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anybody in Bakersfield, Tehachapi, Fraizer Park?

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  • anybody in Bakersfield, Tehachapi, Fraizer Park?

    Anybody in Bakersfield, Tehachapi, Fraizer Park?

    I'm the only IC patient at the clinic I go to. I was womdering if there was anybody else out there nearby (relative term when you live in the "Boonies")

  • #2
    sorry i don't but i hope you hear from someone that does! good luck
    mom to 3 wonderful kids

    IC symptoms 7/03,
    hysterectomy 11/04,
    prolapse cervix 7/07
    diagnosed: IC 2007
    IBS 2008


    • #3
      Yeay - another IC'er in Bakersfield!

      Hi ICmom!
      Sorry I didn't see your post sooner...
      Two of us have found each other through this site in Bakersfield - we would love to start a support group too.
      I have had IC for 12 years... she's had it for a year or so
      I've been through the mill with many many treatments and doctors all over CA, including top specialists. Pain is a daily part of my life but i have learned how to manage... i don't travel, and have limited activities because of my IC...
      where are you in the process and how are you doing?
      It would be awesome to have others to compare notes with on doctors locally - even though we don't have IC specialists in Bako, some of the doctors are starting to learn more about it - my primary is really great, as is my OB/Gyn and my urologist, who is willing to try things to help me manage pain. It is SO different from when I first tried to get help in 1995 - back then the docs here just looked at me like I was crazy...

      anyway, looking forward to hearing from you!
      - Sharon in Bako
      [SIZE="2"][FONT="Lucida Console"]
      My blog:
      1995 - Original symptoms: urethral pain and knife in the left side of vulva. Dx'd with "urethral syndrome" 1997- Dx'd with IC (potassium test) by Dr. Lowell Parsons. Tried all "usual" IC treatments, Elmiron, Atarax, DMSO, heparin, lidocaine instillations. 2000- First hydrodistention by Dr. Daniel Curhan, classic IC glomerulations & mast cells. 2005 - 2nd hydrodistention by Dr. Christopher Payne, Stanford University; dx'd with "refractory" Interstitial Cystitis. 2006 - Dx'd with left pudendal neuralgia by Dr. Jerome Weiss, had two unguided nerve blocks, pain worsened. 2008 - Botox, unguided intravaginal blocks (*WARNING* risk of further damage) by Dr. Felicia Lane; PT with Julie Sarton. 2010 - PNE (Pudendal Nerve Entrapment) surgery, TG approach, by Dr. Michael Hibner. (FAILED) 2011- PNE surgery by Dr. A. Lee Dellon, frontal approach. (FAILED)
      Jan, 2012 - Dx'd with "centralized pain" by Dr. Joshua Prager, UCLA Pain Management. 3-day ketamine infusion, nearly pain-free!!! Bad news: Bladder flared as ketamine is known bladder irritant. Oct, 2012 - Pain pump trial on Dr. Prager's recommendation. Awesome results!
      Nov. 13, 2012 - Surgery to implant intrathecal pain pump, which has been a lifesaver! Success at last! Thank you Dr. Prager!