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  • wv

    Hi from WV, I haven't seen much on the site from anyone here with IC. I have a wonderful doctor for support, but would like to have a friendly ear to listen close by. Any bendable ears?

  • #2
    Sending you a PM.
    Kim

    Diagnosed August 2001

    Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)


    Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

    I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.

    *****************************

    “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

    “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy

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    • #3
      Hi,

      I am from Grafton, WV. I have ben trying to find somebody around here with IC. If you want to talk e-mail me [email protected]
      Louise
      West Virginia Interstitial Cystitis/Prostatitis Support Group Leader
      [email protected]

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      • #4
        Hi...I too am from WV....Charleston.

        Comment


        • #5
          Hi! I'm from Wheeling WV, Boy does this snow stink. We have atleast two feet. Can't go anywhere. Yuck!!!!!!!!!! Send me a message anytime! Shannon

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          • #6
            HI SHANNON I HAD MY IMPLANT TAKEN OUT LAST WED. I FELL SO SORRY FOR YOU WITH ALL THE SNOW. I TALK WITH MY GIRL FROM BACK HOME AND SHE WAS TELLING ABOUT ALL THE SNOW. I HOPE YOU ARE DOING OKAY!!! WILL CALL YOU SOON. DEBORAH

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            • #7
              I was beginning to think I was alone in WV, thank goodness for some replys. I live in Elkins, so I am close to some of you. Thanks for being out there.

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              • #8
                I WOULD LIKE TO HEAR FROM YOU IN ELKINS!!! I USE TO LIVE IN ELKINS. MY DAD WAS A VET IN ELKINS AND LIVED ACCROSS THE STREAT FROM SHONNEY'S MY MOM SOLD HER HOUSE TO A DENTIST IN TOWN. I WILL BE LOOKING FORWARD IN TALKING WITH YOU. WHO IS YOU DOCTOR IN ELKINS?? TALK WITH YOU SOON. DEBORAH

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                • #9
                  Hi from Elkins, I know where your house was, I just forget who lived there. My doctor is Dr Zaslou in Morgantown, he is wonderful. I am a 30 year old daycare provider with 2 children ages 6 &10. I was originally Leslie Ryan. Who is your doctor? any help is wonderful to hear. My email is [email protected] if you wantt to talk later.

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                  • #10
                    hi

                    IT WOULD NICE THAT WE ALL GET TOGETHER SOMETIME SOON. MAYBE WE ALL COULD MEET IN MORGANTOWN. I WILL NOT BE BACK UNTIL APRIL FROM FLORDIA. DEBORAH

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                    • #11
                      Hi

                      Deborah -I think it would be great for us all to get together sometime. It would be nice to actually meet others with IC.

                      DJRS - I am going to be in Charleston next month.

                      Hope everybody is well.

                      Louise
                      Louise
                      West Virginia Interstitial Cystitis/Prostatitis Support Group Leader
                      [email protected]

                      Comment


                      • #12
                        Louise,

                        I just saw your post. If you would like to get together while you're down here, email me and let me know! I haven't met anyone here with IC...Debbie

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                        • #13
                          Hello to those in WV with ic. I'm in Harrison Co., the Salem area, west of Clarksburg. Would love to get together face to face to discuss medical history and therapy! Charlotte

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                          • #14
                            IT WOULD BE NICE IF WE ALL COULD START A SUPPORT GROUP MEETINGS!! I AM GOING TO TRY TO GET HOLD OF THE UROLOGY DEPT AT THE RUBY IN MORGANTOWN. TO SEE IF THEY CAN HELP US TO GET SUPPORT GROUP STARTED THERE. I WILL NOT BE BACK HOME TILL MIDDLE OF APRIL. DEBORAH

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                            • #15
                              Hi I am from Tennessee but if you like to write I answer. [email protected] Take care be safe
                              katherine
                              Life is what you Make It .By being kind to every one and all creatures your life will be more pleasant. Live your life for GOD and if it were the last day you were alive becausse it maybe.

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