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sandymarie

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  • sandymarie

    Is there anyone in mississippi with ic . does anyone have spasms that is similar to labor contractions. If soo how do you deal with them. I mean rolling on the floor painful. er doctors hardly know what insticial cystitis is like or even that it exist.

  • #2
    Sandy,
    I am from Mississippi, but had to relocate due to katrina..To Louisiana
    But I am hoping to move back soon..

    As for the spasms you mention..Yes that is how they feel.. When mine start acting up, I have to get my heating pad out...
    Hugs
    Ronda

    ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


    Link to Patient Handbook:
    http://www.ic-network.com/handbook/

    Diet Reference Sheet:
    http://www.ic-network.com/diet/icndi...tsheet0909.pdf

    Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

    Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

    Meds I have Tried:
    Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
    Lexapro< Bad reaction to this med!
    Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

    Dx With IC in Nov 2006 with Hydro/Cysto
    Hydro/Cysto Caused Bladder to Rupture.

    Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



    ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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    • #3
      Yes I have spasms

      I am not from Mississippi, but I do have bladder spasms . I also use heating pad and sometimes a b & O . The doctor done a urodramtic study on me he could not believe the amount of spasms my bladder registered.
      They use ditropan and the other medicine like that they all make me dizzy so I could not use them .
      Katherine
      Life is what you Make It .By being kind to every one and all creatures your life will be more pleasant. Live your life for GOD and if it were the last day you were alive becausse it maybe.

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