Announcement

Collapse
No announcement yet.

Out of remission need Dr in philly area

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Out of remission need Dr in philly area

    Hello all,
    I was in remission of all my pelvi issues until August when I was at the beach and also sexually active
    I had three top doctors in philly neglect to send my urine out for culture , urgent care finally found the infection a month later.

    I have left side burning up near the urethra ..also a prickly sensation only on lefts side.
    The ER found a 5.6cm cyst ..and one dr has already said just ignore it.

    I need a Dr that runs vaginal cultures...none of the Drexel obgyn team as they missed this...
    is there any Dr other than whitmore that can help me figure out if I have a vaginal infection going on?

    I feel like I'm lost at sea...and can't believe I've been suffering since August.
    I felt better on cipro .
    My periods are also coming twice a month since Augus.
    The frustrating this is these are not my usually IC flare symptoms

    I think I need a good urogyn at this point. I'm back to being bedbound


    Lyme disease diagnosed 11/05
    vulvar vestibulitis diagnosed 2/06 -worst case she has ever seen..very bad.
    IC diagnosed with hydro/cysto- may 17, 2006

    Over growth of lactobicilli found 8/07 treating with doxy.

    Was able to get my first internal exam evaluation for PFD....wohoo 1/18/07:woohoo:

    8/22/07- was able to get my first speculum exam, with pap

    Strep D found in bladder with United medical labs May 2006
    2 strains of strep in stool culture 9/06
    high Strep ASO titre found 10/06

    NEW MED

    Capsasin cream-once a day for 20min,
    BUt wont lie it does burn

    About to start valium supositories for PFD

    Trigger point injections- oct 07

    Current meds:
    Neurontin- 100mg at night supposed to work up to 300mg if i can tolerate it
    Zanaflex 2mg
    IC and low oxalate diet, no sugar diet
    Xanax for appointments to help relax me since they cause so much pain

    Started PT 3/07, PT has really helped me in ways I never knew that it would

    Meds ive tried
    Lyrica
    Klonopin
    Singulair
    Claritin
    Pyridium
    Soma- can barely tolerate half a pill
    Atropine cream- didnt seem to work, although i found out I was applying the creams wrong
    Estradiol cream
    Urelle- caused worse bladder spasm and retention

    Various antibiotics for lyme which caused yeast and made the IC and VV worse

    waiting for the next chronic illness to pop up


    "Did you know?
    Every 15 seconds,
    a person is
    diagnosed with
    interstitial cystitis."
    Source: J. Dimitrakov, MD

  • #2
    Re: Out of remission need Dr in philly area

    If you scroll to the top of this page and click on ICN Home Page, you'll find a link to locating a medical professional --- hopefully, there will be someone listed in your geographical area.

    Sending gentle hugs,
    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

    Comment

    Working...
    X