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  • Tennessee come out from hiding!!!

    This forum is dead. I know theres people out there from tn with ic...
    Newly IC diagnosed as of February 2011.

    Medications I'm on that seem to work:
    Zoloft- one once a day
    Butrans pain patch 5 mcg (THANK GOD FOR WHOEVER INVENTED THIS!SO MUCH PAIN RELIEF ITS UNREAL,I AM IN NO PAIN AT ALL UNLESS I STRESS OR SCREW UP ON THE DIET)

    Failed Meds:
    Elmiron-after 4 months,digestive side effects got to be too much
    tramadol-allergic
    DMSO treatments(5-6)
    probiotics

    THERAPIES:gardening,cooking,IC Diet,Counseling,Lots of warm baths,stress reduction,heating pad or ice packs,meditation/deep breathing,listening to relaxing music,having fun on pain free days,drinking chamomile or peppermint tea,pelvic floor physical therapy
    AROMATHERAPY-candles,incense
    Village Naturals Aches and Pains Peppermint Bath Salts
    Johnson and Johnsons Lavender Melt Away Stress Body Wash/Lotion

    ACUPUNCTURE/HERBS
    Significant pain relief so far.

    MAY TRY:yoga,swimming/hydrotherapy and anti-candida diet if i can kick my sugar addiction
    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
    ***TO MY IC SISTERS AND BROTHERS:WE ARE OUR OWN ADVOCATES!,PLEASE DO AS MUCH RESEARCH ON YOUR OWN AS POSSIBLE AND TRY DIFFERENT TREATMENTS TO GET WELL.NOT ONE TREATMENT WORKS FOR EVERYONE.MOST IMPORTANTLY,TRY TO KEEP A POSITIVE ATTITUDE,DISTANCE YOURSELF FROM NEGATIVITY/NEGATIVE PEOPLE AND NEVER,EVER GIVE UP!***

    Add me on facebook Angela Hasic

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
    Lord, make me an instrument of your peace;
    where there is hatred, let me sow love;
    when there is injury, pardon;
    where there is doubt, faith;
    where there is despair, hope;
    where there is darkness, light;
    and where there is sadness, joy.
    Grant that I may not so much seek
    to be consoled as to console;
    to be understood, as to understand,
    to be loved as to love;
    for it is in giving that we receive,
    it is in pardoning that we are pardoned,
    and it is in dying [to ourselves] that we are born to eternal life.

  • #2
    Hi, I am in Tennessee. Where are you?
    treatment:
    -I follow the IC diet to the letter
    -acupuncture and chinese herbs
    -Prelief
    -UTA
    -instillations as needed
    -beginning yoga and specialized yoga for breathing and relaxation
    -Wellbutrin
    -Klonopin


    main symptoms: pain and burning

    Comment


    • #3
      I'm in Chattanooga, you?
      Newly IC diagnosed as of February 2011.

      Medications I'm on that seem to work:
      Zoloft- one once a day
      Butrans pain patch 5 mcg (THANK GOD FOR WHOEVER INVENTED THIS!SO MUCH PAIN RELIEF ITS UNREAL,I AM IN NO PAIN AT ALL UNLESS I STRESS OR SCREW UP ON THE DIET)

      Failed Meds:
      Elmiron-after 4 months,digestive side effects got to be too much
      tramadol-allergic
      DMSO treatments(5-6)
      probiotics

      THERAPIES:gardening,cooking,IC Diet,Counseling,Lots of warm baths,stress reduction,heating pad or ice packs,meditation/deep breathing,listening to relaxing music,having fun on pain free days,drinking chamomile or peppermint tea,pelvic floor physical therapy
      AROMATHERAPY-candles,incense
      Village Naturals Aches and Pains Peppermint Bath Salts
      Johnson and Johnsons Lavender Melt Away Stress Body Wash/Lotion

      ACUPUNCTURE/HERBS
      Significant pain relief so far.

