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  • #1

    Looking for some Floridians...

    Hi all
    I am just trying to see if there any other Ic'ers in my area. I am on the East coast of Florida, a little north of West Palm Beach. Anyone out there???
    Karen
    Currently Taking:
    20 mg Celexa
    fentanyl patch 12.5 mcg chgd every 3 days
    morphine IR 15 MG, up to 3x daily
    Xanax 1mg as needed (not taken daily)
    900 MG Oxycarbizine (mood disorder)
    300 MG Welbutrin
    Tizanidine 4 mg up to 20 mg daily as need
    Prevacid 30 mg
    Ambien as needed

    my heating pad is my best friend, use daily on my lower back & pelvic area
    blessed to be able to receive massage & Amma , along with Avazzia therapy 3x weekly

    Been diagnosed for 10 years now, consider myself pretty well versed in this disease & would love to help out with new IC sisters or brothers, feel free to message me.
    Tags: None
  • #2
    Hi There Floridamom, I'm a fellow Floridian, but live on the Southwest coast, near Fort Myers. I think you're (?) over an hour or so away?

    Let me know if ya wanna yak anytime! ~ Chris
    Thank You all so much to everyone here for all your sharing, caring and support!
    < My "Bear"
    CurrentTreatments:
    Started herbal teas 6/2/06 Marshmallow root, comfrey root, and catnip. 6/25/06 added Mullein Leaf Powder to tea.
    IC Diet
    Hydroxyzine 50 or 100mg at night (Is restarted)
    Zoloft 100mg 4/8/07 (Is restarted)
    Klonopin 1/2 mg 4 X Day (started 3/17/07)
    Past Treatments: Amitriptyline, Neurontin, Hytrin, Heparin instills (was Dc'd after 5 weekly tx's due to severe urethritis), Superior hypogastric plexus block, E-stim, Elmiron instills (started 4/18/06-Dc'd 5/30/06 due to severe urethritis/infection requiring foley cath @ home 4 days), Oxycontin (oxycodone) (4/18/06)-pain (Dc'd 5/31/06), Levsin S/L (hyoscyamine) (3/17/06)-antispasmotic (Dc'd 5/31/06), Elmiron (1/24/06)-(Dc'd 6/25/06), Prelief, Zanaflex 4mg for PFD (Dc'd 10/1/06), CystaQ 1 in am & 1 in pm with food(started 5/12/06-increased to 2 in am & 1 in pm 9/20/06---Dc'd 10/18/06), Lyrica (started 10/26/06 up to 600 mg-Dc'd 12/4/06 due to urinary retention), Vicodin (hydrocodone) ES PRN for pain (Dc'd 1/4/07); Cymbalta 30mg (start 1/17/07) up to 60mg in am (1/26/07) (D/c'd 3/17/07); Ativan 1mg(Lorazepam)- PRN Anxiety (changed to Klonopin 1/2mg 4Xday 3/17/07); Pyridium (phenazopyridine) PRN-bladder analgesic; MSM (6/12/06) 1000mg after breakfast & dinner (Dc'd 3/15/07); Acidophilus (Natrol) 100mg. 1 capsule 1/2 hour before breakfast (5/20/06) (Dc'd 3/17/07)

    Added BACK in - Atarax (hydroxyzine) (started 4/6/06 Dc'd 5/31/06) Restart 50mg at night 8/18/06, up to 100mg at night 1/4/07. Zoloft 100mg-Depression (Dc'd 7/25/06) Restart 4/8/07) 100mg.
    Dx'd: Dec 05 (Positive PST in November and positive cystoscopy in Dec) Symptoms: Pain, frequency, urgency & retention

    My Myspace page - http://www.myspace.com/42620225

    Comment

    • #3
      Hi I am going will be in Miami on May 1st. to May 7th. Maybe we can meet each other when I am there. I am coming there to see Dr Gousse for Botox treatment. Let me know if we can meet each other. E-mail at [email protected]

      Deborah Bush
      I have IC, the IBS, Heartburn, High bloodpressure,thyrod problems, depression and clorties pain.

      Comment

      • #4
        hello!

        Haha, I just wanted to say hello to you too! Nope I am not from Florida, but very often I wish I was! Must be Nice! Warmest regards... not like Florida needs the warmth or anything, but perhaps you wouldn't mind it!
        Love is a fruit in season at all times, within reach of every hand. ~ The Blessed Mother Teresa

        Status: Diagnosed October 2006 via cystoscopy with hydrodistention. Max anesthetized bladder capacity only 250 cc's. Mast cells and pinpoint bleeding found.

        Remission for me means less pain for more days than not. Frequency is inevitable with a bladder this tiny! That is ok though. The difference between when I was diagnosed and now, is that I have embraced that fact. Me and the loo, we are one.

        Comment

        • #5
          Hi back atcha!! We definitley dont need the warmth (high 80's here) but bring on the RAIN..we are under some severe water restrictions, bad bad drought:-(
          As for the lady who was coming into Miami in May...Miami is a good 2 hours away from me & my car travels right now are limited to in town, about 40 minutes is all I can muster with my bladder (of course that is with peeing on the side of the road in my trusty pee cup). I dont know how far you can drive up, but I could probably manage to get to Jupiter/Palm Beach area!!
          Karen
          Currently Taking:
          20 mg Celexa
          fentanyl patch 12.5 mcg chgd every 3 days
          morphine IR 15 MG, up to 3x daily
          Xanax 1mg as needed (not taken daily)
          900 MG Oxycarbizine (mood disorder)
          300 MG Welbutrin
          Tizanidine 4 mg up to 20 mg daily as need
          Prevacid 30 mg
          Ambien as needed

          my heating pad is my best friend, use daily on my lower back & pelvic area
          blessed to be able to receive massage & Amma , along with Avazzia therapy 3x weekly

          Been diagnosed for 10 years now, consider myself pretty well versed in this disease & would love to help out with new IC sisters or brothers, feel free to message me.

          Comment

          • #6
            Hi Karen--
            I live on the East Coast as well! I am north of you(Merritt Island)which is in the Space Coast area(Melbourne, Cocoa, Cocoa Beach, Rockledge, etc.)Are you close to Vero Beach at all? I take alot of business trips that way.

            Hugs,
            Barb
            (Babs passed away in April 2009. We honor her memory and remember her fondly. - Jill O. ICN President & Founder)

            [SIZE="1"]Proud mama of a gift named Lindsey who taught me through her autism what is important in life:angel:
            :angel: IC Angel Volunteer Coordinator :angel:
            :) Contact me via PM or e-mail if you would like to help
            I have learned all about life in 3 words: It goes on! :D--Robert Frost
            PCOS 7/85
            RSD 7/94 :headbang:
            Endometriosis 9/98 :toilet:
            Antiphospholipid antibody syndrome 9/99
            Kidney stones--too many to count
            Factor V Leiden mutation 10/02
            IC 6/03 :evilsmile
            Deep Venous Thrombosis and Cellulitis 12/05 :loco: DVT and Greenfield Placed 3/14/08
            "Spirit is an invisible force made visible in all of life"--Maya Angelou
            "Ohana means family--no one gets left behind or forgotten." Stitch[/SIZE][/SIZE][/SIZE]

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