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  • Re Internet Craft Sites

    I have deleted the thread regarding internet craft sites. Please --- if you wish to share advertising sites for craft supplies --- do it by private message or email.

    Thanks, everyone.

    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

  • #2
    I'm affraid I don't understand. Could you please explain.
    Rosalie


    http://community.webshots.com/user/gypsyrose52

    Comment


    • #3
      same here donna, we are not promoting anything, we just want to share, if some one is after something particular, we could just let them know where to find it, that's all....martha
      Martha

      Comment


      • #4
        One of the things that happens very frequently is that advertisers will register for the purpose of advertising. And if we allow one individual to advertise their products/sites, then we would not be able to prevent others from doing the same. I have visited sites where advertising is not controlled and many have become more advertising than support. We don't want that to happen.

        It's for that reason that there is a policy on the IC Network that advertising without prior approval is not allowed. A short time ago, in order to allow ICers to advertise their own products, the Seller's Corner board was opened. If anyone wishes to post there, please send an email to [email protected]

        Donna
        Stay safe


        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help: http://www.ic-network.com/patientlinks.html

        Sub-types https://www.ic-network.com/five-pote...markably-well/

        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

        Comment


        • #5
          No one was advertising or trying to sell anything here and I cannot see how it was interpreted in that way.
          I am sad to see this idea brought to a halt when it could have been a useful tool for sharing between like minded ICN members.
          Rosalie
          Rosalie


          http://community.webshots.com/user/gypsyrose52

          Comment


          • #6
            I agree with Rosalie Donna, we are not trying to sell anything, and that is the honest truth, we are just trying to help each other, I don't have a website myself, so I'm certainly not self promoting. In the other threads relating to arts and craft, some links to sites have been mentioned there as well, why has nobody said anything about that, I suppose I am very disappointed,...martha
            Martha

            Comment


            • #7
              i have an idea guys. Why not start a message board on the yahoo sites. its free of charge. then invite the members from this board to share there ideas for all crafts. since the icn can't allow this because of other people who doens't have ic does try to come in and take over our boards i've seen it before donna or one of the super modertor could get to it to delete them.
              I do understand where both sides are coming from. Just a thought I hope you don't mind me jumping in trying to help.
              Rhonda
              Medicine taken daily or as needed:
              1. Heaprin and Marcaine rescue installment 1 to 3x daily as needed.
              2. MS.Cotin 100mg 3x daily
              3. MSIR 30mg 1 or 2 every 4-6hrs as needed for breakthrew pain.
              4. Fentanyl 100 mg Change every 48hrs.
              5. Gentamicin 80mg install after each rescue treatment
              5 Leviquin 500mg self start as needed.
              6. Klonopin 1 or 2 daily as needed.
              7. Prosed/DS as 1 every 6hrs as needed.





              I have IC, but IC doesn't have me anymore!

              Comment


              • #8
                The problem is that we often have to go in and delete messages from people who purport to be patients by saying a couple of things about IC - but then the rest of their post is all an ad. WE know that you guys aren't selling anything (heck, I posted a link to a scrapbooking site without thinking about it!), but then when it comes time to delete the obvious ads it makes it harder to explain why some links to sites that sell products are OK and others are not.

                I don't think the ICN really minds craft links between members as much as allowing them makes it harder to defend deleting the other obvious advertising links. KWIM?

                This has been a HUGE issue in the past - advertising. It's less about the current situation and more about an ongoing problem... Promise.
                Kim

                Diagnosed August 2001

                Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)


                Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

                I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.

                *****************************

                “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

                “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy

                Comment


                • #9
                  Oh, and when I saw that Donna had removed the links I remembered the one I had posted and went in and deleted it. I hadn't thought of it either so please don't take it personally, OK? There was no way you could have known - we don't think you intentionally did anything.
                  Kim

                  Diagnosed August 2001

                  Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)


                  Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

                  I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.

                  *****************************

                  “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

                  “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy

                  Comment


                  • #10
                    Kim and Rhonda are right. Thanks to both of you for clarifying. It's one of those situations where you can't allow one person to do something, then stop another from doing what they consider the same thing.

                    And it's one of the reasons we have private messaging.

                    Donna
                    Stay safe


                    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                    Have you checked the ICN Shop?
                    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                    Patient Help: http://www.ic-network.com/patientlinks.html

                    Sub-types https://www.ic-network.com/five-pote...markably-well/

                    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                    [3MG]

                    Anyone who says something is foolproof hasn't met a determined fool

                    Comment


                    • #11
                      Thank you for clarifying that for me Donna. I am concerned now that I have posted in another thread suggesting that someone look for a site on the internet about a horse race in my city. Will that be a problem?
                      Rosalie


                      http://community.webshots.com/user/gypsyrose52

                      Comment


                      • #12
                        It shouldn't be a problem --- I just wish I could visit your city.

                        I do appreciate your understanding.

                        Sending warm hugs,
                        Donna
                        Stay safe


                        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                        Have you checked the ICN Shop?
                        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                        Patient Help: http://www.ic-network.com/patientlinks.html

                        Sub-types https://www.ic-network.com/five-pote...markably-well/

                        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                        [3MG]

                        Anyone who says something is foolproof hasn't met a determined fool

                        Comment

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