      MAY TRY:yoga,swimming/hydrotherapy and anti-candida diet if i can kick my sugar addiction
      ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
      ***TO MY IC SISTERS AND BROTHERS:WE ARE OUR OWN ADVOCATES!,PLEASE DO AS MUCH RESEARCH ON YOUR OWN AS POSSIBLE AND TRY DIFFERENT TREATMENTS TO GET WELL.NOT ONE TREATMENT WORKS FOR EVERYONE.MOST IMPORTANTLY,TRY TO KEEP A POSITIVE ATTITUDE,DISTANCE YOURSELF FROM NEGATIVITY/NEGATIVE PEOPLE AND NEVER,EVER GIVE UP!***

      Add me on facebook Angela Hasic

      ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
      Lord, make me an instrument of your peace;
      where there is hatred, let me sow love;
      when there is injury, pardon;
      where there is doubt, faith;
      where there is despair, hope;
      where there is darkness, light;
      and where there is sadness, joy.
      Grant that I may not so much seek
      to be consoled as to console;
      to be understood, as to understand,
      to be loved as to love;
      for it is in giving that we receive,
      it is in pardoning that we are pardoned,
      and it is in dying [to ourselves] that we are born to eternal life.

      Comment


      • #4
        I'm near Nashville.
        treatment:
        -I follow the IC diet to the letter
        -acupuncture and chinese herbs
        -Prelief
        -UTA
        -instillations as needed
        -beginning yoga and specialized yoga for breathing and relaxation
        -Wellbutrin
        -Klonopin


        main symptoms: pain and burning

        Comment


        • #5
          I am not in TN, but I AM in Southern Ky. I live in Bowling Green.
          I am not a medical professional. I do not give medical advice. In all cases, I urge you to talk to your Dr. about your treatment options.

          D/Xed 2003 with IC. Also have the co-existing condtions of VV, Vulvadynia, Lupus, Fibro, GERD, CPP, Endo, & Adhesions, and Depression

          Meds: Estrogel (due to total Hyster)
          The meds r/xed by my Pain Dr. from the Pain Clinic are as follows: Morphine ER and IR, Baclofen, and Lyrica and Seroquel (used off-label as a sleeping pill, but it also helps with depression)


          (I listed my meds in case someone reading this has been told like so many ICers that Drs dont r/x pain meds for IC.) I want you to know that there ARE tons of us who are also dealing w/this disease and the pain and many of us ARE on pain meds.)


          John 3:16 For God so loved the world that he gave his only begotten son, that whoever believes in him shall not perish but have everlasting life.

          Comment


          • #6
            Im in Memphis and have the worst medical team possible right now. I need major help in finding doctors and pain clinics to help me! We are even considering of moving. I can not handle this daily pain any longer. Im just so done with it.
            was finally diagnosed on 3-19-09 after 7.5 years of misery.

            Diagnoses
            IC
            PFD
            IBS
            Depression/Anxiety
            Lumbar Lordosis
            Now getting tested for MS on Jan. 27th. day before my 30th bday!

            Meds I'm on
            Ditropan ER
            Elavil 25mg -just stopped this one it wasnt helping
            glucosamine vitamin (for joints, my knee)
            Prelief, when needed
            Vistaril 25mg
            Valium
            Zoloft 100 mg
            Pyridium-makes your pee bright orange!
            Birth Control
            OTC Allergy meds
            Fentanyl Patch for pain, 50mg
            Oxycodone for breakthrough pain 5mg right now but need to go up!
            Had to stop my PT due to insurance
            TENS unit

            Im really considering the Interstim but doctor isnt on board yet with it. Im also in process of filing for disability. *update is I had the Interstim trial and it worked well for me. The perm. surgery was scheduled but before I could get it my Urologist stopped being my doctor for unknown reasons! It really makes me angry. So I am still searching for a doctor to do the Interstim on me. I am in the appeal process with disability!*


            Meds I've tried since being diagnosed (there have been so many over the years though)
            Sanctura, had to stop taking after 2 days, horrible retention
            Enablex, just very expensive
            Librax, its expensive and wasnt sure it was helping me
            MS Contin, made my joints very stiff!!
            Did 4 weeks of Elimron instills, didnt help at all!
            Elmiron, took it for 2 months and I was losing way to much hair so we stopped.

