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wasted $ on meds that cause flares

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  • wasted $ on meds that cause flares

    Is there anything I can do to recoup any of the $183 I spent on Elmiron, only to have it backfire on me and cause major flares? I am so very sensitive to drugs, and ll the costs lately have really hurt us financially.

  • #2
    I can't help you get back anything you have already spent, but one thing I do when I get a new prescription is to buy only enough to last for a few days to a week. Then if I have a bad reaction, I haven't spent money on a whole month supply. Even if the prescription says 100, you can ask the pharmacist to fill it with less and pick up the rest later.

    Stay safe

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    • #3
      waht a wonderful idea, I have spent so much money on costly rx's and was stuck with pills I couldn't take and the loss of the cash...
      'The will of God will never take you where the Grace of God will not protect you.'


      • #4
        This does really suck!!

        I hate coming out the pocket for meds - since i'm not diagnosed yet - I keep having to come out of the pocket for antibiotics they prescribe to treat UTI's that seem to make my flares worse the last one cost me $105 dollars alone!!! I too wish I could be remembursed!!! Im sure there are many moer meds to be tried on me yet!!!

        Hope someone out there has a solution for this too!!

        Stay True,
        Sherri S. banghead banghead


        • #5
          Hi that happened to me sj with Elmiron, we tried it once and it did not help and then like a fool I tried it again and paid for another prescription, so I was out of pocket twice. I was the idiot I should have tried the Elmiron I still had, stupid me. I like the idea that Donna suggested just getting a few and see if it helps, I never thought of that at all, take care Iris hi hat
          Today and every day you are loved, so don't be anxious about tomorrow, God will take care of you tomorrow; Live one day at a time.


          • #6
            I know what you mean about money wasted on meds. At one point before I was diagnosed I had 50 bottles of pills sitting around that didnt do a thing for IC. Also on Medicare (which is what you get with SSI) prescriptions arent covered and that is when you need monetary help most, when you go on disability. I guess I need to write to my Congressman.


            • #7

              Well, if it makes you feel any better, when I first read your post I read "$1831" instead of "$183 I...." so in re-reading it, I technically saved you $1000. wink


              • #8
                Even though this posting is too late for you, perhaps people who are really sensative to meds. can get a few day's supply from the makers of Elmiron. Explain the sitution, and see if they are generous. Of course, it takes a long time to see if the meds. will help the bladder.