Announcement

Collapse
No announcement yet.

Women's Day

Collapse
X
Collapse
 
  • Page of 1
  • Filter
  • Time
  • Show
Clear All
new posts
Previous template Next
  • #1

    Women's Day

    Did anyone see the article in Women's Day this month on IC? Several of my colleagues found the article and had tremendous compassion for me after having read it.

    I had some trouble getting others to understand the pain I was experiencing, and initially, without a diagnosis, some of my colleagues treated me like I needed psychological help. Needless to say, I did not enjoy this.

    It's a pretty good article and certainly is good at letting people know that IC is different than bladder infections, kidney stones, or any of the other diagnosis.

    Hope this helps someone out there!

    Beandip
    Diagnosed October 2006
    Medications
    Percocet
    Hydroxine
    Elmiron
    Monthly installations

    Tags: None
  • #2
    I did see the article. Any time that there is more focus on this disease, I gain some glimmer of hope. It is a good article to pass on to family or friends. Warm regards, Mare

    Comment

    • #3
      Ic

      I did see the article I really dont think they really went into the over all IC illness. Am I wrong. I guess I can re read the article. I am glad that the ladies in the article are doing well. I am so afraid that my daughters will have it as well. Dr Parons said to he thinks its heardatary(I dont know how you spell it)
      Blessings,
      Ruth

      Comment

      • #4
        I bought a copy today so I could read it. One very good thing about it is that someone who is having symptoms may recognize themselves and seek help and, because of this article, be diagnosed.

        I thought the article was well done, but a little short.

        Donna
        Stay safe


        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help: http://www.ic-network.com/patientlinks.html

        Sub-types https://www.ic-network.com/five-pote...markably-well/

        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.         [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

        Comment

        • #5
          My mom read the it and called me the very next morning. I was scheduled for a lap and thanks to hear reading it and me bringing up in my preop appt with my doc that is how I found out that I had this IC thing. I was very thankfull for it. Not alot of people know about it and hardly anyone can understand the pain that I have been in. Some people thought it was just in my head, which of course just made me feel great u know. At least ways it makes me feel better to 1 know that I'm not crazy and there is something wrong with me. U know. I am very happy that someone is talking about it. Now they truly need to do a talk show on it so more people can learn about it.
          Live your life to YOUR best, and Love to YOUR best!!!



          DX in 03 with Shingles
          Removal of Left ovary due to Cyst in 2005,
          I have had cyst since I started my period as a child age 12
          Hysterecotmy December 06
          IC DX March 07 by PST
          2 "rescue" instills in March 07
          Cyco May 07 confirmed IC
          Uro study June 07
          1st Pain Block July 17,08
          Hydro/Cysto Nov 11, 2008
          12-11-08 was told I had alot of inflamation

          Meds: Allergic to 6 things
          Premarin......taking the gen cause I get it at Walmart for 4$$
          Presique for my drepression :woohoo:
          Abilify for my depression
          Adderall ...found out I'm ADD...makes sense now
          Kolopin for anxiety
          Noroco for my pain
          Valtrex for my shingles as needed

          Sorry if my spelling is off on the meds [/FONT]


          http://community.webshots.com/user/s...host=community

          Comment

          • #6
            My mom also sent me the article in the mail after reading it to me over the phone. I was glad she saw it and now will stop telling me to "just stop thinking about it. Mind over matter." I'm going to share it with my husband too so that he understands although I have to say that he's been pretty good about it.

            Comment

            Previous template Next
            Working...
            X