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  • Hellp from NH folks

    In the Fall I will be having surgery in the Manchester/Nashua NH Hospital.
    Do any of you live near there. I will be in that area for a few weeks.

    Thank You,

    Kara
    Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

    "One hour at a time, this was NOT my American Dream but it has to work out somehow."

    I also have some journals of my journeys, past and some present at:
    http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

    Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.

  • #2
    We live nearby in NH

    Hi Kara,

    I'm really interested as to who is treating you in NH. From what I am reading on these boards, you're journey has been long and tedious and you've been all over looking for specialists.

    We live in NH and have been searching for a doctor that will treat my husband's IC. He was finally diagnosed in March after being treated for 6 months for prostatitis. It was a surgical urologist who diagnosed it during a cystoscopy and gave him a hydro distenstion while he was under. He really isn't interested in taking him on as a patient for follow up treatment. All he's done is prescribe pills, pills and more pills!

    This doctor won't do instillations under anesthesia and doesn't want to do another hydro as he think's it's hopeless. My husband only got about 3 weeks mild relief from the hydro and the doctor says it's not worth the trauma to the bladder for such short relief.

    Therefore we're on the search for another doctor. We've been to **** clinic and I wasn't all that impressed as they lost my husband's records. We're going to try Mass General Hospital in Boston next but if there's someone closer to us, I'll get my husband there too.

    I'm certainly available to chat and if you need assistance while in NH, we're here about 20 miles outside of Manchester. My husband and I are newbies to IC but we'll help as best we can!

    Thanks,
    Kathy
    Last edited by ICNDonna; 05-15-2007, 03:13 AM. Reason: Negative comment naming specific physician group.

    Comment


    • #3
      Kathy,

      I will private message you.

      Kara
      Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

      "One hour at a time, this was NOT my American Dream but it has to work out somehow."

      I also have some journals of my journeys, past and some present at:
      http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

      Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.

      Comment


      • #4
        boston

        If you do go to Boston, I use Dr. Eyre at Beth Israel. He has male patients also and has aided one of my dear male friends after all the mis-diagnosis.

        Comment


        • #5
          Kathy,

          I don't know how far you and your husband want to travel or if staying within an insurance network is an issue, but there are a few in Keene that have good reputations for treating IC patients. Dr. Quimby is at the Cheshire Medical Center and Dr. Funk is an independent urologist in downtown Keene. Keene is about 1 - 1 1/2 hours from Manchester.

          Comment

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