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  • #16
    Thanks girls........
    WE ALL ARE THE BEST WE ALL need to be Reconized and supporters.. I just thought we could share with each other the one peron that really helped them out, not thinking wow it could have been several.. so lets not limit... and if you forgot aomeone make another post..
    'The will of God will never take you where the Grace of God will not protect you.'


    • #17
      There have been so many people over the years that have helped me on this board. And if not for Jill I dont think we would have meet any of the wonderful and special people we have meet. Even though I have never met any of you in person, but when the chips have been down for me, especially since my Dad deaths and the problems with my InterStim I have had wonderful people pray and just answer my threads. That means the world to me and it brightens my dad.

      So not to mention just one person all of you are special in your own way. And everyone on here has helped someone. Even if they dont realize or know that they have. It is great that we can come here with great stories, success stories and rants or ask for prayers and that we can be here for each other.

      SO thanks to all of you here on this site, you all mean alot...
      God grant me the serinity to withstand the days ahead!!!

      My myspace link...


      In Memory of My Father (Lawerence) 1/25/2007

      Interstim Sept 2001
      1st InterStim Removal May 2005
      2nd Interstim Implanted May 2005
      2nd InterStim Removed March 2007
      Hysterectomy 1999
      Tubes Tied 1997
      C-Section 1996

      Me and my kids

      Taylor (my daughter) Me and my daughter My son Cody and Taylor


      • #18
        There is someone else on this bored that I think is a true blessing, I do not know her very well, but even with everything that is going on in her life she is still taking time to help everyone..She has been through so many ups and downs..But she keeps on going, showing that IC will not beat her, she is a true inspiration to me and alot others..

        This person is Sarojini..God bless you and thank you for all your concerns and great post...

        ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!

        Link to Patient Handbook:

        Diet Reference Sheet:

        Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

        Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

        Meds I have Tried:
        Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
        Lexapro< Bad reaction to this med!
        Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

        Dx With IC in Nov 2006 with Hydro/Cysto
        Hydro/Cysto Caused Bladder to Rupture.

        Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.

        ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.


        • #19
          When I first joined the boards about this time last year, creatingkarma was so sweet and helpful. Ill never forget her kindness! Since then, I feel like this has become my second family. I wish I could invite yall to my wedding!

          This is a great thread!
          Meds: Percocet PRN; Pyridium PRN. First symptoms Dec 2005. Diagnosed in March 2006.

          I am the proud mom of a two year old boy! I was lucky enough to be in remission my entire pregnancy. If you have any questions regarding my pregancy, delivery, breastfeeding, or pumping, feel free to contact me!

          Im on Facebook! Just tell me you are from the ICN. Look me up under Kim Wayne.

          I love working as a CNA in a nursing home. Started school in August part time. Going for my LPN!!!!


          • #20
            You've all been so great to me! It helps so much to know that I'm not alone. It would take forever for me to put down everyone, so I want you all to know that I thank all of you for your help and respect.


            • #21
              To the world you may be one person, but to one person you may be the world.
              Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

              "One hour at a time, this was NOT my American Dream but it has to work out somehow."

              I also have some journals of my journeys, past and some present at:

              Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.


              • #22
                I'd like to thank Traceann for being very upbeat and positive! Also, Donna, you are like the mothersuperior of this board. Thank you everyone who posts here. It is a wonderful, wonderful resource to have.