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Elmiron is expensive!

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  • #16
    When I was taking 400 mg of Elmiron a day, my co-pay was over $50 a month. Now I'm taking 200 mg a day and the co-pay was cut in half, thankfully. I'm glad Elmiron has helped me because that's a lot of money to fork over (in addition to other co-pays, so I end up spending almost $100 a month in co-pays alone!) My company has a pre-tax flexible spending plan for health care costs, where I can have them deduct a set amount each month and then I send in the receipts for reimbursement, which saves me some money over the course of the year. I can even deduct for over-the-counter meds, like analgesics and supplements, which is pretty cool.
    Namaste

    "You must be the change you want to see in the world." - Mahatma Gandhi

    "The most important medicine is tender love and care" - Mother Teresa

    Proud mother of Ahleia, born on April 9, 2007

    -----------------------
    Diagnosed with:
    IC, OAB, Congenital urethral stricture, IBS, Vulvar vestibulitis, Heart murmur, Congenital cervical stenosis...but otherwise doing great!

    Meds:
    Currently in remission, but took the following for 3 years: Elmiron 200 mg., Elavil 25 mg., Detrol LA 4mg, Ovcon-35

    Health treatments/practices:
    Kripalu yoga, Chiropractic, Massage therapy and Reiki

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    • #17
      I hear ya poetgirl. I remember when I was on elmiron and, since it was a brand new drug, my insurance would not cover it. I was on disability and had to come up with $100 a month. It was rough. In a few years a generic will hopefully come out and cut the price down.

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      • #18
        When I was taking 400 mg a day, nearly every time I went to get the prescription refilled, my insurance would initially reject the charge because they said the dosage was higher than what their limits would normally cover. A month's supply at 400mg would cost over $350 and the insurance didn't want to pay the $300. The pharmacist would have to end up calling my urologist to explain the situation, and then my urologist would have to call the insurance company to tell them to approve payment for the amount. Very frustrating. So many times (as I was standing there in CVS just trying to get my meds, only to find out I'd have to wait another day or so while my urologist and insurance company battled it out) I wanted to call up my insurance company and say, "Since when did YOU decide what dosage I need?"
        Namaste

        "You must be the change you want to see in the world." - Mahatma Gandhi

        "The most important medicine is tender love and care" - Mother Teresa

        Proud mother of Ahleia, born on April 9, 2007

        -----------------------
        Diagnosed with:
        IC, OAB, Congenital urethral stricture, IBS, Vulvar vestibulitis, Heart murmur, Congenital cervical stenosis...but otherwise doing great!

        Meds:
        Currently in remission, but took the following for 3 years: Elmiron 200 mg., Elavil 25 mg., Detrol LA 4mg, Ovcon-35

        Health treatments/practices:
        Kripalu yoga, Chiropractic, Massage therapy and Reiki

        Comment


        • #19
          VickiB, Don't Give Up!

          Elmiron is expensive, but I have seen it work wonders for so many people. I participated in the trials when the FDA was approving it (and got no discount!), and now I order it from Canada. I think I will contact the company, as a few of you suggest, and see if I can get a price break. For me, it is worth everything else I have to give up in order to afford it, because it helps me have a normal life again.
          Last edited by RedLione; 09-05-2004, 11:03 PM.

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          • #20
            Elmiron is very expensive, but when I first was told to take it the nice doctor that I had filled out a form and I was given my elmiron free for a few months. Now that my doctor went elsewhere, the new doctor wants to try the Elmiron again only he wants it to be installed directly into the bladder and he said there would be no side effects or anything like I had when taking it oraly. But here is the catch, he wants me to bring my Elmiron with me so the nurse can teach me how to do the Installations myself. Does anyone think this is odd to bring your own medication to the doctor for them to use on you, I am just wondering if they are going to book Medicare for the drugs that I pruchased myself. Sorry if I sound a bit nasty, but I am getting the poops of trying the same thing all over again and again. When they tried the Heprin installations I had terrible cramps for days, I think the less messing around with already ouchie bladder the better. Yes I am the one with the pain pump and I would not be without it. But I think they are just experimenting on people to see what works, sorry for being such a bit moody, but then again if they do not test it on the people that do have ic who are they going to test it on. Oh well thanks for listening, I am anxious to see if this works on my ulcers that are inside my bladder, the doctor said it will not irritate them more it will help them. Here goes, I will let you all know what happens.
            Thanks for being there.
            Sue

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            • #21
              Sue, I did my own heparin installations at home. I stopped them because I was getting infections all the time.
              For the rest of you, I posted this in another thread, but if you're not sure if your Elmiron is helping you, stop taking it for a few days. It may take longer than that to feel the effects, but I stopped taking mine for a week to see if the new meds were helping. I've been in a flare for 3 days now, and I'm going back on. I only pay $130 for 100 capsules from Canada, and I'm fortunate enough to only have to take 1 a day. And I'm sticking to it!

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              • #22
                Re: Elmiron is expensive!

                Originally posted by Peggy Anne View Post
                I now pay $90 a month - before when my doctor was trying to get me to take it but I didnt want to, and I had better insurance, it was $5. I could kick myself for not trying it then. I can afford it but it takes away from other bills and stuff for my kids. I have that same nagging feeling that I am wasting money on something that is not working.
                I have to pay over $400 per month. I am on disability and therefore qualify for medicare and perscription plans. I get the best plan available and they charge me over $400; what is wrong with this picture. My daughter gets it for $35 with her insurance. This Country allows these drug compainies to guage and it is not fair. When I stop taking my Elmiron I have ended up in the hospital 3 times. It is not fair some Ins co pay so much more. I pay a lot for my health coverage. I don’t know what I am going to do...

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