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Anyone from Naples/Fort Myers Area?

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  • Anyone from Naples/Fort Myers Area?

    Hello Florida IC Sisters... I was diagnosed with IC and pelvic floor dysfunction and would like to know if there is anyone in the Naples/Fort Myers area that is also dealing with this. Thanks


  • #2
    Hi there Renee, So very nice to "meet" you!!! I've been a member here for a while now, earlier I was just PMing someone then decided to quickly check the new posts. I almost wasn't gonna cause I'm HURTIN and am gonna get off this thing for now. But I did, and what a surprise to see your post at the top of the list! (I tried to reply right away, then I couldn't get on for a couple of hours.)

    I just moved from Fort Myers to Cape Coral (southeast part)!!! Now that's CLOSE, and I've never heard of anyone closer! I have IC, PFD, and possible Pudendal Nerve Entrapment/Neuralgia. I'm suffering immensely, and am so excited about meeting someone on here that's close by! Please girl, PM me anytime! Hope to talk to you soon!

    Hugs to you my neighbor ! ~ Chris
    Thank You all so much to everyone here for all your sharing, caring and support!
    < My "Bear"
    Started herbal teas 6/2/06 Marshmallow root, comfrey root, and catnip. 6/25/06 added Mullein Leaf Powder to tea.
    IC Diet
    Hydroxyzine 50 or 100mg at night (Is restarted)
    Zoloft 100mg 4/8/07 (Is restarted)
    Klonopin 1/2 mg 4 X Day (started 3/17/07)
    Past Treatments: Amitriptyline, Neurontin, Hytrin, Heparin instills (was Dc'd after 5 weekly tx's due to severe urethritis), Superior hypogastric plexus block, E-stim, Elmiron instills (started 4/18/06-Dc'd 5/30/06 due to severe urethritis/infection requiring foley cath @ home 4 days), Oxycontin (oxycodone) (4/18/06)-pain (Dc'd 5/31/06), Levsin S/L (hyoscyamine) (3/17/06)-antispasmotic (Dc'd 5/31/06), Elmiron (1/24/06)-(Dc'd 6/25/06), Prelief, Zanaflex 4mg for PFD (Dc'd 10/1/06), CystaQ 1 in am & 1 in pm with food(started 5/12/06-increased to 2 in am & 1 in pm 9/20/06---Dc'd 10/18/06), Lyrica (started 10/26/06 up to 600 mg-Dc'd 12/4/06 due to urinary retention), Vicodin (hydrocodone) ES PRN for pain (Dc'd 1/4/07); Cymbalta 30mg (start 1/17/07) up to 60mg in am (1/26/07) (D/c'd 3/17/07); Ativan 1mg(Lorazepam)- PRN Anxiety (changed to Klonopin 1/2mg 4Xday 3/17/07); Pyridium (phenazopyridine) PRN-bladder analgesic; MSM (6/12/06) 1000mg after breakfast & dinner (Dc'd 3/15/07); Acidophilus (Natrol) 100mg. 1 capsule 1/2 hour before breakfast (5/20/06) (Dc'd 3/17/07)

    Added BACK in - Atarax (hydroxyzine) (started 4/6/06 Dc'd 5/31/06) Restart 50mg at night 8/18/06, up to 100mg at night 1/4/07. Zoloft 100mg-Depression (Dc'd 7/25/06) Restart 4/8/07) 100mg.
    Dx'd: Dec 05 (Positive PST in November and positive cystoscopy in Dec) Symptoms: Pain, frequency, urgency & retention

    My Myspace page -


    • #3
      I just thought I would let you know I stay in Fort Myers and also attend Cyprus Lake High School when I was 17 years old.
      I am from Canada and my parents went every six month of the year to Florida , we also live in Cape Coral so all of this is bringing lots of memories back to me.
      I did meet lots of friends and did keep in contact with them for years but lost contact with them all, I would love to be able to get to see them again too..but I know it is hard as many of them are now married and have new last names so it is very hard to find them now..

      Cheers, Debbie
      Thinking positive has got me through to another day!!