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  • Info on increasing of drug co-pays

    http://tinyurl.com/49f79k

    Hi,
    This is a link from www.fiercepharma.com that confirms what most of us here already know --insurance companies are increases co-pays for expensive drugs.

    It is really important, I think, for us to keep ourselves informed, if our IC allows. FiercePharma is an insider e publication for all aspects of the pharm industry.

    Between the pharmaceutical companies gouging us and the insurance companies doing the same by cutting benefits whenever they can it gets very frustrating and stressful. That's why I speak out for healthcare reform and IC awareness that includes our costs for this disease.

    I am just really bothered by the amount of money these companies make on the backs of ill and suffering people. It has ruined lives, and continues to do so.

  • #2
    I agree with you -- it's a sick system.
    Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
    Wishing you happiness and good health, and all the best out of life.

    Peace, Carolyn
    ___________________________________________________

    Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


    On the Beach with IC

    Comment


    • #3
      I wish there were more interest..

      Hi,
      Thank you for commenting Carolyn. The costs of healthcare that are ever rising need to be a collective concern of all IC patients, IMHO. We all know what it is like to suffer pain with IC. My heart absolutely breaks for anyone having to ration their medicine in order to afford it at all, or not being able to afford Elmiron or instill meds.

      If we all become informed on this subject, it will be to our benefit as well as patients with other diseases other than the ones we suffer from. All of us who are able need to write to legislators statewide and nationwide. With all of our voices speaking as one, we may even get something accomplished in this arena.

      It's simply about time all of us who can advocate for ourselves.

      Comment


      • #4
        (1)The drug companies and insurance companies have very, very powerful lobbies in Congress. That's not a political opinion, it's verifiable fact. (2)The drug companies and insurers set their rates subject to Congressional approval. Make of those two facts what you will.

        When people -- working people, even -- can't afford to buy necessary medications, or visit their doctors, or have tests done, there is a problem. This is not the way things were even thirty years ago. Understanding the roots of the problem is the first step, and speaking up about it is next (and most vital). I've written to all my representatives every year, and signed various petitions -- I haven't done a lot but I've done something, and so have a lot of others. Now in this Presidential election cycle, every candidate has a proposal for health care reform. So they are listening, they do respond to public pressure. Now our job is to make sure they follow through after the election.

        We are the people most affected by this state of affairs. If we don't advocate for change, who will?
        Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
        Wishing you happiness and good health, and all the best out of life.

        Peace, Carolyn
        ___________________________________________________

        Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


        On the Beach with IC

        Comment


        • #5
          I have to agree. I have taken part in a survey that explores availability of medical care in our country, but haven't been sent the results yet. I'll be happy to share when I get them.

          Just remember, everyone, it's important for us to let our representatives know of our concerns --- and above all, it's important for each of us to vote --- it's the best way we can make our opinions count.

          Donna
          Stay safe


          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

          Have you checked the ICN Shop?
          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

          Patient Help: http://www.ic-network.com/patientlinks.html

          Sub-types https://www.ic-network.com/five-pote...markably-well/

          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
          [3MG]

          Anyone who says something is foolproof hasn't met a determined fool

          Comment


          • #6
            Great post Carolyn

            Carolyn,
            Thank you for expressing so well what actions we need to take for healthcare reform. A quick visit to www.fiercepharma.com will give anyone with any doubts ample evidence that the profits of the healthcare industry is wreaking havoc on the budgets of middle class and even upper middle class patients in addition to those already suffering who are in the lower income classes.

            Donna, where did you find the survey you are speaking of? Can you please post a link?

            Let's all become active in healthcare reform if our conditions allow that. If Americans rise up ( I loved that John Edwards speech BTW) and make our voices heard change will come. But not until our government, the lobbyist and elected officials hear from us loudly and with certainty "We have had enough gouging from the healthcare industries."

            It just boggles me the fact of, IMHO, how immoral and unethical the profiting on the backs of the sick, and disabled is. Particularly since this group of Americans is one of the most vulnerable and in need groups of our citizens.

