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  • Cape Cod?

    Is there anyone who is from the Cape Cod area who has ic? Are there any support groups on the Cape?? Please let me know, thanks

  • #2
    I am located on the Cape but I do not attend any support group here. I previously lived outside of Boston so I attend The IC Support Group of Boston/MetroWest. The only other ICer on the Cape that I knew of was my old music teacher. Haha. Anyways, the Boston/MetroWest group is really great. I have been meeting with them for a while and everyone is very friendly and (of course) supportive. The guest speakers are very helpful. And there is always tons of IC-safe food!!! Hahaha.

    If you are interested you can contact Molly:
    The IC Support Group of Boston/MetroWest
    Group Leader: Molly Glidden
    Phone: 508-655-4726 E-mail: [email protected] or [email protected]

    Here is a link for the full list of all of the support groups the ICN knows of:
    http://www.ic-network.com/forum/showthread.php?t=30094
    IC Awareness

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    • #3
      Thank you for the info. I'll definatly be going there!

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      • #4
        cmg: keep posting back or start new threads....I'm almost positive there is at least one other person with IC on the Cape that has postd here or for some reason I think they have a child with IC.....I've gone to Molly's meetings before, they really are a lot of fun, informative and you just meet the nicest people, ya know? There are plenty of ICers here in MA and throughout New England
        Somewhere there's a reason /Why things go like they do /Somewhere there's a reason /Why some things just fall through /We don't always see them /For what they really are /But I know there's a reason /Just can't see it from this far /Maybe I don't like it, /But I have no choice /I know that somewhere, /Someone hears my voice / I thought I knew it all /I thought I had it made /How could it end this way? /I thought I knew Somewhere there's a reason /Why things don't go my way /Somewhere there's a reason /That I cannot explain /Just like the change of season, /Just may not be my turn /But I know there's a reason, /The lesson's mine to learn

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        • #5
          It would be sooo nice to talk to someone that lives close by. Thanks everyone

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          • #6
            IC on the Cape

            Hi, I am on Cape Cod and have had IC about 6 years now. I am in a remission from IC. Please feel free to contact me if you want to chat. I don't belong to a support group but can lend an ear. Like you when I learned about IC I couldn't find anyone else on Cape Cod who had it. Here I am! Best, Carolyn [email protected]
            "If you have the heart of a child, you can always look for the rainbow. " Carolyn

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            • #7
              Thank you Carolyn, I really appreciate it. It's nice knowing there is someone close by. You'll probably be hearing from me soon. I have my very first appointment with a doctor who knows a lot about ic next week, it will be nice to have a doctor who believes me! I'm not officially diagnosed with ic because I havent had the money to go to a urologists, I got my tax money back and the first thing I did was make an appointment! I'm excited and nervous at the same time.
              Casey

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              • #8
                Hi Casey, Ok good luck with your appt. I am glad you got a doc who knows about IC. Is your doc in Falmouth? Carolyn
                "If you have the heart of a child, you can always look for the rainbow. " Carolyn

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                • #9
                  Hi Carolyn,
                  No, he's on Main Street in Hyannis. Dr. Geraniotis- I'm quite sure I didn't spell that correctly.

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                  • #10
                    What a relief. Not anyone I am thinking of. Write down a lot of questions so you won't forget to ask. Wishing you good luck! Best, Carolyn
                    "If you have the heart of a child, you can always look for the rainbow. " Carolyn

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                    • #11
                      Doctors

                      Isn't it scary that we all seem to have a doctor in mind that we hope no one we know will ever be subjected to. I wonder if this happens with other conditions too.
                      I was born with one ureta not attached to it's kidney, I've been poked and prodded for so long. I never had "private" parts. I had constant infections and took low dose preventive antibiotics into my teens.

                      DX with IC July 1993 after seeing 3 different Uro's and finally switching Primary care doctors and affiliated hospitals.


                      I have 2 beautiful daughters, the oldest has been in heaven since she was 14 when she was hit by a car The youngest is 20 now. She has had one UTI. She went into complete panic that she would end up like me. Now she has some idea of what the pain is like. Poor kid has been forced to know where every bathroom in Disney World is.

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                      • #12
                        It's funny because I was kind of nervous about someone writing to me that he was a bad doctor, so I'm glad knowone's heard anything bad about him!

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