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This forum is dead. I know theres people out there from tn with ic...
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Newly IC diagnosed as of February 2011.
Medications I'm on that seem to work:
Zoloft- one once a day
Butrans pain patch 5 mcg (THANK GOD FOR WHOEVER INVENTED THIS!SO MUCH PAIN RELIEF ITS UNREAL,I AM IN NO PAIN AT ALL UNLESS I STRESS OR SCREW UP ON THE DIET)
Failed Meds:
Elmiron-after 4 months,digestive side effects got to be too much
tramadol-allergic
DMSO treatments(5-6)
probiotics
THERAPIES:gardening,cooking,IC Diet,Counseling,Lots of warm baths,stress reduction,heating pad or ice packs,meditation/deep breathing,listening to relaxing music,having fun on pain free days,drinking chamomile or peppermint tea,pelvic floor physical therapy
AROMATHERAPY-candles,incense
Village Naturals Aches and Pains Peppermint Bath Salts
Johnson and Johnsons Lavender Melt Away Stress Body Wash/Lotion
ACUPUNCTURE/HERBS
Significant pain relief so far.
MAY TRY:yoga,swimming/hydrotherapy and anti-candida diet if i can kick my sugar addiction
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***TO MY IC SISTERS AND BROTHERS:WE ARE OUR OWN ADVOCATES!,PLEASE DO AS MUCH RESEARCH ON YOUR OWN AS POSSIBLE AND TRY DIFFERENT TREATMENTS TO GET WELL.NOT ONE TREATMENT WORKS FOR EVERYONE.MOST IMPORTANTLY,TRY TO KEEP A POSITIVE ATTITUDE,DISTANCE YOURSELF FROM NEGATIVITY/NEGATIVE PEOPLE AND NEVER,EVER GIVE UP!***
Add me on facebook Angela Hasic
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Lord, make me an instrument of your peace;
where there is hatred, let me sow love;
when there is injury, pardon;
where there is doubt, faith;
where there is despair, hope;
where there is darkness, light;
and where there is sadness, joy.
Grant that I may not so much seek
to be consoled as to console;
to be understood, as to understand,
to be loved as to love;
for it is in giving that we receive,
it is in pardoning that we are pardoned,
and it is in dying [to ourselves] that we are born to eternal life.
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Hi, I am in Tennessee. Where are you?treatment:
-I follow the IC diet to the letter
-acupuncture and chinese herbs
-Prelief
-UTA
-instillations as needed
-beginning yoga and specialized yoga for breathing and relaxation
-Wellbutrin
-Klonopin
main symptoms: pain and burning -
I'm in Chattanooga, you?Newly IC diagnosed as of February 2011.
Medications I'm on that seem to work:
Zoloft- one once a day
Butrans pain patch 5 mcg (THANK GOD FOR WHOEVER INVENTED THIS!SO MUCH PAIN RELIEF ITS UNREAL,I AM IN NO PAIN AT ALL UNLESS I STRESS OR SCREW UP ON THE DIET)
Failed Meds:
Elmiron-after 4 months,digestive side effects got to be too much
tramadol-allergic
DMSO treatments(5-6)
probiotics
THERAPIES:gardening,cooking,IC Diet,Counseling,Lots of warm baths,stress reduction,heating pad or ice packs,meditation/deep breathing,listening to relaxing music,having fun on pain free days,drinking chamomile or peppermint tea,pelvic floor physical therapy
AROMATHERAPY-candles,incense
Village Naturals Aches and Pains Peppermint Bath Salts
Johnson and Johnsons Lavender Melt Away Stress Body Wash/Lotion
ACUPUNCTURE/HERBS
Significant pain relief so far.
MAY TRY:yoga,swimming/hydrotherapy and anti-candida diet if i can kick my sugar addiction
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
***TO MY IC SISTERS AND BROTHERS:WE ARE OUR OWN ADVOCATES!,PLEASE DO AS MUCH RESEARCH ON YOUR OWN AS POSSIBLE AND TRY DIFFERENT TREATMENTS TO GET WELL.NOT ONE TREATMENT WORKS FOR EVERYONE.MOST IMPORTANTLY,TRY TO KEEP A POSITIVE ATTITUDE,DISTANCE YOURSELF FROM NEGATIVITY/NEGATIVE PEOPLE AND NEVER,EVER GIVE UP!***
Add me on facebook Angela Hasic
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Lord, make me an instrument of your peace;
where there is hatred, let me sow love;
when there is injury, pardon;
where there is doubt, faith;
where there is despair, hope;
where there is darkness, light;
and where there is sadness, joy.
Grant that I may not so much seek
to be consoled as to console;
to be understood, as to understand,
to be loved as to love;
for it is in giving that we receive,
it is in pardoning that we are pardoned,
and it is in dying [to ourselves] that we are born to eternal life.
