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or if anyone ever comes on vacation here then hit me up
aloha
aloha
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Caitlin
Diagnosed December 2004
Cytoscopy April 2007: 1000cc's capacity, no visible "IC", looked perfectly normal. Hydrodistention August 2007: again appearance of “normal looking” bladder. Surgery for bladder reflux in 1990, chronic bladder infections before that.
Medications: Oxycodone, Amitriptyline, Tizanadine, Lyrica, Ambien, Prilosec, Zantac, Zyrtec, low does Aspirin, (In the past I tried all the typical natural therapies out there without successL)
I don’t have “typical” IC symptoms,… I have a very large bladder (my Dr.’s eyes almost jumped out of his head when he saw my CT scan!) It seems to feel better the fuller it gets & the more I go to the bathroom, the more it hurts. My pain intensity doesn’t seem to be affected by diet or alcohol, that being said pain is my main issue, MAJOR PAIN!!! It sux!!
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I wish I could right now!
DonnaStay safe
Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf
Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
Patient Help: http://www.ic-network.com/patientlinks.html
Sub-types https://www.ic-network.com/five-pote...markably-well/
Diet list: https://www.ic-network.com/interstitial-cystitis-diet/
AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined fool -
Nope, not in Maui, but wish I was. We took a vacation there in 1982. That is such a long time ago. I have heard tell that once you go to Hawaii, Hawaii never leaves you. I know that is true for me.
Sharon
Shopping??? Did someone mention shopping? I'll get my hat... ;-)
Where I can be found most days.
Link to the ICN Patient Handbook:
http://www.ic-network.com/handbook/
Link to the IC Diet:
http://www.ic-network.com/diet/
IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.Comment
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