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I wish we could start a fund raiser for a trust for icn members to use

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  • I wish we could start a fund raiser for a trust for icn members to use

    I know this is probably stupid but I forget that so many have to buy their meds at high costs. I wish we could start a funraiser that could be put into a trust by the ICN people..jill..etc that could help defray costa..This is not an advertisement..ive been on the board for a long time. I have a business H&G that does fund raisers with jar candles..anyway I would be happy to donate my profit to the cause..any other ideas or is this just who doesnt have alot of confidence right now..Hugs peg?
    I have kaiser insurance so I pay 5.00 per RX for anything......... [img]smile.gif[/img]

  • #2

    I think your idea is a great one. I was thinking about this recently. I am blessed with a good prescription plan under my health insurance.

    I can not imagine how difficult it would be were this not the case.


    • #3
      I agree we need to help each other. I'd also donate to this cause. LDS


      • #4
        This has definitely been one of my dreams. I worry greatly about IC patients who don't have access to any medical care... and I'd also like to help IC patients who are going back to school with tuition reimbursements. It's really a question of having a team of patients who are willing to take responsibility for its implementation. I can't do it alone...

        Jill O.
        Would you like to talk with someone about your IC struggles? The ICN now offers personal coaching sessions that include myself, Julie Beyer RD on the diet and Dr. Heather Howard on Sexuality.

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        Please remember that the information on the ICN is provided with the understanding that ICN, its founder, staff, volunteers, and participants are not engaged in rendering medical or professional medical services. We cannot and do not give medical advice. Only your personal physician can do this for you.


        • #5
          I'll help ya Jill! ANything I can do just let me know, also I was thinking last night that maybe a raffle of some sort would be neat. Like we could sell tickets and the proceeds go to this. How does that sound? Hugs, Great Idea! Nina


          • #6
            I'll also help. Sign me up! Gail


            • #7
              Great Idea I will help in any way! Please let me know! I will be out of commission for a few days next week as I have my foot surgery on Tuesday. But PLEASE let me know what I can do to help!


              • #8
                Well, still don't know how to use the gremlins! Some how got a frowny face on the previous post!


                • #9
                  Khouse, if you just click on the graemlin when you want it, it will show up. you can't go back into a sentence and then add it because for some reason it doesn't work. And, your graemlin won't show up until you have pushed the 'add reply' on the bottom.

                  See if that works for ya'............
                  Courage does not always roar. Sometimes, it is the quiet voice at the end of the day saying, "I will try again tomorrow".


                  • #10
                    Thanks Teri, I am trying it now! Will see how it works, I am so computer illiterate!


                    • #11
                      Well, I tried it and it didn't work! Oh well!


                      • #12
                        Kim: The graemlins you want are to the left of the message box --- you will need to scroll down a little. If you click on one there, it will appear in the message.

                        <img src="graemlins/grouphug.gif" border="0" alt="[grouphug]" />
                        Stay safe

                        Elmiron Eye Disease Information Center -
                        Elmiron Eye Disease Fact Sheet (Downloadable) -

                        Have you checked the ICN Shop?
                        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                        Patient Help:


                        Diet list:

                        AUA Guidelines:

                        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                        Anyone who says something is foolproof hasn't met a determined fool


                        • #13
                          Peg what a great idea. My ditropanxl with insurance costs me about $90.00 each month. I am going to ask my uro if there is a program where I could get samples from each month. Just trying to get better and accept the fact that I have this ic and overactive bladder. I will be willing to help out too with the emails and stuff. Thanks. Jill you are doing a good job. Deb
                          Hang in there , There is hope.
                          There is hope. Prayer works.

                          Love, Debbie


                          • #14
                            Ok, am going to try [img]biggrin.gif[/img] this one more time! [img]tongue.gif[/img]
                            I think I finally have it <img src="graemlins/scream.gif" border="0" alt="[scream]" /> <img src="graemlins/jester.gif" border="0" alt="[jester]" />
                            It may take me a while [img]cool.gif[/img] girls, but I can do it now!!!!!!!!!!!!!!!!! <img src="graemlins/hi.gif" border="0" alt="[hi]" />
                            HeeHaww I can do it!
                            Small things make me happy! [img]biggrin.gif[/img]
                            Kim <img src="graemlins/grouphug.gif" border="0" alt="[grouphug]" />


                            • #15
                              I have no medical insurance.Therefore I get no treatment meds or relief.I was diagnosed with ic/hunners 1yr ago.hubbie lost his job and med insurance 4 months ago.The insurance plan new job offers is way to expensive for us.I continue to work and bear and grin the (insurance not offered my job)I think its a sin that working people get no government or state aid because we choose to work.I was told we make to much money.sad but true if I sit home I will qualify for medical help.Whats wrong with the system! <img src="graemlins/scream.gif" border="0" alt="[scream]" />