            Comment


            • #7
              I live in elizabethton, tn. I have a sister-n-law that lives in bowling green too.

              Comment


              • #8
                Hi from Memphis!

                Angela, if you're still around please send me a PM anyone here from Memphis??

                Lauren
                Keep telling others about IC! Education is the way to the cure! LAUREN in MEMPHIS

                Comment


                • #9
                  Im in Memphis! Where about in Memphis are you Lauren and what doctor do you see?

                  Dayna
                  was finally diagnosed on 3-19-09 after 7.5 years of misery.

                  Diagnoses
                  IC
                  PFD
                  IBS
                  Depression/Anxiety
                  Lumbar Lordosis
                  Now getting tested for MS on Jan. 27th. day before my 30th bday!

                  Meds I'm on
                  Ditropan ER
                  Elavil 25mg -just stopped this one it wasnt helping
                  glucosamine vitamin (for joints, my knee)
                  Prelief, when needed
                  Vistaril 25mg
                  Valium
                  Zoloft 100 mg
                  Pyridium-makes your pee bright orange!
                  Birth Control
                  OTC Allergy meds
                  Fentanyl Patch for pain, 50mg
                  Oxycodone for breakthrough pain 5mg right now but need to go up!
                  Had to stop my PT due to insurance
                  TENS unit

                  Im really considering the Interstim but doctor isnt on board yet with it. Im also in process of filing for disability. *update is I had the Interstim trial and it worked well for me. The perm. surgery was scheduled but before I could get it my Urologist stopped being my doctor for unknown reasons! It really makes me angry. So I am still searching for a doctor to do the Interstim on me. I am in the appeal process with disability!*


                  Meds I've tried since being diagnosed (there have been so many over the years though)
                  Sanctura, had to stop taking after 2 days, horrible retention
                  Enablex, just very expensive
                  Librax, its expensive and wasnt sure it was helping me
                  MS Contin, made my joints very stiff!!
                  Did 4 weeks of Elimron instills, didnt help at all!
                  Elmiron, took it for 2 months and I was losing way to much hair so we stopped.

                  Comment


                  • #10
                    I'm in Memphis and would like to know who you see as well, can you Pm me?
                    IC diagnosis 3 weeks ago.
                    Vesicare 10 mg once daily
                    IBS and Gerd-Zegerid
                    IC diet
                    Elmiron 100 mg three daily
                    Hydroxyzine 25 mg at night
                    Amitriptyline 10mg at night
                    Diovan 60/12.5 daily
                    Topral 50 mg daily
                    Zoloft 100 mg at night
                    Klonopin .5 twice daily

                    Comment


                    • #11
                      Memphians!

                      I used to go to the assembly line Conrad Pearson but now I go to Rusty Shappley in Germantown. Super nice young guy who knows a lot bc went to school at Columbia & Harvard where they used updated treatments.
                      I'm also starting to see an obgyn/pelvic pain spec Dr Ling bc I'm 10 wks preg. I'm being sent to a pain specialist, I think Dr May?, by my URO bc I'm pregnant he wants my pain mgmt done by a specialist. Hope that answers everything

                      I'll try to PM y'all! I may have forgotten how.

                      Lauren
                      Keep telling others about IC! Education is the way to the cure! LAUREN in MEMPHIS

                      Comment


                      • #12
                        I started at Dr. Shappleys 2 years ago and now Im going back to him next week for a consult to get the Interstim surgery. My Uro now Dr. Portera doesnt do that surgery. I have always wanted to go to Dr. Ling and them but they dont take my insurance but I hear they are wonderful. my mother in law has gone to Dr. Conrad for years, they also dont take my insurance.
                        was finally diagnosed on 3-19-09 after 7.5 years of misery.

                        Diagnoses
                        IC
                        PFD
                        IBS
                        Depression/Anxiety
                        Lumbar Lordosis
                        Now getting tested for MS on Jan. 27th. day before my 30th bday!

