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  • #1

    Awake at 2:45 am!

    I have slept so well the past few days but between Tom snoring, and my upset stomach, and probably the prednisone, I am wide awake and drinking hot tea. I'm going to go sleep in my little boy's room tonight since he's up at his Dads for the night. I just can't fall asleep and if I've got to be awake and reading I'd rather do it in a bed of some sort rather than the couch! I'm so tired....I was so wired earlier, and I think that those other icky side effects of this prednisone are starting to kick in. I was sleeping SO good there for a few nights! Where are all the night owls at tonight?
    *IC-- Summer 2004; PFD--October 2005
    *Fibro--Fall 2000; CFS-- Fall 2000
    *MPS--Fall 2000; Crohn's disease-- 1997*IBS,GERD, *Migraines, hypothyroidism, GYN problems *Degenerative Disc Disease/scoliosis

    Total Abdominal Hysterectomy--adenomyosis--9\08

    04/17/09 Crohn's disease almost killed me with a combo of extreme constipation from pain medications. My bowel ruptured, I almost died from peritonitis and spent several days in the ICU then more in a private room on the floor. If you have any questions about severe constipation from pain meds please don't hesitate to send me a message.
    Tags: None
  • #2
    Hi there!

    If its any consolation I was up at 3am too! :-(
    Its a shame we dont live in the same country as we could have had a good chat!
    I know how you feel though, I had a good few night sleep last week but tonight I cant get to sleep and I'm in aflare!
    Its so frustration as I have to be up at 6am every morning which is so hard when I've not had any sleep and a painful bladder.
    Well I really hope you manage to get some sleep tonight in stead

    take care
    x
    Started with symptoms 2004 after a severe infection.
    Was diagnosed with IC Feb 2006 after cystoscopy.
    Diagnosed with vulvodyina and PN in july 2006.
    Dignosed with ME and IBS Oct 2006.
    Currently taking Amytriptaline 50mg, regular pain killers and birth control!
    Also doing IC diet and regular use of heat packs.
    Still struggling with IC and controling my symptoms so looking for some help

    also recently had abnormal pap, CIN III and just had LEEP done 2007

    Comment

    • #3
      Hi Sandy! I'm here! No sleep yet for me either! It is 5:19 am here, and I havent been able to sleep at all yet. I have to go to the DMD later. This always happens when I have to go somewhere the next day and wont be able to sleep in. GRRR!! Hope you finally made it and that I can at least get a nap in before I go! Many hugs, Amy

      Comment

      • #4
        Wide a wake here also all night just to sick to turn on the PC until now.
        It started with a flare from you know where then to a migraine and ended with cookie tossing until about 3AM. Next time I will check in I promise for those 3 AM'ers

        Comment

        • #5
          I wish I would have known that people were on in the middle of the night, lol. I had horrible diarreha (I have no idea if I'm spelling that right but feel too crappy to care) all last night and was up and down the whole night. I finally got some sleep this morning before I called my boss and told her there was no way I could come in today with the way I feel. Between me being sick and hubby not feeling well this will already be the 4th day I've missed this year! Thank goodnes my boss knows that I really hate to miss work and really care about my job. I still feel really crappy because everytime I go to drink something, like to take my Elmiron it makes my bowels wake up again and then I'm running to the bathroom. I hope everybody else is starting to feel better at least
          Christine



          I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
          1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
          2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
          I have tried every oral medication as well as rescue instills and DMSO.

          I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

          Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
          Also proud mom to the best Bullmastiff on earth, Claus

          Comment

          • #6
            I was up, but too busy dealing with my hubby, who was up with bloody diarrhea and vomiting all night -- we're going to the doc this am.

            I'm so sorry the prednisone side effects have kicked in
            ****
            Jen

            *Diagnosed with severe IC in 2004
            *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
            *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
            *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

            **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

            Comment

            • #7
              Ah yes, the Prednisone side effects, ugh! I was a crazy lady! I'd go to sleep, but was up at like 5:30-6am without an alarm clock! ECK! But, I did get a lot of stuff done, lol. It was go-go-go-go!

              Oh geez Jen, do keep us posted on hubby eh?
              Hugs,
              Tracey
              How do you eat an elephant? One bite at a time...

              Harry arrived 2/23/09!



              *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

              IC Diet Cheat Sheet:
              http://www.ic-network.com/diet/2009icdietlist.pdf


              Dx's:
              IC dx'd Nov 2004
              Lymphocytic Colitis dx'd July 2005
              Possible IBS
              Current IC Meds
              Vistaril 25mg in the evening
              Previous IC Meds taken:
              Cystoprotek - 2 caps 2x's a day
              Elmiron, 100mg 3x's a day
              Ditropan, 5 mg 3x's a day
              Others:
              Wellbutrin 150mg 2x's a day for Anxiety/IBS
              Pepcid 40mg a day for GERD
              Zytrec for Nasal Allergies
              Align Probiotic daily for IBS

              Comment

              • #8
                I guess I was on the other end of the sleeplessness --- I was laying in bed awake until almost 3:00, then slept until 6:00.

                Now I'm up for the day.

                Donna
                Stay safe


                Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                Have you checked the ICN Shop?
                Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                Patient Help: http://www.ic-network.com/patientlinks.html

                Sub-types https://www.ic-network.com/five-pote...markably-well/

                Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.                 [3MG]

                Anyone who says something is foolproof hasn't met a determined fool

                Comment

                • #9
                  something is in the air I'm telling ya.. I was up from 12:30 till 4:30........... think I will take an nap in a while..
                  'The will of God will never take you where the Grace of God will not protect you.'

