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  • A Must Read

    I'm reading a book called "How Doctors Think" It's a must read for us who see so many doctors.

    Kara
    Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

    "One hour at a time, this was NOT my American Dream but it has to work out somehow."

    I also have some journals of my journeys, past and some present at:
    http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

    Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.

  • #2
    Hey Kara,
    Is that the one by Dr. Goopman?
    I skimmed through it but I will go back and read it. The few parts I read were really compelling.
    Hope you are feeling better......give your mom a hug for me and tell her we are all praying for her
    Miss Bessie

    Galatians 6:2 - Carry each other's burdens, and in this way you will fulfill the law of Christ.

    Hebrews 13:2 - Do not forget to entertain strangers, for by doing so some people have entertained angels without knowing it.

    Proverbs 4:23 - Above all else, guard your heart, for it is the wellspring of life

    Comment


    • #3
      Yes

      Laura,

      Yes its called "How Doctors Think" by Jerome Groopman, M.D.

      I only wish he was around for us IC patients.

      Kara
      Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

      "One hour at a time, this was NOT my American Dream but it has to work out somehow."

      I also have some journals of my journeys, past and some present at:
      http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

      Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.

      Comment


      • #4
        I've just started it, and it's really interesting. Nice, clear writing, also -- nothing to0 scientifically challenging for us "laypeople," but at the same time it is a serious book. I'd like to see them make it required reading for all medical students. As Kara said, it's a must-read for us, because if we can figure out how they're thinking, we can probably communicate with them much more easily. BTW, it's reviewed in the Sunday NY Times this week. Michael Chrichton wrote the review; he liked it too.
        Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
        Wishing you happiness and good health, and all the best out of life.

        Peace, Carolyn
        ___________________________________________________

        Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


        On the Beach with IC

        Comment


        • #5
          I just called borders and asked them to hold a copy of this book. It seems like it will be interesting. I will start it tonight. I love to read. My hubby gets nervous when we go to borders because I can walk out of there broke easily if I wanted to .
          Jen

          Comment


          • #6
            When I was an undergraduate in Boston at MIT, we had the whole month of January off for a period called "IAP" or "Independent Activities Period." We were allowed access to a lot of things -- and one year, I decided to take some courses at Harvard Medical School.

            One class, called "The Genetic and Molecular Basis of Some Common Diseases" was taught by Jerry Groopman, and he was an AWESOME guy. He is brilliant as well as compassionate, and I would encourage you all to read this book. Back then he was advocating for doctors to LISTEN to patients, and we often had patients as guest speakers in the course... they would come in and tell their stories, and unless we had to ask a question to clarify a symptom, we were not allowed to interrupt the patient or jump in with a diagnosis; in fact, if you did that, your grade suffered.

            Jerry Groopman is awesome
            ****
            Jen

            *Diagnosed with severe IC in 2004
            *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
            *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
            *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

            **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

            Comment


            • #7
              I'm thinking of writing a book report on it. Not all of us like to read. I am right in the middle of it. I love it so far. It will be able to help us communicate with our doctors in a way that gets OUR needs met. I would love to meet Dr. Groopman. It seems as though he would be sympathetic to us. The book opens with a Celiac Case which is something I also suffer from. I was diagnosed last year after my Mom. It sucks but at least the word it out on that disease.

              Kara
              Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

              "One hour at a time, this was NOT my American Dream but it has to work out somehow."

              I also have some journals of my journeys, past and some present at:
              http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

              Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.

              Comment


              • #8
                Thank you SO much for the book recommendation, Kara! It definately sounds like something I am going to amazon RIGHT NOW and ordering!!

                love,
                Kara
                Hugs and Wishes for Pain FREE days!!,
                Kara


                www.loveforearth.net ~reducing plastic waste one bag at a time~

                Facebook: Kara Kaiser
                Twitter: Love4Earth

                Me and my Guccigirl... she helps me through those painful hours!

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