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  • come play it will be fun

    Hi girls I have a great idea, that I head of long ago. Pick someone out of the boards and pot something nice about them. Today when I went to the uro my Doctor told me he admired me for what I am doing with Jake..
    so lets give it a whirl... Ill go First


    I Choose Dancemom, she is kind, loving and easy to get along with. we are very much alike in some ways and completely different in others. I met her here and she became my very best friend. She is a wonderful mommy and wife. she derives this cruise she is going on.

    To me, she is my sister. She is Momma Leslie. I know if I need her she will stop what she is doing to talk to me, even if it was 3 in the norning.
    I love ya girl
    'The will of God will never take you where the Grace of God will not protect you.'

  • #2
    I can think of something nice to say about everyone on the board but at this moment I would have to pick Amy (Ihurttoo) because when I was sad about my son leaving home she wrote such a comforting and beautiful post that I will treasure forever. She made one of the hardest times in my life a little easier to handle and I will be forever grateful
    Last edited by Bessie; 03-05-2007, 05:40 PM.
    Miss Bessie

    Galatians 6:2 - Carry each other's burdens, and in this way you will fulfill the law of Christ.

    Hebrews 13:2 - Do not forget to entertain strangers, for by doing so some people have entertained angels without knowing it.

    Proverbs 4:23 - Above all else, guard your heart, for it is the wellspring of life

    Comment


    • #3
      I want to say that Amy (ihurttoo) has helped me SO much through this Lupus struggle. I come to her for advice at least once a week!! Thanks Amy, for all you do!
      *IC-- Summer 2004; PFD--October 2005
      *Fibro--Fall 2000; CFS-- Fall 2000
      *MPS--Fall 2000; Crohn's disease-- 1997*IBS,GERD, *Migraines, hypothyroidism, GYN problems *Degenerative Disc Disease/scoliosis

      Total Abdominal Hysterectomy--adenomyosis--9\08

      04/17/09 Crohn's disease almost killed me with a combo of extreme constipation from pain medications. My bowel ruptured, I almost died from peritonitis and spent several days in the ICU then more in a private room on the floor. If you have any questions about severe constipation from pain meds please don't hesitate to send me a message.

      Comment


      • #4
        i haven't been here long but i would have to say tigger.she is so strong with everything shes going through and has a very kind heart for what she is doing for jake.tigger,you make me want to be a better person.

        Comment


        • #5
          Oh Tigg..I have so many on this bored that I am so grateful to..


          Aprilmae<She has became a dear friend, who I feel I can talk to about anything.

          Trishann<She has always been one of the first to respond and help out when she can..Answering any of my questions..

          Ihurttoo<Shes a wonderful person, even with her daily struggles shes always here if I need her and always gives my faith new meaning.

          Tigger<She has made me laugh when all I wanted to do is cry.

          Traceann<She keeps my spirits high knowing, that im not the only crazy one
          here..

          Sharon<She is a very kind a sweet person, she answers all my post and keeps me laughing on other sites.

          Waterflow<She always is one of the first to respond to my post and gives me support.

          SandyRN<She is always there even though bless her heart she is prob in more pain than I am, but she always gives good medical advise when I need it.

          Kjd<She always listens even if I just am in a venting mood.

          Danecmom<She always has very kind words to say.

          Octoberfarm<She is always here for everyone and she says the kindest things.

          Moonheart<She always gives me inspiration.

          IClori<She is one of the most inspirational persons on this bored, she never goves up and keeps fighting day by day..But she is always here for people when they need her, even though she is going through her own battles..Lori you are a blessing, Thank you for all you give...


          I could keep going on and on.. There are so many wonderful people here on this site. I owe so much to Jill for creating such a wonderful place to come to and learn things that you cannot find anywhere else..

          And Tig, Trace, April, Sharon..You all have became a very special part of my life..I love being able to call you all my friends..You girlys know things no one else knows and I hope we keep it that way..hehehe

          (((((((((hugs))))))))))) to all you wonderful woman out there who have made a differnace in my life
          Last edited by leelee88; 03-07-2007, 06:34 AM.
          Hugs
          Ronda

          ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


          Link to Patient Handbook:
          http://www.ic-network.com/handbook/

          Diet Reference Sheet:
          http://www.ic-network.com/diet/icndi...tsheet0909.pdf

          Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

          Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

          Meds I have Tried:
          Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
          Lexapro< Bad reaction to this med!
          Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

          Dx With IC in Nov 2006 with Hydro/Cysto
          Hydro/Cysto Caused Bladder to Rupture.

          Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



          ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

          Comment


          • #6
            Oh where to begin.....

            This was a great idea Tigger Gal

            leelee88 - she is such a dear friend and a rational sounding board when I am anything but rational

            ihurttoo - always full of nonjudgmental advice and encouragement

            kara29 - a true inspiration to me to keep going on the really bad days. I have had the great opportunity to speak to her once and she was so compassionate

            traceann and tiggergal - for showing me it is okay to be absolutely nuts and to just go with the flow!!!

            carolintexas - we live not too far from each other - it was great to meet a fellow icer

            sandyrn - always helpful when I have a question - she is nicer than the nurses at my doctors offices!!!!


            OK I will quit for now!!

            Comment


            • #7
              Well I have some people I would like to name...Donna, Sandy RN, Tigger Gal, Yevette, Tracy Ann, Jen, there are tons more! Thanks so much for your inspirational and caring posts!

              Erika
              IC diagnosed officially via cysto/urodynamics 1/26/07

              Grade II Endometriosis diagnosed via lap 12/11/07

              "Fall down seven times, Stand up eight."

              "Life is a tragedy for those who feel and a comedy for those who think."

