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Anybody near Portland?

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  • Anybody near Portland?

    Hey there, is anybody from the Portland area? I would love to find a support group near me and suggestions on a good Dr. Am I all alone up here?
    "That which doesn't kill us, only makes us stronger."

  • #2
    Nah....I live in Vancouver Wa! I see a Doc at St. V's who has been wonderful and female. You can send me a private e-mail if you want to get more info. Don't lose hope!!! I'm nearby and in pain too...."if that makes you feel better...ha, ha"

    I.C. DX'd following my "second hysterectomy" (the remaining ovary, that kept bursting and bleeding 2 years after my hyster/right oompherectomy, was removed in 2003. I was a special ed teacher. I am now very lost, and feeling rather hopeless in my life.

    Medications I CURRENTLY take:
    90 mgs Ms contin (45 mgs Am/PM)
    Percocet as needed
    Topomax 100mg day
    Ambien 10 mg bed
    desipramine 25 mgs

    If people are good only because they fear punishment, and hope for reward, then we are a sorry lot indeed.
    Albert Einstein


    • #3
      The Portland group hasn't had a meeting for several months now. I do get the Oregon newsletter and if I get another one, I will post the information.

      Stay safe

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      • #4
        Hi-I live in Forest Grove, OR (SW of Portland). I don't belong to any support group. I haven't met very many people with IC. It took me about 8-9 months, 8 different doctors and two surgeries to determine that I had IC. I have known for almost a year now. I am still in a lot of pain, but I am better than I was a year ago. The pain is more under control now. I would be interested in many getting together for lunch with some people in the Portland/Beaverton/Hillsboro,OR area that have IC.


        • #5
          Lori Jo,

          Where do you live? I'm in Wilsonville. I looked into a support group & found there was one, I think it was at Emanuel. They only meet twice a year. I didn't follow up on it. Are you newly diagnosed? I was diagnosed 6 months ago.


          • #6
            I live in Oregon City. Actually I have not been diagnosed yet, but I know that this is what I have, and I've had it for some 15 years. You could say that I diagnosed my self. And yes I know that I need to get to a doctor for the tests and the official word and mostly pain meds and other treatments...but I have no medical insurance. I make too much $$ to qualify for OHP, but am living paycheck to paycheck so can't even begin to pay for the health care that I need. tea-dee (she's in Forest Grove) and I are talking about getting together for lunch, maybe you could join us!
            "That which doesn't kill us, only makes us stronger."