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  • Snow SNOW!

    Thirty minutes North of us is a disaster! Unreal! Over 6 FEET of snow and still coming....

    This is the Video

    This is the article:

    This Video SAYS IT ALL!

    Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

    "One hour at a time, this was NOT my American Dream but it has to work out somehow."

    I also have some journals of my journeys, past and some present at: and

    Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.

  • #2
    yikes.. I heard you all were getting blasted.. keep warmand hope it don't come any closer to you
    'The will of God will never take you where the Grace of God will not protect you.'


    • #3
      Yikes, cover up and stay warm. We have had wind chills at -15 to -30 below here this week. BRRRRRRRRRRRRR


      • #4
        Thanks for sharing that Kara...

        Its sunny and in the high 60s here.....

        ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!

        Link to Patient Handbook:

        Diet Reference Sheet:

        Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

        Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

        Meds I have Tried:
        Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
        Lexapro< Bad reaction to this med!
        Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

        Dx With IC in Nov 2006 with Hydro/Cysto
        Hydro/Cysto Caused Bladder to Rupture.

        Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.

        ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.


        • #5
          This was in the news down here in NC, too! That is just amazing... sooooo much snow!!!!!

          *Diagnosed with severe IC in 2004
          *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
          *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
          *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

          **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.


          • #6
            We havent seen temps above 20 in a few weeks. And Wednesday we got 5 inches of snow. Its like an icebox here! I should take everything out of my freezer and put it outside. Bet it would stay cold enough!

            My grandma grew up just south of Erie, PA. I remember her telling me a story about when she was little. Her mom was real sick and her dad and mom were at the hospital in another town. The snow was so high that neighbors were bringing my grandma and her sisters food thru the second story window! WOW.

            I guess I should be thankful that we only got a few inches. I couldnt imagine 100 inches!
            Meds: Percocet PRN; Pyridium PRN. First symptoms Dec 2005. Diagnosed in March 2006.

            I am the proud mom of a two year old boy! I was lucky enough to be in remission my entire pregnancy. If you have any questions regarding my pregancy, delivery, breastfeeding, or pumping, feel free to contact me!

            Im on Facebook! Just tell me you are from the ICN. Look me up under Kim Wayne.

            I love working as a CNA in a nursing home. Started school in August part time. Going for my LPN!!!!


            • #7
              Bundle up and try to stay warm. So glad that when it gets cold here that it doesn't get that cold. We're suppose to get a cold front sometime next week - getting down in the 20's-30's but its not suppose to snow or anything!! Right now its in the 40's.


              • #8
                kara i don't know about you but i am so sick of this white sh**!!!!!!!!!!!!! i was just telling my husband,we get a green christmas,and now it snows for 7 days.aaaaaaahhhhhhhhhhhhh.can you tell i no longer like snow.


                • #9
                  Wow, what a winter this year! Somehow I don't think we will be seeing spring for awhile yet!

                  Stay warm and drive safely if you have to drive anywhere!



                  • #10
                    So much for global warming
                    Miss Bessie

                    Galatians 6:2 - Carry each other's burdens, and in this way you will fulfill the law of Christ.

                    Hebrews 13:2 - Do not forget to entertain strangers, for by doing so some people have entertained angels without knowing it.

                    Proverbs 4:23 - Above all else, guard your heart, for it is the wellspring of life