                        Meds I'm on
                        Ditropan ER
                        Elavil 25mg -just stopped this one it wasnt helping
                        glucosamine vitamin (for joints, my knee)
                        Prelief, when needed
                        Vistaril 25mg
                        Valium
                        Zoloft 100 mg
                        Pyridium-makes your pee bright orange!
                        Birth Control
                        OTC Allergy meds
                        Fentanyl Patch for pain, 50mg
                        Oxycodone for breakthrough pain 5mg right now but need to go up!
                        Had to stop my PT due to insurance
                        TENS unit

                        Im really considering the Interstim but doctor isnt on board yet with it. Im also in process of filing for disability. *update is I had the Interstim trial and it worked well for me. The perm. surgery was scheduled but before I could get it my Urologist stopped being my doctor for unknown reasons! It really makes me angry. So I am still searching for a doctor to do the Interstim on me. I am in the appeal process with disability!*


                        Meds I've tried since being diagnosed (there have been so many over the years though)
                        Sanctura, had to stop taking after 2 days, horrible retention
                        Enablex, just very expensive
                        Librax, its expensive and wasnt sure it was helping me
                        MS Contin, made my joints very stiff!!
                        Did 4 weeks of Elimron instills, didnt help at all!
                        Elmiron, took it for 2 months and I was losing way to much hair so we stopped.

                        Comment


                        • #13
                          glad to see the tn forum bein put to use again im still here
                          Newly IC diagnosed as of February 2011.

                          Medications I'm on that seem to work:
                          Zoloft- one once a day
                          Butrans pain patch 5 mcg (THANK GOD FOR WHOEVER INVENTED THIS!SO MUCH PAIN RELIEF ITS UNREAL,I AM IN NO PAIN AT ALL UNLESS I STRESS OR SCREW UP ON THE DIET)

                          Failed Meds:
                          Elmiron-after 4 months,digestive side effects got to be too much
                          tramadol-allergic
                          DMSO treatments(5-6)
                          probiotics

                          THERAPIES:gardening,cooking,IC Diet,Counseling,Lots of warm baths,stress reduction,heating pad or ice packs,meditation/deep breathing,listening to relaxing music,having fun on pain free days,drinking chamomile or peppermint tea,pelvic floor physical therapy
                          AROMATHERAPY-candles,incense
                          Village Naturals Aches and Pains Peppermint Bath Salts
                          Johnson and Johnsons Lavender Melt Away Stress Body Wash/Lotion

                          ACUPUNCTURE/HERBS
                          Significant pain relief so far.

                          MAY TRY:yoga,swimming/hydrotherapy and anti-candida diet if i can kick my sugar addiction
                          ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
                          ***TO MY IC SISTERS AND BROTHERS:WE ARE OUR OWN ADVOCATES!,PLEASE DO AS MUCH RESEARCH ON YOUR OWN AS POSSIBLE AND TRY DIFFERENT TREATMENTS TO GET WELL.NOT ONE TREATMENT WORKS FOR EVERYONE.MOST IMPORTANTLY,TRY TO KEEP A POSITIVE ATTITUDE,DISTANCE YOURSELF FROM NEGATIVITY/NEGATIVE PEOPLE AND NEVER,EVER GIVE UP!***

                          Add me on facebook Angela Hasic

                          ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
                          Lord, make me an instrument of your peace;
                          where there is hatred, let me sow love;
                          when there is injury, pardon;
                          where there is doubt, faith;
                          where there is despair, hope;
                          where there is darkness, light;
                          and where there is sadness, joy.
                          Grant that I may not so much seek
                          to be consoled as to console;
                          to be understood, as to understand,
                          to be loved as to love;
                          for it is in giving that we receive,
                          it is in pardoning that we are pardoned,
                          and it is in dying [to ourselves] that we are born to eternal life.

                          Comment


                          • #14
                            Hi fellow tn ppl

                            Im from the west tn area...Paris tn. LBL? anyone from anywhere near me bc I would love to get a support group started!

                            Comment


                            • #15
                              Not in TN but just across the border in North Carolina in Canton. About 30 miles from the state line.

                              Comment

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