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Lost in Illinois--HELP!!!!!!!!!

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  • Lost in Illinois--HELP!!!!!!!!!

    Hello, my name is Kaye. Im new to the area where im living and have gone through a nightmare just to find doctors to treat me.. I had pretty good doctors from where i moved from, but thats thousands of miles away. Im trying to meet someone in the Illinois area that knows of doctors etc.. I did meet with the doctor listed on the IC's listing of urologists-and his only answer, was that i was the worst case hed seen and that there was nothing he could do for me. That i had procedures and medications in past-that hed never even heard of.. He recommended me seeing Dr Parsons in California-like thats just easy to do. I did call and speak with Dr Parsons office-and they said they werent doing any newer treatments or medications that i hadnt already tried. I am now being seen at pain center-in Springfield, they are wanting to do either the neurostimulator implant or the pump implant, they basically said ive gone as far as I can. And this is my last choice-they did discuss this with me the months prior to moving here. Due to the fact they were at the end of there ropes to. If anyone knows anything that might help would you post or please email.. Lost in Illinois... <img src="graemlins/banghead.gif" border="0" alt="[banghead]" />

  • #2
    hello from your indiana neighbor. i live in terre haute which is near the indiana/illinois border.
    about 4 hours from chicago.
    i go to northwestern in chicago to dr. schaeffer.
    he seems to be knowledgable with ic. i've had it for 16 years and ran out of options in ind. i just started going to him 2 years ago. he is more willing to work with me than the drs here in ind. good luck. let me know if i can help in anyway.
    my e-mail address is [email protected]
    cas

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    • #3
      Welcome to Illinois!

      I don't know of a specific doctor for you, but hav eyou heard of Mayos clinic? It has a vary good reputation. I beleive it is near Chicago.

      Veronica

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      • #4
        The Mayo clinic is located in Southern Minnesota. Rochester, I think. About 2 hrs drive south of the Twin Cities.

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        • #5
          I have been to the Mayo Clinic in Minnesota (they have satelites in Naples, Florida and Scottsdale, Arizona), my mom and I flew there and stayed for testing for about a week. I was not impressed by any means--- I had every simptom of IC short of my bladder jumping out and doing a jig, and they did not diagnose it. I was later diagnosed by a doctor in my area.

          Amanda

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          • #6
            Hi! I would try the pump but the interstim made by Medtronic is not used for pain but there is other devices out there that is used for pain. I'm going to try the Botox treatment next month with a doctor hear in Miami and I hope it will help me. I hope you find a doctor out there will soon. Deborah

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            • #7
              I hope your bladder will give you a break this new year and that you find the treatment you need and deserve.

              We are all think of you and and sending you are best wishes.

              Veronica

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