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Doctor in York County who Specializes in IC

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  • #1

    Doctor in York County who Specializes in IC

    Does anyone know if there is a doctor in York County, PA who specializes in IC or at least knows a lot about it? The reason being is that back in 2003 or 2004 a uro in Hanover said I had IC, well a couple weeks ago I went to a new uro because of always going to the bathroom and he looked over my records from the old uro and the new uro said "you do not have IC and you never had IC" and as I told him, "but the old uro said I did" and he said the old uro never said that. So I would like to find someone not to far away from me to see if I can go to them to see if they will recheck me for IC. The new uro didn't even check because he said if I did have IC I would have lots of pain, but then I hear some people do not have lots of pain with IC.

    Thanks for your help!
    Kim H (chainsaw)
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  • #2
    Re: Doctor in York County who Specializes in IC

    Originally posted by chainsaw View Post
    Does anyone know if there is a doctor in York County, PA who specializes in IC or at least knows a lot about it? The reason being is that back in 2003 or 2004 a uro in Hanover said I had IC, well a couple weeks ago I went to a new uro because of always going to the bathroom and he looked over my records from the old uro and the new uro said "you do not have IC and you never had IC" and as I told him, "but the old uro said I did" and he said the old uro never said that. So I would like to find someone not to far away from me to see if I can go to them to see if they will recheck me for IC. The new uro didn't even check because he said if I did have IC I would have lots of pain, but then I hear some people do not have lots of pain with IC.

    Thanks for your help!
    Kim H (chainsaw)
    Since you've had conflicting reports, I would think a second opinion is a reasonable option. What kinds of testing did you have by the doctor who originally diagnosed you as IC? Not everyone has "lots" of pain, but most will have at least some pain at times.

    Warm hugs,
    Donna
    Stay safe


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    • #3
      Re: Doctor in York County who Specializes in IC

      Hi Donna, What I remember from my first exam with the uro back in 2004 he started out having me track what I drink and then doing a voiding chart, and then he gave me medications then since that didn't seem to work he then checked my bladder. So he looked in my bladder with that camera thing and I can remember saying hurry up it hurts, it was very painful. Then he said that I had IC and that we needed to do the bladder cocktails, and we did that for about 6 months or so, then after we were done with that, he checked my bladder and again and it looked a whole lot better than it had before and it was not painful that time. Then he said okay, well if you have any more problems give us a call. Well, I just never bothered with going back. I didn't care for his staff at all.

      So anyway, I decided it was time to go back to a new uro. So I had my records transferred to this new uro and he said that the first uro did NOT say I had IC and as I told this new uro, he was the one who told me I had it.

      This new uro just thinks that since I was a child I always had problems with always having to go, and I had said how I will wear Depends Shilouttes when I am riding long distances for those just in case moments but then if I have to go I can't bring myself to go in those. He said "since you have had this problem as a child and you wear depends for those just in case cases but you will not go in them, I think that you have trained your brain to tell your bladder that it is time to go at times like "when you are leaving the house, you are going on long trips, you go just to be sure you can make it around the corner and you don't have IC and you never did, there is no where on the other uro report that even said you did".

      Now, I went to this new uro because YorkTowne Urology in York, PA was rated very highly on Angie's List and I thought since that was the case that maybe I should give them a try. Oh, so this new uro gave me a prescription for a topical called Gelnek 3% or something like that, you are supposed to pump it 3 times then rub it onto your skin then you have to wait until it dries before you put your clothes on, well it is taking almost and hour for it to completely dry.

      I would like to find a good uro who knows about IC and will actually take the time to check and see if I do or ever did have it. You know, if the uro would not have told me I had IC and even wrote it down on paper for me, I would never have even heard of IC.

      So this is why I am asking if anyone knows of a IC specialist in York County, PA that I could see if they take my insurance and maybe have them check me to see what is going on.

      Donna, I sure hope this made sense to you. Thanks!
      Kim H

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      • #4
        Re: Doctor in York County who Specializes in IC

        Donna, the new uro also told me to stay away from caffeine, decafe, chocolate, sugary beverages but it is okay to use sugar substitutes.
        Kim H

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        • #5
          Re: Doctor in York County who Specializes in IC

          Hi Kim,

          I've had good luck with:
          Leslie Robinson - urogynecologist with Wellspan
          Tana Phipps, nurse practitioner at Yorktowne Urology

          Gelnique contains oxybutynin chloride which is the active ingredient in ditropan and helps relax the bladder. You can actually buy it over the counter now in patches.

