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  • Just moved...looking for uro.

    Hi all,
    I recently moved to Denver from Chicago last July 2006. I've been feeling good for a few months now. Recent flare up is pushing me to find a new urologist out in Denver, but I am having a difficult time knowing where to look. I call uro. offices and ask if they specialize in the treatment of IC, but am not getting positive results. I am feeling a bit anxious because the urogynecologist I left in Chicago has treated my symptoms since I was 16. He worked with me through the worst and helped get me to where I am. Just like many of you I'm sure, I had my run around from not so patient or understanding urologists....and I'm nervous about starting with a new one.

    If anyone out there has any suggestions or can recommend a doctor I would be greatly apprecitive! Thanks for the support~ Melinda
    History, despite its wrenching pain, cannot be unlived,
    and if faced with courage, need not be lived again.
    Lift up your eyes upon the day breaking for you.
    Give birth again to the dream...For each new hour holds new chances
    For new beginnings
    .

    Maya Angelou, On the Pulse of Morning
    ---------------------------------------------------
    Diagnoses: IC, GERD, IBS, vulvodynia, gastritis, and most severe chronic back and leg pain (still trying to figure out; continuous every day for 3.5 years)

    Current Meds/Treatments: Continuous birth control pills (only get my period 4 times/year-this has been the key to my IC symptoms going down); Prilosec 40 mg/2xday); Daily pain medication (taken at night); Fish oil, Vitamin D and B supplements; just starting to see a chiropractor

    Have tried: Tramadol 50 mg/3-8xday (on for 3 yrs before it caused seizures in Nov. 2010); Neurontin 2400 mg/day (on for 2 years before I gave up); Elavil 25 mg/night (on for 10 years before I stopped); Elmiron (tolerated well, but IC sxs are now managed); Atarax (tolerated well, just couldn't tell if helped); Ditropan (didn't help); Vicodin (made me itch too much); 12 DSMO instillations (made my flare ups worse); Pelvic floor therapy for 5 years (I am a huge advocate); Physical Therapy; Accupuncture for 2 years on and off for 12 weeks at a time.

  • #2
    Melgirl200,

    I have a two doctors for you here in Denver. I moved here last year (have had IC dx since 2003), and I know finding new docs is no fun!

    Since you are already diagnosed with IC, and sounds like you need flare management, I would try Daniel Brookoff first, who is technically a pain specialist, but is extremely knowledgeable in IC. His number is 720-984-5772, and his office is right next to Presbyterian St. Luke. He has done lectures for the IC network, you can search those on this website.

    This doc spent an HOUR with me the first time I saw him, doing an incredibly thorough history. He is very cutting edge in treatment for IC, a really nice guy, and very willing to try and suggest anything. Long story short, he increased my Elmiron to 300 mg bid, which has made a significant difference with me. (I had been taking 200 mg bid for 2 years prior, and my old doc wouldn't increase it). He also gave me this external muscle relaxer machine to use when flaring, and that has made a huge difference too.

    If you want a regular urologist too, the second doc is a female urologist named Nel Gerig. Her number is 303-388-9321, 4545 E 9th Ave, ste. 480, Denver. I saw her when I first moved here, and liked her...she gave me the standard choices for IC care, and seemed willing to try things I wanted to try, like increasing my Elmiron dose, PT care, etc. I believe she is actually collaberating with Dr. Brookoff with IC patients now too.

    Hope this helps!

    teelag
    Last edited by teelag; 05-08-2007, 07:47 PM.
    IC dx June 2003

    Pregnant with IC 2004-05....off all meds

    Elmiron 200 mg bid
    Elavil 25 mg nightly
    Ovcon 35 BCP
    IC Diet

    Tried but dc'ed: Neurontin, Lyrica, Claritin, Cystoprotek


    Dreaming of a grande non-fat mocha with extra shot!

    Comment


    • #3
      Teelag,
      Thanks so much for your suggestions! I actually was relieved to see Dr. Gerig on my insurance. Daniel Brookoff isn't on my insurance, but I think you're right that I should try him first. I think a pain specialist would be the best route to go for what I'm going through right now. Thanks for your time and help. Have a great rest of your week!
      ~Melgirl200
      History, despite its wrenching pain, cannot be unlived,
      and if faced with courage, need not be lived again.
      Lift up your eyes upon the day breaking for you.
      Give birth again to the dream...For each new hour holds new chances
      For new beginnings
      .

      Maya Angelou, On the Pulse of Morning
      ---------------------------------------------------
      Diagnoses: IC, GERD, IBS, vulvodynia, gastritis, and most severe chronic back and leg pain (still trying to figure out; continuous every day for 3.5 years)

      Current Meds/Treatments: Continuous birth control pills (only get my period 4 times/year-this has been the key to my IC symptoms going down); Prilosec 40 mg/2xday); Daily pain medication (taken at night); Fish oil, Vitamin D and B supplements; just starting to see a chiropractor

      Have tried: Tramadol 50 mg/3-8xday (on for 3 yrs before it caused seizures in Nov. 2010); Neurontin 2400 mg/day (on for 2 years before I gave up); Elavil 25 mg/night (on for 10 years before I stopped); Elmiron (tolerated well, but IC sxs are now managed); Atarax (tolerated well, just couldn't tell if helped); Ditropan (didn't help); Vicodin (made me itch too much); 12 DSMO instillations (made my flare ups worse); Pelvic floor therapy for 5 years (I am a huge advocate); Physical Therapy; Accupuncture for 2 years on and off for 12 weeks at a time.

      Comment

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