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This is getting ridiculous! How many of you have to do the 'toilet wiggle' to empty your bladder?? This is a new thing for me...side to side and touch your toes...LOL 
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~ Brandy ~
~A laugh is a smile that bursts.~ 
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lol.
Sometimes I do the side-to-side or lift one cheek.
Medical "Issues":
IC
GERD
Tachycardia(resting rate is 125-130
)
Medicastions:
Tramadol-as needed (IC)-50mg
Elmiron 200mg twice a day
Levsin .125mg 1-2 pills 4 times a day
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LOL sometimes I have to do the blot with toilet paper to make more come out or lean really far farward and touch my toes, it just varies.Christine
I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
I have tried every oral medication as well as rescue instills and DMSO.
I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)
Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
Also proud mom to the best Bullmastiff on earth, Claus
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That makes me feel better guys... I am in the middle of a bad flare and all of a sudden I can't quite get my bladder empty the normal way...and was just wondering if this happened to other people.~ Brandy ~
~A laugh is a smile that bursts.~ Comment
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Sometimes it helps if I stand up and sit back down.TexasHoney
Let's keep praying for a cure.
IC Symptoms began in early 2001
Divorced : Sept 2002 (Partly due to IC)
Diagnosed with IC in April 2004
Most recent injury - Rupurtured Left Achilles Tendon
Wed Jan 28 2009 (Ice Storm Accident)
2nd Achilles Tendon Surgery - May 28, 2009 after re-injury on May 17
Other Injuries
Broken Left Ankle - July 2004 ( fell off ladder)
Broken Left Ankle (Again) - May 2005 (car accident)
Sprained Left Ankle - November 2006 ( fell off my aunts porch on Thanksgiving Day)
CURRENT MEDS
Elmiron, PyridiumComment
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LOL I do the lifting one butt cheek. Turning on the water in the sink helps as well. Also standing up and then sitting back down. I'm sure there are many others out there with my funny and inventive ways. I hope they post soon and share their tips. I need a good laugh today.
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HI! I do the stand up and sit back down routine, or the twist to one side thing.....it's crazy what we have to do just to pee! LOL Roxie
Double Spinal Cord Stimulator surgery 8/09
Unsuccessful MiniArc sling surgery 12/07
Dx'd Hypothyroid
Dx'd Chronic Axonal Neuropathy & Myopathy
June 2007
Dx'd IC May 2006 (after suffering for 25+ yrs!)
First Cysto 1979
First Hydro 1981 (Many treatments since then!)
Collagin"Durasphere" injections for urethra
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Dx'd: Vaginal Atrophy 2005
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disorder 1989
For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:Comment
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Its looks a bit like a Cirque Du Soleil performance when I'm in the bathroom.
D(\__/)
(o.O )
(> < ) This is Bunny. He's on his way to world domination.Comment
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Lol
you guys are making me L M A O ! ! ! ! !
i honestly just laughed outloud w/ that Cirque du Soleil comment ! ! !
i'm GUILTY too ! ! !
Lee Ann
Current Rx Meds:
Atarax, Ditropan, Elmiron
Prior to pregnancy: The above 3 meds PLUS Neurontin, Topamax, Loratadine, continuous OrthoCyclen, Lidocaine Patches PRN, Temazepam PRN, & Vicodin PRN
Hooray for babies!
Misc. lifesavers: Hot baths, ThermaCare Heat Wraps, Ice Packs. The IC Diet has changed my life.
Didn't work for me:
Detrol LA, Amitryptiline, Morphine, Percocet, TENS unit, Interferential Pain Stimulator Unit, Hypogastric Plexus Nerve Block
IC (Mod-Severe) since 1996
UPDATE: 5/21/08 Pregnancy and breastfeeding afterwards have alleviated my IC symptoms more than anything, EVER. Most days are 100% pain free & I now have normal frequency (as long as I take these 3 meds).
My little sweetie! Jack weighed 9 lbs 12 oz and was born via c-section on Feb. 28, 2008...
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Cirque du Soleil
and it's too bad though that we don't get crazy & beautiful outfits for our performances! no standing ovations either. no one can really witness and appreciate our talents.Lee Ann
Current Rx Meds:
Atarax, Ditropan, Elmiron
Prior to pregnancy: The above 3 meds PLUS Neurontin, Topamax, Loratadine, continuous OrthoCyclen, Lidocaine Patches PRN, Temazepam PRN, & Vicodin PRN
Hooray for babies!
Misc. lifesavers: Hot baths, ThermaCare Heat Wraps, Ice Packs. The IC Diet has changed my life.
Didn't work for me:
Detrol LA, Amitryptiline, Morphine, Percocet, TENS unit, Interferential Pain Stimulator Unit, Hypogastric Plexus Nerve Block
IC (Mod-Severe) since 1996
UPDATE: 5/21/08 Pregnancy and breastfeeding afterwards have alleviated my IC symptoms more than anything, EVER. Most days are 100% pain free & I now have normal frequency (as long as I take these 3 meds).
My little sweetie! Jack weighed 9 lbs 12 oz and was born via c-section on Feb. 28, 2008...
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LeeAnn--perhaps you need to buy you some interesting and flashy loungewear and have it be your performance outfit. When I'm home I can always be found in my colorful loungepants. Designs that I have consist of: Pepsi Cola, Stewie from Family Guy, Dr Pepper, Beer Nuts, a pair that has tons of small horse shoes on them, a pair with chili peppers all over them; the list goes on and on, i'm sure you get the picture.
I expect a standing ovation from everyone who happens to be in my house at the time after my 'performance', and if I've had to perform longer than usual I expect cash! $$$$$
Kidding of course about the cash, though its a darned good idea!
Diana(\__/)
(o.O )
(> < ) This is Bunny. He's on his way to world domination.Comment
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Funny, I'm guilt of the bending forward thing. I'll have to consider the outfits myself.Comment
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How is that we women can work buying a new outfit into any situation... LOL ;p
I personally love the idea!
~ Brandy ~
~A laugh is a smile that bursts.~ Comment
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