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I know where Kansas, OK is. My son used to play baseball in Kansas, OK.
How long have you had IC? Do you come to Tulsa to see a URO?
I don't know anyone else with IC. In fact, I had never heard of it until I was diagnosed in November. My doctor is John Forrest in the Wheeling Medical Building in Tulsa. He's an IC specialist.
I would love to talk to you sometime. If you want you can email me [email protected] or call me at 560-4625(W) or 746-9900(H).
I don't live in Tulsa but I grew up in Ponca City and I have family that lives in Okmulgee and Henryetta. Do you know where that is? It seems like I am always in that area to see my family. It would be fun to get a group together sometime to meet for an IC friendly lunch or something!
Live life to the fullest day to day. The best way to eat an elephant is one bite at a time!
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DX: IC - November 2002 after hysterectomy
Interstim implanted March 2006 - died May 2011
Interstim replacement June 2011
Meds: Pain meds, muscle relaxer, cystex, and marcaine bladder instills as needed.
Docs: Pain management doc, urologist, family practice
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