xanax-helps pain at times.

                          too many pills for my age!!!







                          "If it wasn't this it would be something else"

                          "There's a happiness to be gained from being able to accept that there are some things that cannot be changed."






                          Comment


                          • #14
                            I saw him for 2 years and stopped because of my insurance issue.. so you are telling me I can see his nurse practitioner.. she is just as good.. please give me more info.. I would love to go back to him
                            Healing thoughts

                            Bea

                            Comment


                            • #15
                              yeah her name is marina...she only takes certain insurance. i get booked under dr richstone and then she sees me. and she also runs everything by dr moldwin. i would see if she takes your insurance and if not book it under dr richstone and tell him you have IC and right away he will get her. he's a great dr too, he's doing my hydro and cysto tomorrow. let me know if you decide to go there. good luck.
                              Jenn


                              IC, endometriosis, vulvodynia, PFD, kidney stones, migraines, chronic uti's, ovarian cysts, seizures.

                              Meds:
                              Elmiron 300mg a day
                              a day)
                              Singulair 10mg a day
                              Seasonale

                              Prevacid OTC
                              Xanax-helps pain at times.

                              too many pills for my age!!!







                              "If it wasn't this it would be something else"

                              "There's a happiness to be gained from being able to accept that there are some things that cannot be changed."






                              Comment

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