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I'd love some support in central NY

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  • #16
    Gopher,

    Good Luck on May 24th! I will be at Crouse on the 21st for an under anesthesia MRI. They sent a very nice Crouse Patient Handbook. It made me feel very comfortable. I hopeyour cysto/hydro yeilds some good information in order for Dr. K to better help you with your IC and eventually relieve your symptoms.

    Waving to you from CNY!!!
    Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

    "One hour at a time, this was NOT my American Dream but it has to work out somehow."

    I also have some journals of my journeys, past and some present at:
    http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

    Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.

    Comment

    • #17
      Erika,

      I'm so sorry to hear about the "accidents" you and Jeremy are dealing with. Hoepfully insurance will kick in and you can both have transportation again soon. Maybe you could ask them for a loaner until you have another car. I am so glad none of you were seriously hurt. I am hoping that you have a safe delivery of your new baby girl.

      My Mom just started her 2nd round of Cjemo today. I had to leave and come back to Syracuse so I don't know how she fared.

      I am freaked beyond belief about the Weddings. Roomate's is the 21st in Long Island and Sister's is the 1st of June. My hands are shaking just thinking about it all........

      Thinking of You, Jeremy, Emma, and the little one

      Kara
      Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

      "One hour at a time, this was NOT my American Dream but it has to work out somehow."

      I also have some journals of my journeys, past and some present at:
      http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

      Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.

      Comment

      • #18
        Billsbaby would you mind PMing me the name of your specialist in syracuse???

        Kara you're in good hands at Crouse. That is where i had all the reflux testing done on Emma when she was only a few weeks old and they were wonderful with her and me both (i am a very overprotective mama)....i also had all my ultrasounds MRI x-rays and the zillion tests they had me go through BEFORE comming to the conclusion i needed to be tested for IC done there and they were wonderful with me as well.....and i was NOT a very happy camper i was in soooo much pain!
        Erika
        wife to Jeremy
        mom to Emma (3-8-05)
        and Natalie (7-23-07)


        Meds i'm currently taking:
        Lortab as needed for pain

        Meds that did not help:
        Detrol LA
        Lexapro (caused urgency)
        Amatryptaline 10mg once a day (helped IC but made me feel like CRAP)


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