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  • Support Group Interest

    I am considering starting an IC support group in the Black Hills area of South Dakota. Is there any interest out there?

  • #2
    Re: Support Group Interest

    I see that you posted this in 2010 with no responses. I tried to start a support group at Rapid City Regional Hospital a few years ago. They helped me with advertising and everything and no one showed up. I tried 2-3 times and no one showed up to any of them.

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    • #3
      Re: Support Group Interest

      What a shame! I assure you if I had heard of this I would have been there. At the time I posted I had the support of the urologist's office, which, as an estimate, had about 100 IC patients. I've since changed urologists.

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      • #4
        Re: Support Group Interest

        Are you still living in the Black Hills area?

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        • #5
          Re: Support Group Interest

          Are you located in Rapid city? Trying to find a urologist that treats ic here. Do you have a recommendation? Thank you!

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          • #6
            Re: Support Group Interest

            Originally posted by Melissa Hansen View Post
            Are you located in Rapid city? Trying to find a urologist that treats ic here. Do you have a recommendation? Thank you!
            to the IC Network. If you scroll to the top of this page and click on ICN Front Page you'll find a link to locate medical professionals in your area.

            We tried to get a support group going in my area and attendance was very good for the first few meetings --- then attendance dropped down to one or two people and we finally had to give up.

            Donna
            Stay safe


            Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
            Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

            Have you checked the ICN Shop?
            Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

            Patient Help: http://www.ic-network.com/patientlinks.html

            Sub-types https://www.ic-network.com/five-pote...markably-well/

            Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

            AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
            [3MG]

            Anyone who says something is foolproof hasn't met a determined fool

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            • #7
              Re: Support Group Interest

              I live in Hill City but my doctor is in Rapid City. His name is Dr. Brekhus. That is who I would recommend you see if you are an adult.

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              • #8
                Re: Support Group Interest

                ICNDonna - what area are you referring to?

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                • #9
                  Re: Support Group Interest

                  Originally posted by Erica Welu View Post
                  ICNDonna - what area are you referring to?
                  I live in Oregon, a little over 100 miles south of Portland. The reason I mentioned that we couldn't seem to keep a group going is because from posts on these forums, I suspect that's not unusual anywhere in the country.

                  Donna
                  Stay safe


                  Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                  Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                  Have you checked the ICN Shop?
                  Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                  Patient Help: http://www.ic-network.com/patientlinks.html

                  Sub-types https://www.ic-network.com/five-pote...markably-well/

                  Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                  AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                  I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                  [3MG]

                  Anyone who says something is foolproof hasn't met a determined fool

                  Comment


                  • #10
                    Re: Support Group Interest

                    Great! Thank you for the information Erica!

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