              Current Treatments:
              Interstim Since 5/25/07!
              Birth Control

              Comment


              • #8
                what a great idea tigger!
                I have been helped by many but I would have to say that topcop Claudia and Jen have been so helpful and kind to me.
                Claudia you have become a dear friend! You bless me each day!
                Faith is not believing God can; Faith is believing God will!

                Comment


                • #9
                  I would have to say Tigger and BabsRN I have never ever had 2 friends like these 2 ladies. They drop there l ives and listen no matter what is going on

                  Comment


                  • #10
                    I really can't identify any specific individuals. The forums were made a reality by Jill, who has invested so much of her life to giving life to others. They are made a success by each and every individual who has ever posted here, either seeking help and receiving it --- or by being here to give support.

                    So I would have to say special recognition needs to be given to each and every registered member here.

                    Donna
                    Stay safe


                    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                    Have you checked the ICN Shop?
                    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                    Patient Help: http://www.ic-network.com/patientlinks.html

                    Sub-types https://www.ic-network.com/five-pote...markably-well/

                    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                    [3MG]

                    Anyone who says something is foolproof hasn't met a determined fool

                    Comment


                    • #11
                      I agree with Donna...

                      But I will name a few specifics... Donna and Jill, thank you. When I left the boards for a month or so just before the holidays for personal reasons, your emails to me to check on me and to just chat were appreciated much more than you could ever know.

                      SharonA -- I have shared more with you than just laughs on the board; meeting you in person was a wonderful thing, and talking to you on the phone is a joy. I don't have a lot of female friends right now, and your companionship (even if it is just phone or electronic) is treasured in my heart. I miss our heart-to-hearts over lunch at cozy places

                      Yvette -- before my InterStim surgery, you sent me a fabulous PM detailing all sorts of tips for caring for myself during the trial and the permanent surgeries, and they made my life so much easier. I hope you don't mind but I will pass along some of the suggestions you gave me to others undergoing the same procedures.

                      Tracey83 -- you've also supported me behind the scenes throughout the InterStim thing, and you've also let me cry on your shoulder via email when I needed it. Thank you!!

                      But, I feel like I'm playing favorites All of you have a great impact on what this forum is today, and you all make me want to come back daily to see how everyone's doing and how your lives are going!!
                      ****
                      Jen

                      *Diagnosed with severe IC in 2004
                      *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
                      *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
                      *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

                      **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                      Comment


                      • #12
                        I saw this last night and had to step away and think - it was overwhelming for me,trying to just come up with one, lol. There are soooo many people that I could go on and on about how great they are, I don't even know where to start!!!!!

                        How do you pick just one, or just 10 etc, lol!?! This is so much pressure, lmao, there are just too many people I could say nice things about...gosh.

                        Really, I want to say every one of us is on my mind as being caring, thoughtful, silly, wonderful, supportive, strong, kind-hearted, SMART, funny........
                        Hugs,
                        Tracey
                        How do you eat an elephant? One bite at a time...

                        Harry arrived 2/23/09!



                        *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                        IC Diet Cheat Sheet:
                        http://www.ic-network.com/diet/2009icdietlist.pdf



                        Dx's:
                        IC dx'd Nov 2004
                        Lymphocytic Colitis dx'd July 2005
                        Possible IBS
                        Current IC Meds
                        Vistaril 25mg in the evening
                        Previous IC Meds taken:
                        Cystoprotek - 2 caps 2x's a day
                        Elmiron, 100mg 3x's a day
                        Ditropan, 5 mg 3x's a day
                        Others:
                        Wellbutrin 150mg 2x's a day for Anxiety/IBS
                        Pepcid 40mg a day for GERD
                        Zytrec for Nasal Allergies
                        Align Probiotic daily for IBS

                        Comment


                        • #13
                          I don't want to name specific people either b/c I know there are people who have a quiet way about them who may do a lot in PM or by phone or different ways than some. Everyone is important here - particularly the new people.

                          If your name isn't on here it doesn't mean you are any less important to the rest of us, so don't feel bad. Even if you've only touched one other person's life here - that is A LOT. Especially if you've done it without fanfare - and I know there are lots of you out there!
                          Kim

                          Diagnosed August 2001

                          Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)


                          Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

                          I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.

                          *****************************

                          “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

                          “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy

                          Comment


                          • #14
                            I agree....without the help of EVERYONE on this board I would not be sane today..well, my being sane is debatable! Seriously, I mean that...I've met the nicest, kindest people here and everyone here has something special to give.
                            *IC-- Summer 2004; PFD--October 2005
                            *Fibro--Fall 2000; CFS-- Fall 2000
                            *MPS--Fall 2000; Crohn's disease-- 1997*IBS,GERD, *Migraines, hypothyroidism, GYN problems *Degenerative Disc Disease/scoliosis

                            Total Abdominal Hysterectomy--adenomyosis--9\08

                            04/17/09 Crohn's disease almost killed me with a combo of extreme constipation from pain medications. My bowel ruptured, I almost died from peritonitis and spent several days in the ICU then more in a private room on the floor. If you have any questions about severe constipation from pain meds please don't hesitate to send me a message.

                            Comment


                            • #15
                              I love many of you for your thoughts and kindness here. Georgia, you give me hope each and every day, you pick me up when I am feeling like I can't go on, and you always remember to tell me to laugh (to keep from crying, LOL). You are an inspiration to me!

                              ~Claudia

                              "A heart is not judged by how much you love; but by how much you are loved by others."
                              ~ The Wizard of Oz

                              "If I ever go looking for my heart's desire again, I won't look any further than my own
                              back yard. Because if it isn't there, I never really lost it to begin with!" ~ Dorothy


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