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  • eternity32fla
    replied
    hi Hi everyone, I am new to this site. I am not new to IC I was diag. about 7 yrs ago. But I am sorta new to the area. I am really hopeing I can find someone to talk to. I live about 10 miles from the charlotte NC border I live in Rock Hill SC. But I really could use someone to talk to as I am going through a great deal right now and I need someone who may be understanding because my husband is definitly NOT. I am having alot of pain with the IC and I am going in for a biopsy cause the lymph nodes on the side of my neck (1 is the size of a grape and several others are swollen I have no infection and for some reason my thyroid level is very low. I have not been able to gain any weight for a year I am down to 93 and all I try to do is eat. I guess I am sorta scard cause the doc said he was concerned after he got my blood tests back ? I know that everything will be fine. But I just dont have anyone to talk to for 1 I dont know anyone here we moved here from Fla. Im sorry I dont mean to wine. But my husband used to be understanding I'm not sure what has happened. We have been together a long time high school sweethearts. 21 years now. My e-mail is [email protected] banghead hi

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  • Flowerchild
    replied
    Hey yall..I'm in Mebane,NC..originaly from Durham. I'm seeing Dr. Evans in Greensboro.
    I would LOVE to join a support group in my area.
    Know of any?
    Take care..Flowerchild :cool:

    Leave a comment:


  • sherrie
    replied
    Dee,

    I live in Hendersonville and was just diagnosed a week ago. Feel free to email me at: [email protected] anytime. also, have you heard about the support group in ash****le that a woman named nancy is trying to start? i'll keep you informed if you'll send me an email.

    good luck.

    sherrie
    :p

    Leave a comment:


  • L. Bellaire
    replied
    Allison,

    I live in NC, the Charlotte area, also. Would love to chat sometime. My email is [email protected]

    Lisa

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  • NC Stardust
    replied
    SsinNC, that's the doctor I have an appt with. Small world, right?
    Thank you for the info. I've heard good things about Dr. Evans and also that I'm lucky to be able to see him.

    Leave a comment:


  • SSinNC
    replied
    NC Stardust...Not sure who your recommendation was for in Greensboro, but my wife has been going to Dr. Robert Evans in G'boro for a few years. (We live in Durham). He is fantastic. I would recommend that you try to see him a few times if at all possible. We didn't have any luck with Duke or UNC either.

    Leave a comment:


  • NC Stardust
    replied
    Hi, this is my first post here. Not diag. yet but my gyn. and gastro. think I probably have IC. Four flare-ups since Dec.
    Gastro referred me to uro at Duke but it turns out they don't treat IC at Duke. Got a referral to a uro in Greensboro but that's pretty far away from me...and I'm wondering about Chapel Hill.

    Who treats IC in NC? There's no one listed in the physician registry. I signed up to be notified by email but in the meantime I'm wondering if any of you can suggest someone.
    I could write a book about what all I've been through so far. Actually had a nephrologist tell me if I didn't drink so much I wouldn't have to "go" so much. Probably have Sjogren's too...in the process of many diagnoses and none of them are good.
    Hope someone can help me out...

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  • DeeOwlgrl
    replied
    Dixie,
    I sent you a PM. Hope you are having a good day!

    Dee

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  • dixiefireball
    replied
    i'm in south carolina i would love to hear from anyone in this area.

    Leave a comment:


  • DeeOwlgrl
    replied
    Hi everyone! hi
    I'm in western NC, close to Lake Lure. Would love to hear from anyone in this area who has IC, or think they might have it.

    Dee

    Leave a comment:


  • Jenny Roffe
    replied
    Hello! I was wondering if there are anyone around south ga. I live here and can't find a decent dr and I would also thought it would be cool if someone did so then I wouldn't feel so alone.

    Leave a comment:


  • linscott
    replied
    i live in nashville, tn and was wondering if there are any support groups around here. also i would like to know if anyone out there with ic lives in tn. i would like to go to the meetings in knoxville but that is 150 miles from where i live. thanks lindsey

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  • vm
    replied
    There is a handful of us in WV and there is even a support group that has been newly formed. Go to: http://www.ic-network.com/cgi-bin/ub...;f=57;t=000090 and you'll see some of your fellow West Virginians. I think they are working on the next support group meeting for June or July.

    Leave a comment:


  • sunshine_77us
    replied
    I'm wondering if there is someone in West Virginia. I'm in Charleston, WV.

    Leave a comment:


  • NCGIRL
    started a topic Anybody in NC?

    Anybody in NC?

    I am so hoping to meet some people in NC (Charlotte area) to share IC experiences with...to encourage and support each other. Please let me know if you're interested. Thanks!

    -Allison
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