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  • What's the point anymore?

    I FINALLY got a rheumatologist appt for March 26th. This guys is supposed to be good, according to the dummy at the doctor's office. She probably has no idea what a rheumatologist even does. I'm just so fed up...they can't find my labs, so I don't know what the lupus studies showed. They finally told me my CT scan was "negative" but I don't really know what it's negative for and neither do they. I know something is up there that HURTS a whole lot, and I am pretty sure I'm not imagining this huge scab that comes out like clockwork every 3 days....but my CT is...NEGATIVE.

    It's all making me very annoyed and angry. What is the point of going to see a rheumatologist who is going to tell me what all the other rheumy's and neuros and GP's told me. They don't KNOW what's wrong with me.

    Really having a rough day around here. I'm either crying or angry. I want something done about my sinuses, but I have to find my OWN ENT or allergy specialist because I guess since there's nothing to be seen on the CT, it has to be something r/t allergies.

    I'm rambling, but I'm so TIRED...ya know? I'm sick and tired of being sick and tired, and don't see the point of going to see a doctor who isn't going to be the magic one who tells me THIS is what's wrong with you Sandy.

    The only doctor that can probably help me a little might be an ENT....IF they can even help me at this point. I guess my entire nose has to scab over for them to take me seriously.

    Sorry, I don't usually have such a negative attitude, but this all has just gotten to me badly today.
    *IC-- Summer 2004; PFD--October 2005
    *Fibro--Fall 2000; CFS-- Fall 2000
    *MPS--Fall 2000; Crohn's disease-- 1997*IBS,GERD, *Migraines, hypothyroidism, GYN problems *Degenerative Disc Disease/scoliosis

    Total Abdominal Hysterectomy--adenomyosis--9\08

    04/17/09 Crohn's disease almost killed me with a combo of extreme constipation from pain medications. My bowel ruptured, I almost died from peritonitis and spent several days in the ICU then more in a private room on the floor. If you have any questions about severe constipation from pain meds please don't hesitate to send me a message.

  • #2
    Oh cripes Sandy, you have definitely had the run-around haven't you? There's got to be a dang copy of your labs somewhere , right? I mean, the lab doesn't keep any records? Now with the digital age, I would think they could just look you up and print another copy! Oooooh I don't blame you for being peeved and fed right up! ARGH! It's like "Hellooooooo people- does this nose seem NORMAL to you? Would you like to have something causing you terrible pain in YOUR sinuses??" Oops, looks like I ranted there right with ya, but dang it - that just ticks me off!!

    Sending you tons of squishy hugs and lots of margaritas!!!!!!!
    Hugs,
    Tracey
    How do you eat an elephant? One bite at a time...

    Harry arrived 2/23/09!



    *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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    Dx's:
    IC dx'd Nov 2004
    Lymphocytic Colitis dx'd July 2005
    Possible IBS
    Current IC Meds
    Vistaril 25mg in the evening
    Previous IC Meds taken:
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    Elmiron, 100mg 3x's a day
    Ditropan, 5 mg 3x's a day
    Others:
    Wellbutrin 150mg 2x's a day for Anxiety/IBS
    Pepcid 40mg a day for GERD
    Zytrec for Nasal Allergies
    Align Probiotic daily for IBS

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    • #3
      I am so sorry all of this is happening to you. It just doesn't seem fair. I can't understand why they can't get their act together???

      Sending you lots of hugs
      Miss Bessie

      Galatians 6:2 - Carry each other's burdens, and in this way you will fulfill the law of Christ.

      Hebrews 13:2 - Do not forget to entertain strangers, for by doing so some people have entertained angels without knowing it.

      Proverbs 4:23 - Above all else, guard your heart, for it is the wellspring of life

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      • #4
        I am with you guys.....I dont see what they dang holdup is!!! Like Tracey said, you'd think they could just go and print out a copy! GRRR!!!! You have every right to be angry. This makes ME mad and it isnt even my tests, so I can only imagine how mad you are!!!

        Sending you hugs of support,
        Amy

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        • #5
          Thanks everyone...and a day early Tracey! I'm just so irritated with all of this. I don't understand why it has to be so complicated when all I wanted was my labs and my appt with the rheumy and of course the CT results.

          I'm sick of having negative or borderline test results. I don't want there to be something 'wrong', but I want to have an answer for once in my life.

          So....I guess I'll go in search of a good ENT before the pollen season gets here and my head flat out explodes from the pressure! Maybe they'll find my labs before it's time to go to the rheumy in March. Doubt it...they did mention I may have to have them redrawn.

          blah
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          blah
          *IC-- Summer 2004; PFD--October 2005
          *Fibro--Fall 2000; CFS-- Fall 2000
          *MPS--Fall 2000; Crohn's disease-- 1997*IBS,GERD, *Migraines, hypothyroidism, GYN problems *Degenerative Disc Disease/scoliosis

          Total Abdominal Hysterectomy--adenomyosis--9\08

          04/17/09 Crohn's disease almost killed me with a combo of extreme constipation from pain medications. My bowel ruptured, I almost died from peritonitis and spent several days in the ICU then more in a private room on the floor. If you have any questions about severe constipation from pain meds please don't hesitate to send me a message.

          Comment


          • #6
            Sandy,
            WOW! I can't believe that your doc's office lost some of your records, only tell you the CT was "negative," etc. I am sure they are frustrated, but how do they think you feel? I think sometimes docs forget that...when they get frustrated because they can't figure out what's going on and they want to just give up, they forget that there is a real person behind that chart...someone with a family, a life, and a need for the right treatment.

            I hope that you can find the right doctor very soon. You obvoiusly need someone more cutting edge, someone that will look beyond the obvious to really figure out what is going on.

            And don't worry about venting and not being positive..you deserve to vent and be down right now, that's okay! Who wouldn't be angry and frustrated in your situation? Just don't give up, you will find the right doc and get on the right treatment path soon!

            ~Claudia

            "A heart is not judged by how much you love; but by how much you are loved by others."
            ~ The Wizard of Oz

            "If I ever go looking for my heart's desire again, I won't look any further than my own
            back yard. Because if it isn't there, I never really lost it to begin with!" ~ Dorothy


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            • #7
              I think it may be time for a "There, there, tomorow will be better" hug so I'm sending one..... {{{{{{{{{{{{{{{{You}}}}}}}}}}}}}}}}}}}}

              Donna
              Stay safe


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              I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
              [3MG]

              Anyone who says something is foolproof hasn't met a determined fool

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              • #8


                What a royal pain in the you know where!! I am so sorry. Ughhhhh.....

                Donna's right though; it's amazing the difference a day can make. I know it won't change your lost lab work, etc, but... maybe something great will happen
                ****
                Jen

                *Diagnosed with severe IC in 2004
                *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
                *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
                *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

                **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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