            Let's work to make treatment affordable for EVERY patien in this country.

            Comment


            • #7
              The survey I did involved several questionnaires, which were mailed to me as a Medicare member. They chose names at random. I think they've finished with the project now.

              Donna
              Stay safe


              Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
              Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

              Have you checked the ICN Shop?
              Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

              Patient Help: http://www.ic-network.com/patientlinks.html

              Sub-types https://www.ic-network.com/five-pote...markably-well/

              Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

              AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

              I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
              [3MG]

              Anyone who says something is foolproof hasn't met a determined fool

              Comment


              • #8
                I can't believe how much medications cost now days. I have a friend who is taking Humira for Crohn's Disease and she had to paid almost $5,000 for a month's supply. She is elderly and it is almost to the point where she either has to pay for her medication or buy her groceries. She has tried to get the patient assistance with the Humira but has not had any luck. Our Senior Citizens should not have to choose between food and medication. That is just not fair!! None of us should have to.
                Miss Bessie

                Galatians 6:2 - Carry each other's burdens, and in this way you will fulfill the law of Christ.

                Hebrews 13:2 - Do not forget to entertain strangers, for by doing so some people have entertained angels without knowing it.

                Proverbs 4:23 - Above all else, guard your heart, for it is the wellspring of life

                Comment


                • #9
                  Appeal to drug companies for help

                  Hi,
                  Please urge your friend to send an appeal to the manufacturer of Humira even if they have been rejected initially.

                  I wrote a letter to J&J pleading for their compassion after initially being rejected for their PAP. I wrote the CEO then snail mailed it, faxed it with other evidence of the $38,000.00 + in drug co-pays that acrued over the last 10 years, then I confirmed with the CEO's office that all the pages had been received. Four months after the letter was sent, I received a phone call telling me that I had been accepted because of the poor Rx insurance benefits I had.

                  I was told by someone in the know that most companies have some sort of appeals process.

                  If you friend has trouble writing letters, I will help. I've been pretty successful with these kinds of letters. Also, there is a book called "How to Fight Your Insurer and Win" by a cancer survivor Laurie Todd. What that woman did to get the best treatment in the midst of battling a rare horrible cancer of the appendix is nothing short of heroic.

                  Comment


                  • #10
                    There simply cannot be a medication that costs anywhere near $5000/month to produce. That's an insane amount of money to charge! Think about that, it's $60,000/year!!

                    Bessie, your friend should definitely appeal. See if her doctor can get samples, appeal to the drug company's assistance program, and investigate whether there are any private charities in her area that help provide low-cost meds for the elderly and people with chronic illnesses. My friend in Arkansas found an organization that does just that. If I were her, I'd also be writing to my congressman and inquiring how Congress justifies allowing the drug company to put that kind of price tag on their product. I wish her all the luck in the world.
                    Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
                    Wishing you happiness and good health, and all the best out of life.

                    Peace, Carolyn
                    ___________________________________________________

                    Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


                    On the Beach with IC

                    Comment


                    • #11
                      Thanks J56 and Carolyn for those great suggestions. I am going to call her tomorrow and share them with her. I agree with you all.....it is beyond comprehension that medication can cost that much money. She tried Remicade (which was $4,000) before the Humira but had a reaction to it. They told her she had to pay out-of-pocket and then get reimbursed but she never was able to get her money back for the Remicade. I really don't understand how her Medicare and Gap Insurance are able to do that. I am going to try and find out some details about it and see if there is any way I can get some help for her. I appreciate your posts and all of the great information that you have shared.
                      Miss Bessie

                      Galatians 6:2 - Carry each other's burdens, and in this way you will fulfill the law of Christ.

                      Hebrews 13:2 - Do not forget to entertain strangers, for by doing so some people have entertained angels without knowing it.

                      Proverbs 4:23 - Above all else, guard your heart, for it is the wellspring of life

                      Comment

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