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  • Cricketmk3
    replied
    As I posted earlier, I live in Jacksonville, AL. I have a wonderful uro less than a mile from my house...Dr. Rosen. Check him out at www.rosenurology.com, click on "Bladder Control Program Info" and see that he recognizes IC as a "chronic, painful bladder condition". He diganosed me instantly and has been successfully treating me for two years. I think he's great.

    Leave a comment:


  • angelaharrell
    replied
    Hi Suzy,

    While Dr. Lloyd did not do my interstim implant, he is constantly readjusting & working with me in regards to the implant. He is a very patient man because that thing is more trouble than it's worth sometimes.

    He did a cystoscope & DMSO treatment for me on 3 occassions. I'm not gonna sugar coat it for you, it hurts! However, he puts me in the hospital to do the DMSO treatments so there is pain control. Without pain medicine, I don't think I could tolerate the procedure.

    He is very informed on IC, comes in a sits down & has this lengthy quesionaire that he fills out about you and then recommends treatment options after he examines you.

    My advice to you is to write down what tests you've had, get copies of those results, & copies of your medical history for your first visit. He'll ask you alot of questions and sometimes it's hard to recall everything during your visit, so be prepared.

    He is a specialist on IC and he offers so many different treatment options, some traditional, some experimental. Women from all over this country use Dr. Lloyd. I trust this man to the fullest extent. I've had 4 uro's since having bladder pain and he's the one that I refer newly diagnosed ICers to. I have a uro nearby for checkups & flares, but I travel twice to three times a year to see Dr. Lloyd.

    I had a hard time finding UAB the first time, because I'm not familiar with Birmingham. That was several years ago, but now what they will do for you is when you call to make your appointment, they will send you info about UAB with a map and a list of hotels nearby, some of the hotels even offer shuttle services.

    Good luck Suzy, please let me know how everything goes.

    Leave a comment:


  • csocain
    replied
    Hey, Suzy. Wish I could help you with more info about Dr. Lloyd, but Angela can give you more info than I can. You may want to pm her. My own urologist did a cysto and hydrodistension that gave him the IC diagnosis. We went straight to treatments after the diagnosis. The c/h wasn't too bad. Just took a few days to fully recover. Praying that you will find out for sure what your problems are. Blessings of hope and grace to you.

    Leave a comment:


  • Suzytoo
    replied
    Thanks Carolyn and Angel, I'll give him a call . Hope it's not too hard to find. I'm hoping he can do a cysto on me and maybe give me some answers. I'm just not satisfied that this is what I have. Has he done any kind of procedures on you guys and if so how did that turn out. Thanks so much. Suzy

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  • angelaharrell
    replied
    Suzy,

    I live in Dothan and drive to UAB to see Dr. Loyd. He is great and is very informed on IC! He is the only uro that has ever talked to me about my symptoms & questioned past treatments and is willing to try ANYTHING that might help. He has given me info on the IC diet and directed me to this website so that I could also educate myself. Like I said, he is wonderful. I've been seeing him for about 4 years and my only complaint is the 4 hour drive.

    Here's his contact info:

    Dr. Keith Lloyd, MD
    2000 6th Avenue South 5th floor
    Birmingham,AL 1-800-333-6543

    Best of Luck, feel free to ask me any questions!

    Leave a comment:


  • csocain
    replied
    Hey, Suzy, glad to hear from you. Although I live in Montgomery, I hear that there are some good doctors at UAB in Birmingham. Dr. Lloyd is one, I believe. Someone told me that there is an IC clinic connected with UAB. Dr. Lloyd may be in charge of it. Just a thought and something you might want to check into. I'll sure be praying that you find just the right doctor for you and that you get some relief. Please feel free to pm me anytime. It's always great to have someone who understands what we as ICers are going through. Blessings of hope and grace to you. Hope to hear from you.

    Leave a comment:


  • Suzytoo
    replied
    help

    Hi, I am also from Alabama. Muscle Shoals. Your right, people just don't understand how bad ic can be. It takes over your life and robs you of your joy. I have a doctor here,but he really seems to be into the prostate thing and doesn't seem to care to much about ic. I'm not even really sure if that is what I have. If any of you gals know of a good doctor in the Birmingham or Huntsville area please give me some names if they have helped you. I could travel that far. I'm praying for us all. Please holler back . Thanks, Suzy

    Leave a comment:


  • angelaharrell
    replied
    In Dothan

    Hello from Dothan. I'm an ICer for about 15 years, been diagnosed for 7.

    Although I have great Doctors, a cure or even relief seems like the elusive Pot of Gold. I educate myself about IC on the internet, books, & by chatting with other ICers.

    In September my husband and I reached a major decision in our lives. I quit my job to stay home & hopefully get better. At least now I can go to the bathroom my normal 15 times a day without feeling guilty or embarrassed. I can actually nap in the day if I had a rough night. I don't know how I made it as long as I did. I spent alot of weekends laying in bed from pure exhaustion, only to get up & go back to work again on Monday. IC robs your life of so much.

    But I look forward to spending more time at home and spending more time on getting better.

    Leave a comment:


  • DENISE31
    replied
    I Am So Glad To Hear That There Is More People In Alabama With Ic. I Live In Boaz Alabama. I Would To Love To Hear From Any Of Ya'll Any Time. I Have A Good Family Support But It Is Still Hard Sometimes For Them To Understand. I Will Be Praying For All Of Us

    Leave a comment:


  • blueemerald72
    replied
    Hi Dedra, thanks. I am sorry you are going through such a hard time. I know what that's like. My dr is also in birmingham. That seems to be the only place in AL to get treatment for IC. Gimme a yell anytime. I am so glad i found this board, I really thought I was the only person in the state with this mysterious "IC" condition. Everyone I would talk to at the dr office was from out of state. Anyway, thanks for the welcome

    Leave a comment:


  • dedrac
    replied
    Hi Tammie...Welcome aboard.

    Dedra

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  • blueemerald72
    replied
    Hey everyone, I live just NW of Huntsville in Ardmore. It's nice to know I'm not the only one here.

    Leave a comment:


  • Chips
    replied
    Hi Brandi,

    Glad you are here. We IC-ers need to stick together. I feel ok today. A little tired but not hurting as much.

    You do not live too far away. Of course, I do not travel a whole lot due to my IC.

    What are your hobbies?

    Dedra

    Leave a comment:


  • bpbennett
    replied
    Hello! I am not from AL but I live maybe 5 minutes from the border in north GA!

    Leave a comment:


  • Chips
    replied
    Hi again

    Welcome all...glad to have fellow Alabamians aboard and other supporters. IC has hit me hard since my chicken pox earlier in the year. It is just hard to maintain. I try to stay focused and positive. God has delivered me from so much and I am blessed to be walking, talking, and breathing. I know God has plans for me...and this is not going to rule my outlook on life.

    I am at a stand still with my IC because the instillations have not been working. My dr. will not suggest anything else. There are not that many dr.'s near me that work with IC patients. I am trying to hang in there. It is hard at times.

    That is it for now. Feel free to drop me a line.

    Dedra
    [email protected]

    Leave a comment:

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