                  Comment

                  • #10
                    Leslie, is it your kidney stone making you stay awake last night??? I hope by now you're feeling better and have passed the darn thing.

                    Jen, how is your husband??? It's a good thing he's got you there to take care of him. Let me know how he is.

                    It is rare that I am on here in the middle of the night, but when I am there is usually someone that I know I can talk to! Next time you have insomnia check the board! LOL

                    I've been dozing all day, literally....slept great from about 3:45 to 6 in my son's bed, Tom went to work so I went and got back in our bed, and slept on and off, mostly OFF til about 10 minutes ago....1:15, and now I'm like OKKKKK LETS GO LETS GO! My mind is OFF and theres no stopping it now!

                    Maybe it IS a good thing I reduce my dose today???????? I drop to 40/day for 4 days now....
                    *IC-- Summer 2004; PFD--October 2005
                    *Fibro--Fall 2000; CFS-- Fall 2000
                    *MPS--Fall 2000; Crohn's disease-- 1997*IBS,GERD, *Migraines, hypothyroidism, GYN problems *Degenerative Disc Disease/scoliosis

                    Total Abdominal Hysterectomy--adenomyosis--9\08

                    04/17/09 Crohn's disease almost killed me with a combo of extreme constipation from pain medications. My bowel ruptured, I almost died from peritonitis and spent several days in the ICU then more in a private room on the floor. If you have any questions about severe constipation from pain meds please don't hesitate to send me a message.

                    Comment

                    • #11
                      That is always my schedule. I don't even think about getting on the computer...That is usually when I catch up with my shows that I TIVOed. My sleep pattern is so horrible. For the last couple of weeks as soon as I would get home and settled, I would drift off to sleep while watching TV. I would try to get up and clean or something when I will feel myself drifting, but I couldn't get anything done. I sleep for about 3 hours and then as soon as hubby is settling in for bed, I am wide awake. I take my sleep meds and normally drift off again around midnight then am wide awake again at 3:30 or so. I finally go back to med around 5:00 to 5:30 and sleep well until 7:30. I am not drowsy during the day. Last Friday night, I was up until about 6:30 am and then slept until early afternoon. I can't even say that the freq/urg is what wakes me up. I normally go just because I got up, but I do have pain, but it's not too high on the pain scale. I take normally a half of a 10mg Lortab, but still can't go back to sleep. I am on valium, Lyrica, amitrytiline, and 30 mgTemazepam (generic for Restoil) and B&O supp.

                      I keep wondering if I need to be in some sort of sleep study since I can
                      t seem to find a med to keep me asleep. It's not like I was a few months ago that I would be in a flare and couldn't sleep. Any thoughts??? I have tried the meditation, reading books, just lying there, etc.

                      Tracey

                      Comment

                      • #12
                        Tracey, I take Ambien CR. It does work most of the time, but I still have those nights, like last night every now and then. I suspect this time it was more the prednisone making me wired out than anything. I had a major stomach ache and just can't lay in the bed like that either....I'm not a man and refuse to poot under the covers! LOL

                        I also used to take regular Ambien and that, I think, worked better for me than the CR. Lots of people have success with Lunesta, but it does have a side effect of leaving a HORRIBLE metal like taste in your mouth, which is bad enough it keeps me from sleeping.
                        *IC-- Summer 2004; PFD--October 2005
                        *Fibro--Fall 2000; CFS-- Fall 2000
                        *MPS--Fall 2000; Crohn's disease-- 1997*IBS,GERD, *Migraines, hypothyroidism, GYN problems *Degenerative Disc Disease/scoliosis

                        Total Abdominal Hysterectomy--adenomyosis--9\08

                        04/17/09 Crohn's disease almost killed me with a combo of extreme constipation from pain medications. My bowel ruptured, I almost died from peritonitis and spent several days in the ICU then more in a private room on the floor. If you have any questions about severe constipation from pain meds please don't hesitate to send me a message.

                        Comment

                        • #13
                          mine husband/baby related.. baby had a nightmare, I got him settled down, and he was still fussing but not crying, hubby came in the bedroom and started talking to him and gave him tropical punch kool-aide.. what was he thinking....... he should not have gone in there and talked to him. he would have gone back to sleep................... guess who will be getting him some chocolate at bed time, and leave him with daddy to deal with at bed time. he he he
                          'The will of God will never take you where the Grace of God will not protect you.'

                          Comment

                          • #14
                            LOL Cindy...sugar rush revenge!
                            *IC-- Summer 2004; PFD--October 2005
                            *Fibro--Fall 2000; CFS-- Fall 2000
                            *MPS--Fall 2000; Crohn's disease-- 1997*IBS,GERD, *Migraines, hypothyroidism, GYN problems *Degenerative Disc Disease/scoliosis

                            Total Abdominal Hysterectomy--adenomyosis--9\08

                            04/17/09 Crohn's disease almost killed me with a combo of extreme constipation from pain medications. My bowel ruptured, I almost died from peritonitis and spent several days in the ICU then more in a private room on the floor. If you have any questions about severe constipation from pain meds please don't hesitate to send me a message.

                            Comment

                            • #15
                              I think we were all up, I was up on and off going to the bathroom, and really couldn't get back to sleep because of that and the dogs, they kept on getting to the pillows, so I just took one of the pillows and went to the livingroom and read for a couple of hours (2-4) till I fell back to sleep this morning. (actually its most morning. Then someone said to me today, that I looked "Chipper" I told her wait till the end of the week and tell me that again!
                              (usually by Thursday I do not look chipper!! Hope most of you can and or have been able to take a little nap this afternoon while some of us had to go to work.

                              Comment

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