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TREATMENT: PRN lidocaine/heparin Home Instillations since 2004 My Helpful Hints for Home Instillation:http://www.ic-network.com/forum/show...985#post309985 Institute of Female Pelvic Medicine (J. Dell, My MD) http://www.mypelvicmedicine.com/index.asp
Thank you for allowing me to share my experiences and offer support. Your physician is the only one to give you medical advice. I hope sharing the information from this site will help you and your physician develop successful management of your IC.
I post to encourage and offer total support for rescue instillations.
Find me on facebook: L. Clark Thomas
Louann
That is my MIL!!! I just emailed her that link so she can see it when she gets back from her sisters. Seriously that should be her theme song, she loses her keys, glasses, debit card, several times a week.
Christine
I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
I have tried every oral medication as well as rescue instills and DMSO.
I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)
Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
Also proud mom to the best Bullmastiff on earth, Claus
Yep, that's me! Thanks for sharing. I just had to pass it along to other friends my age.
Annie IC
Ulcerative Colitis and IBS
Pelvic Floor Dysfunction
_________________________________________________________ Retirement is great! Work is highly overrated!!! ---My dear hubby
________________________________________________________ Never go to a doctor whose office plants are dead. ---Unknown
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