Thank you for visiting the ICN Support Forum. We are so happy that you found us! The ICN Support Forum is home to 50,000 patients who have participated in our 24/7 support system. However, to protect the privacy of our members, members of the public can not read posts unless you have registered first.
It's easy to register! Just click the "sign up" button in the upper right corner of the page. Make sure you use a correct email address because we'll send you an email to confirm that you are a real person!! We also screen all new applicants to verify that they aren't bots or spammers! If you have any problems, please feel free to send a quick email to: [email protected]!
I picked up a copy and read it yesterday. It gave me a whole new outlook on IC and how I have been dealing with the disorder. I have been dwelling on the negative and bringing negative thoughts into my life. Time for a change.
I recommend reading it!!!!:woohoo:
Interstitial Cystitis: Elmiron and Hydroxyzine
Depression/Anxiety: Remeron, Cipralex and Clonazepam
*tried instills for nearly a year, had a break then started again for about 4 months...discontinued due to no improvement and increased flares
* 2 hydrodistentions :
* currently on "Nabilone" for pain management
Taken the following:
Gabapentin no relief but could tolerate it
Lyricano relief but could tolerate it
Cymbalta severe depression/anxiety etc.
Topamax severe nausea and weight loss
Oxycodone: I could tolerate if I used it for flares only...not for extended use due to constipation
What helps IC: yoga/meditation are my current treatments along with chiropractic and pelvic physiotherapy and acupuncture
Other conditions...
Vulvadynia (amytriptaline cream - no longer using to to irritation)
Severe IBS
Chronic Sinus pain (nasal rinse as need)
Migraines
Lower back and sacroiliac joint disfunction