Comment
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I'm near Nashville.treatment:
-I follow the IC diet to the letter
-acupuncture and chinese herbs
-Prelief
-UTA
-instillations as needed
-beginning yoga and specialized yoga for breathing and relaxation
-Wellbutrin
-Klonopin
main symptoms: pain and burningComment
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I am not in TN, but I AM in Southern Ky. I live in Bowling Green.I am not a medical professional. I do not give medical advice. In all cases, I urge you to talk to your Dr. about your treatment options.
D/Xed 2003 with IC. Also have the co-existing condtions of VV, Vulvadynia, Lupus, Fibro, GERD, CPP, Endo, & Adhesions, and Depression
Meds: Estrogel (due to total Hyster)
The meds r/xed by my Pain Dr. from the Pain Clinic are as follows: Morphine ER and IR, Baclofen, and Lyrica and Seroquel (used off-label as a sleeping pill, but it also helps with depression)
(I listed my meds in case someone reading this has been told like so many ICers that Drs dont r/x pain meds for IC.) I want you to know that there ARE tons of us who are also dealing w/this disease and the pain and many of us ARE on pain meds.)
John 3:16 For God so loved the world that he gave his only begotten son, that whoever believes in him shall not perish but have everlasting life.Comment
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Im in Memphis and have the worst medical team possible right now. I need major help in finding doctors and pain clinics to help me! We are even considering of moving. I can not handle this daily pain any longer. Im just so done with it.
was finally diagnosed on 3-19-09 after 7.5 years of misery. 
Diagnoses
IC
PFD
IBS
Depression/Anxiety
Lumbar Lordosis
Now getting tested for MS on Jan. 27th. day before my 30th bday!
Meds I'm on
Ditropan ER
Elavil 25mg -just stopped this one it wasnt helping
glucosamine vitamin (for joints, my knee)
Prelief, when needed
Vistaril 25mg
Valium
Zoloft 100 mg
Pyridium-makes your pee bright orange!
Birth Control
OTC Allergy meds
Fentanyl Patch for pain, 50mg
Oxycodone for breakthrough pain 5mg right now but need to go up!
Had to stop my PT due to insurance
TENS unit
Im really considering the Interstim but doctor isnt on board yet with it. Im also in process of filing for disability. *update is I had the Interstim trial and it worked well for me. The perm. surgery was scheduled but before I could get it my Urologist stopped being my doctor for unknown reasons! It really makes me angry. So I am still searching for a doctor to do the Interstim on me. I am in the appeal process with disability!*
Meds I've tried since being diagnosed (there have been so many over the years though)
Sanctura, had to stop taking after 2 days, horrible retention
Enablex, just very expensive
Librax, its expensive and wasnt sure it was helping me
MS Contin, made my joints very stiff!!
Did 4 weeks of Elimron instills, didnt help at all!
Elmiron, took it for 2 months and I was losing way to much hair so we stopped.
Comment
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I live in elizabethton, tn. I have a sister-n-law that lives in bowling green too.Comment
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Hi from Memphis!
Angela, if you're still around please send me a PM
anyone here from Memphis??
LaurenKeep telling others about IC! Education is the way to the cure!
LAUREN in MEMPHISComment
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Im in Memphis! Where about in Memphis are you Lauren and what doctor do you see?
Dayna was finally diagnosed on 3-19-09 after 7.5 years of misery.
Diagnoses
IC
PFD
IBS
Depression/Anxiety
Lumbar Lordosis
Now getting tested for MS on Jan. 27th. day before my 30th bday!
Meds I'm on
Ditropan ER
Elavil 25mg -just stopped this one it wasnt helping
glucosamine vitamin (for joints, my knee)
Prelief, when needed
Vistaril 25mg
Valium
Zoloft 100 mg
Pyridium-makes your pee bright orange!
Birth Control
OTC Allergy meds
Fentanyl Patch for pain, 50mg
Oxycodone for breakthrough pain 5mg right now but need to go up!
Had to stop my PT due to insurance
TENS unit
Im really considering the Interstim but doctor isnt on board yet with it. Im also in process of filing for disability. *update is I had the Interstim trial and it worked well for me. The perm. surgery was scheduled but before I could get it my Urologist stopped being my doctor for unknown reasons! It really makes me angry. So I am still searching for a doctor to do the Interstim on me. I am in the appeal process with disability!*
Meds I've tried since being diagnosed (there have been so many over the years though)
Sanctura, had to stop taking after 2 days, horrible retention
Enablex, just very expensive
Librax, its expensive and wasnt sure it was helping me
MS Contin, made my joints very stiff!!
Did 4 weeks of Elimron instills, didnt help at all!
Elmiron, took it for 2 months and I was losing way to much hair so we stopped.
Comment
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I'm in Memphis and would like to know who you see as well, can you Pm me?IC diagnosis 3 weeks ago.
Vesicare 10 mg once daily
IBS and Gerd-Zegerid
IC diet
Elmiron 100 mg three daily
Hydroxyzine 25 mg at night
Amitriptyline 10mg at night
Diovan 60/12.5 daily
Topral 50 mg daily
Zoloft 100 mg at night
Klonopin .5 twice dailyComment
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Memphians!