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          • #6
            Re: Doctor in York County who Specializes in IC

            3/10/14...I just went back to my old uro today over in Hanover (Dr. Richard Jones). I have not been to see him since about 2009 or so. I had told him how I went to see a Uro over at YorkTown Urology (Dr. Baselli) in York in Oct. 2013 and how that doctor said that the medical records he had gotten from Dr. Jones did not say anywhere that I had IC, or that he even suspected that I had it. Well, today when I saw Dr. Jones he more less said I didn't have it (IC) that he just used that as an all around diagnoses until her looked at the bladder. Well, I can remember back in 2004 when Dr. Jones did look in my bladder, it hurt while he was looking in there and he said it was inflamed. Well, we did the bladder cocktail medications for about 6 months then when eh checked it again the bladder was no longer inflamed or anything. So anyway today Dr. Jones did not say "stay away from caffeine or stay away from anything" he just said to try the Gelnique, measure and track your urine for 3 weeks then come back in three weeks and we will check your bladder again. Now, I have NO pain when I have to pee, I have not blood in my urine, I have not pain in the bladder or anything like that. As I was emailing to a friend today after my appointment with Dr. Jones, I can't believe he didn't say to stay away from anything and all he said was use this gel, track your urine and come back in 3 weeks and we will check your bladder. I got to thinking today if going back to Dr. Jones was the right thing to do. II just feel like I should have stayed at YorkTown Urology or try maybe the doctors at Mountain View in Spring Grove or Hanover. According to their website they are obgyn's and they also deal with urine incontinence.

            What do you all think? Should I stay with Dr. Jones or should I try going back to YorkTown Urology (I don't know if they would take me back since I had my records transferred back to my old uro) or try a whole new urologist all together? I stared going to Dr. Jones when I lived closer to him that to York. But now I live close to York too, so I just don't know what to do.

            Thanks for your help!
            Kim H

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            • #7
              Re: Doctor in York County who Specializes in IC

              I just called to try to get in to see Dr. Robinson, she is not taking new patients because she is getting ready to retire.
              Kim H

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              • #8
                Re: Doctor in York County who Specializes in IC

                I got in with gynourologist (I hope I spelled that right) for April 14th. He is at the same place that Dr. Leslie Robinson is. So hoping a third opinion will tell me for sure if I have IC or just an OAB. Since I keep getting different answers.
                Kim H

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                • #9
                  Re: Doctor in York County who Specializes in IC

                  I am confused. I have 3 appointments with 3 different doctors in April. The first one is with my old Uro who I just went to see who said that more less he diagnoised me with IC back in 2004 because he wasn't sure what it was if it is IC or OAB, and after not seeing me for about 8 or 9 years or so, he told me that when I came back in for my appointment in April then he will check the bladder. I don't feel like he is giving the medication time to work without jumping right into checking the bladder. I also made an appointment with a gynourologist for April but then I discovered that they are doctors who are devoted only to reconstruction of the pelvis and other disorders including incontinence. I don't need reconstructive o the pelvis floor or anything like that. Then the third appointment is with York Towne Urology with Tana Phipps. I just don't know who to go see, anyone have any suggestions? Thanks for your help!

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                  • #10
                    Re: Doctor in York County who Specializes in IC

                    Jensma-Hi! I am going to see if I can get back in at YorkTown Urology again. I have got to tell you, I am so confused on if I have IC or OAB. The first doctor I saw back in 2004 says IC, another dr says I don't have that I have oab, or I don't have anything, I have trained myself to have to go at certain times. And the first dr. I saw told me when I went in to see him a few months ago that he wanted to do the botox on me. I am thinking, say what? I am waiting to here from YorkTown Urology to see if I can come back since I had to cancel a couple times before.

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                    • #11
                      Re: Doctor in York County who Specializes in IC

                      Hi! Idk if you've found a good dr, but Julie Drolet at the women's institute got gyn and minimally invasive surgery is amazing. She's close to memorial hospital in east York, on 6th ave. She's diagnosed and taken great care of my ic for years


                      Live until you die.....don't let IC control your life. Rock your world and as my heroine says, "fiddle dee dee, tomorrow is another day!"

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