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  • Ohio with I.C.

    Hey all, I'm from Athens, Ohio. Male 45 and found out a few months ago I have I.C. I was actually diagnosed in the summer of 1996 but wasn't given the diagnosis. I only found out by getting a copy of my medical records, but that's a long story.

    I need to find a doctor in Ohio who has an interest in treating I.C. Any recomendations you could give me?

    This is a test post so I'll keep it short for now.

    Thanks

  • #2
    Hi Quidam,
    I'm in Columbus but visit Athens quite a bit as I have friends who own a private campground down there. [img]smile.gif[/img] Welcome to the ICN! I do not have any Athens area doctor recommendations but know of a few here in Columbus. Feel free to private message me or email me at [email protected]

    There are a few listings for patient recommended doctors in Ohio here on the ICN. Check out this link: http://www.ic-network.com/md/doctorlistings.html Dr. Nelson is my uro.

    I'm also planning on putting together a central Ohio IC support group/meet and greet, hopefully for this fall. If you are interested in coming, let me know and I'll add you to my email list.

    [img]smile.gif[/img] Melanie J.
    "The sun shines not on us, but in us." John Muir

    Living a happy life in spite of IC! http://www.ic-network.com/patientstories/melanie.html

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    • #3
      <img src="graemlins/hi.gif" border="0" alt="[hi]" /> Hi Quidam,
      I live in Steubenville, Ohio and I have IC since 1996 and I do have the interstim in. Hi!! Melanie I havn't heard from you likely..

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      • #4
        Hi Deborah.
        I don't believe we've chatted before (unless you've changed your user name?)? I'm glad to see you on the boards. [img]smile.gif[/img] I'm curious...who did your interstim surgery? You can private message me if you'd like...

        Hope you're feeling good today!
        Melanie J.
        "The sun shines not on us, but in us." John Muir

        Living a happy life in spite of IC! http://www.ic-network.com/patientstories/melanie.html

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        • #5
          Hello debora b,

          Good to meet you. I'm not sure what interstim in. means, so you'll need to explain it to me.

          MelanieJ,

          Thanks for the welcome. I do have an appointment with Dr. Nelson mid September. Just hope it works out with him. I made an appointment with the Cleveland Clinic earlier in the year but it's a long way to go if I'm in a bad flare situation.

          Before I had the diagnosis of I.C. I had found I can get relatively healthy taking Zithromax and a lot of other things. I even took a 3200 mile rv. trip to Key West, then three weeks later to Boulder, Co. I did experience urinating blood for the first time the night we stayed over in Miami. I also urinated a "floater" shortly after. At the end of both trips I started getting sick again.

          I would go to the group meetings if you get them up and running. I'm trying to figure out the food stuff right now, frustrating, but profitable. Sustained improvement is my goal, just trying to find my way, like everyone else. I have managed to get past years of chronic pelvic pain, don't ever want to go there again.

          Thanks for your replies

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          • #6
            Hello again deborah b.,

            I've done a little reading here and now know what interstim means.

            Looking back, I had a bladder spasm in 1994 while reading a book on the couch. Didn't think anything of it at the time, other then that had never happened before.

            Looks like I still have a lot to learn. Thankfull that you all are here [img]smile.gif[/img]

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            • #7
              Hey Deborah B. I think we played Stuebenville in High School sports. I went to Beavercreek... Am I right?

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              • #8
                Hi!! Patrice
                Where do you live in Ohio? How long have you had IC and what treatments are you doing?? I have the interstim in. I hope you are okay. <img src="graemlins/hi.gif" border="0" alt="[hi]" />

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