I used to go to the assembly line Conrad Pearson but now I go to Rusty Shappley in Germantown. Super nice young guy who knows a lot bc went to school at Columbia & Harvard where they used updated treatments.
I'm also starting to see an obgyn/pelvic pain spec Dr Ling bc I'm 10 wks preg. I'm being sent to a pain specialist, I think Dr May?, by my URO bc I'm pregnant he wants my pain mgmt done by a specialist. Hope that answers everything
I'll try to PM y'all! I may have forgotten how.
LaurenKeep telling others about IC! Education is the way to the cure! LAUREN in MEMPHISComment
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I started at Dr. Shappleys 2 years ago and now Im going back to him next week for a consult to get the Interstim surgery. My Uro now Dr. Portera doesnt do that surgery. I have always wanted to go to Dr. Ling and them but they dont take my insurance but I hear they are wonderful. my mother in law has gone to Dr. Conrad for years, they also dont take my insurance. was finally diagnosed on 3-19-09 after 7.5 years of misery.
Diagnoses
IC
PFD
IBS
Depression/Anxiety
Lumbar Lordosis
Now getting tested for MS on Jan. 27th. day before my 30th bday!
Meds I'm on
Ditropan ER
Elavil 25mg -just stopped this one it wasnt helping
glucosamine vitamin (for joints, my knee)
Prelief, when needed
Vistaril 25mg
Valium
Zoloft 100 mg
Pyridium-makes your pee bright orange!
Birth Control
OTC Allergy meds
Fentanyl Patch for pain, 50mg
Oxycodone for breakthrough pain 5mg right now but need to go up!
Had to stop my PT due to insurance
TENS unit
Im really considering the Interstim but doctor isnt on board yet with it. Im also in process of filing for disability. *update is I had the Interstim trial and it worked well for me. The perm. surgery was scheduled but before I could get it my Urologist stopped being my doctor for unknown reasons! It really makes me angry. So I am still searching for a doctor to do the Interstim on me. I am in the appeal process with disability!*
Meds I've tried since being diagnosed (there have been so many over the years though)
Sanctura, had to stop taking after 2 days, horrible retention
Enablex, just very expensive
Librax, its expensive and wasnt sure it was helping me
MS Contin, made my joints very stiff!!
Did 4 weeks of Elimron instills, didnt help at all!
Elmiron, took it for 2 months and I was losing way to much hair so we stopped.
Comment
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glad to see the tn forum bein put to use again im still hereNewly IC diagnosed as of February 2011.
Medications I'm on that seem to work:
Zoloft- one once a day
Butrans pain patch 5 mcg (THANK GOD FOR WHOEVER INVENTED THIS!SO MUCH PAIN RELIEF ITS UNREAL,I AM IN NO PAIN AT ALL UNLESS I STRESS OR SCREW UP ON THE DIET)
Failed Meds:
Elmiron-after 4 months,digestive side effects got to be too much
tramadol-allergic
DMSO treatments(5-6)
probiotics
THERAPIES:gardening,cooking,IC Diet,Counseling,Lots of warm baths,stress reduction,heating pad or ice packs,meditation/deep breathing,listening to relaxing music,having fun on pain free days,drinking chamomile or peppermint tea,pelvic floor physical therapy
AROMATHERAPY-candles,incense
Village Naturals Aches and Pains Peppermint Bath Salts
Johnson and Johnsons Lavender Melt Away Stress Body Wash/Lotion
ACUPUNCTURE/HERBS
Significant pain relief so far.
MAY TRY:yoga,swimming/hydrotherapy and anti-candida diet if i can kick my sugar addiction
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
***TO MY IC SISTERS AND BROTHERS:WE ARE OUR OWN ADVOCATES!,PLEASE DO AS MUCH RESEARCH ON YOUR OWN AS POSSIBLE AND TRY DIFFERENT TREATMENTS TO GET WELL.NOT ONE TREATMENT WORKS FOR EVERYONE.MOST IMPORTANTLY,TRY TO KEEP A POSITIVE ATTITUDE,DISTANCE YOURSELF FROM NEGATIVITY/NEGATIVE PEOPLE AND NEVER,EVER GIVE UP!***
Add me on facebook Angela Hasic
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Lord, make me an instrument of your peace;
where there is hatred, let me sow love;
when there is injury, pardon;
where there is doubt, faith;
where there is despair, hope;
where there is darkness, light;
and where there is sadness, joy.
Grant that I may not so much seek
to be consoled as to console;
to be understood, as to understand,
to be loved as to love;
for it is in giving that we receive,
it is in pardoning that we are pardoned,
and it is in dying [to ourselves] that we are born to eternal life.
Comment
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Hi fellow tn ppl
Im from the west tn area...Paris tn. LBL? anyone from anywhere near me bc I would love to get a support group started!
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Not in TN but just across the border in North Carolina in Canton. About 30 miles from the state line.Comment
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